Re: update on michelle of la

[Guest guest]

Bob, thank you for the update on . Gosh I hope she gets to feeling

better now that they have her on new meds. I was just started on the

neurontin today. Hopefully it will make me sleep too. Do you happen to

know how much she takes.

I also didn't know about the vinegar. I do drink some daily. I know it

sounds gross, but really helps with a lot of stuff. LOL (I mix with water)

I know about the ins. co. Boy makes you want to scream huh? Let her know

that I'm thinking of her and that you both are in my thoughts and prayers

hugs

[Guest guest]

of La did get back from the Mayo Clinic.

They checked her over very closely and Dr. Luthra says

she does indeed have relapsing polychondritis and it

needs to be better controled. She has been on 45-60 mg

of zone daily and 5 2.5 mex per week for over 4 months

with no improvement and constant pain, so he recommmed

Cellcept as an alternative to the mex...since she had

elevated AST levels...she also has diabetes which

would account for some of the weakness, and slow

healing, i think. she started on the new med this

week,so we will see what happens. also they increased

her nerontin and now she is very sleepy...one

interesting thing they told her to do was to wash the

ears and sore places on her skin with vinegar....she

says that vinegar does better than all those expensive

antibotic creams!!

so we keep on hoping and praying for everyone. I

think her computer is broke and the disablilty check

is in the mail...that is another story..insurance

companies are so interesting, the short term they paid

quickly but long term it is taking almost three months

to get started...at least they said the check was in

the mail...i guess they think that bills quit coming

when you are sick...

bob lindsay

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[Guest guest]

Tell that I am glad she was able to get some help at the

Mayo. I am looking forward to talking to her since I feel like we are

neighbors. My Dr. told me we need to move to Arizona because the

weather in Southeast Texas is bad for sinuses and whatever. And she

is around the corner. I would love to give her a call but dont know

how. Tell her to call me collect at 409-9620962 if she ever wants to

talk or needs anything. The Mayo is my next stop if this doesnt get

any better.Give her a hug from me when you see her and tell her to

just hang in there. Prayers and hugs,