Guest guest Posted June 6, 2004 Report Share Posted June 6, 2004 Jen This is in Toronto . What doctor did you see here? I saw a Doctor Gallenger at Princess Margaret Hospital recently he is suposed to be the top one in Toronto for pancreas problems. Let me know please. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2004 Report Share Posted June 6, 2004 Hello all. I post here once in a while and right now i'm so frustrated with the medical system. I have been having constant pancreatitic attacks since last July. They believe this is related to me having pancreas divisum. I've had 2 ERCP attempts to place stents in and both times they failed. My lipase is always elevated and has been constantly 2000+ for the last 2 months. The reason why i'm so frustrated is because nobody seems to be wanting to do anything. My last ERCP was attempted in Toronto in Canada. I live in Winnipeg in Canada and flew down there for this attempt. The doc couldn't access the duct and said he would be in touch with my doc in Winnipeg immediately. He said I may have to have another MRCP done with a special dye inserted into my pancreas to look at the ducts or I may have to have surgery done to cut open the duct. My annoyance is first with the MRCP. I already had one done in December and I had waited 3 months for it. Why didn't they insert the dye then. Instead if they go ahead with this MRCP i'll probably be waiting another 6 months for this test. Another big issue is doc in Toronto suggested surgery to access the duct. But my doc in Winnipeg said absolutely no surgery ever. He said if they couldn't get the stent in Toronto, then I don't have pancreatitis. So this totally confuses me. And to top it off Doc in Toronto still hasn't talked to my doc in Winnipeg. So i'm sitting here in horrible pain and I don't even know what they are gonna do next. I'm just so angry and frustrated. The last time i saw my doc in Winnipeg i was concerned cause i'm having lots of pain and nausea. All he said was to take more morphine. But I hate taking morphine during the day cause it zoncs me out. I'm just really scared that nothing is ever gonna get done. I'm just at my wits end. I'm a nurse and I shouldn't be hating the medical system this much. I just want something to be done. Sorry for the long post, i'm just really upset today. I hope everyone is doing okay. Jen Quote Link to comment Share on other sites More sharing options...
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