Guest guest Posted August 4, 2004 Report Share Posted August 4, 2004 Matt, You wrote, " The doctors say they do not know what is wrong with me and that it can't all be my pancreas because my blood work is normal " I appreciated reading your story. It sounded so familiar. Gallbladder induced pancreatitis or biliary disease is one of the most common reasons for developing pancreatitis. Usually, this is acute pancreatitis and it resolves. The fact that you have been having problems for two years, and on repeated CT scans have indicated pancreatic damage is very suggestive that your disease is of the chronic nature. As pancreatitis progresses and further damage occurs to the pancreas, the organ, by nature of the disease itself, is unable to produce the enzymes anymore. The enzymes were autodigesting or eating the exocrine cells alive that were producing it in the first place. In almost every medical textbook that is for the Gastroenterologist, it explains this. In medical textbooks that are for the general MD, it does not explain this, because in acute pancreatitis, it does not progress this way. Most doctors are only trained to care for acute pancreatitis. What area of the country are you from? Did you see a pancreatologist or a GI specialist? I am impressed that they had an ERCP, MRCP, and CT Scanner. Each of these test see a different aspect of the pancreas. Interpreting the morphological changes in the pancreatic tissue requires a skilled practitioner. I wouldn't wish this disease on anyone, and I would hope that you only had residual biliary disease from the gallstones, but with the data that you shared in your post supports the likelihood that it has either damaged the pancreas or your body produces pancreatic sludge and pancreatic stones like the gallbladder did. Glad you found the site. Karyn E. , RN Executive Director, PAI http://www.pancassociation.org Pancreatitis Association International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 Thanks for your reply. I am in central Florida, I have an appointment with a GI specialist next week. He is the one who would of done the ERCP if it was working when I had my gall bladder out. I am trying to make sure I ask the right questions. I am feeling better today and have only taken Zofran for nausea. My PICC did not flush well today, my veins are so shot I am going to ask my doctor for a port. Is this common? My wife has Gastroparesis and my attack last week was so similar to hers I was beginning to think I was getting something else on top of the Pancreatitis. Right now they have me on Dilaudid as needed, Reglan, Phenegran, Zofran, Pancrease, Neurontin, and Prevacid. I really am quite whipped. Thanks for your note. Matt Florida Quote Link to comment Share on other sites More sharing options...
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