To Kris - -re: diagnoses ?

August 5, 2004

Thanks Kris for the kind words of encouragement and empathy...I

truly do appreciate them. You may or may not have seen my last two

posts to Chrissy and Debbie..I'm up at 4:30 now on what's now the

5th of August!! I just cannot sleep for obvious reasons. Yes, I've

allowed myself the obligatory pity party and now am " scraping myself

off the floor " - I didn't really think that I had pinned so much

hope on this EUS. In fact, I went in there thinking/knowing that

they weren't going to find anything visual...I believe in my heart

of hearts that there is more than likely a problem with SOD and that

eventually (hopefully sooner w/Dr Lehman if I can swing it) they

will find it and I also know there isn't really a " cure " but at

least there will at last be a diagnosis and treatment can proceed

from there (even if it isn't much different from what I'm getting

now, good pain control (thanks to my PCP - that I DO have faith in),

enzymes and such. Anyway, I am now in more typical fashion,

trying to get a " going forward " sort of thought process going as I

know that the pity party isnt doing anybody any good especially

myself but also my young son and husband. I'm really more stressed

about the possibility of losing my job and health ins. right now

more than anything else...that's why a diagnosis is so important to

me right now in the event that I need to go down the SSDI route.

Don't you have to have a dx before you can even apply? Don't know

if you know the answer to that or not...anyway, thanks for your kind

words I always appreciate them....you guys are the BEST!!

thanks again

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