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Re: Advise PLEASE!!

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So sorry to hear about the craziness. My first suggestion would be

(if this is possible) to keep your son wcf out of day care. They

just breed illness and infection. Second, have you tried tilting his

crib? We do that when my 30 month old gets congested and it seems to

help a bit. Third, I know these are supposedly off limits, but we

use an ultrasonic humidifier when he is super congested. We use

boiled water only and clean the humidifier every day with

disinfectant. We run it only when he is sleeping and then air the

room out when he isn't in there. And Fourth, is he on any anti-

histimines? My son is on Zyrtec and it helps dry out the mucus. We

have to be extra sure that we keep him super hydrated. I hope this

helps!!

> Hello everyone,

>

> Here is where we are at: My son, , is 20 months old. He

started

> full time day care at the beginning of Sept. (with his 3 yr. Old

> brother) He was there, I'd say probably 3 days in total, got sick

right

> away, double ear infection, strep throat, congested chest. He had

never

> been in day care before this time. Then my middle son got the

stomach

> flu, of course, Matty caught it, runny runny poops for a few days.

He

> has had a runny nose probably throughout the last 6 weeks on and

off.

> Well, just last week, near the end of the week, his cough started.

The

> worst that we have ever heard. By Saturday morning, I was really

> worried. Called the hospital where our clinic is, and they said

bring

> him in for assessment. He had a fever, 38.8. Found out he had a

right

> ear infection. Did a chest x-ray to rule out pneumonia, doctors

said

> that it clear of that but looked congested, especially on the right

> side. He was put on Cephlex . They took a sputum sample to check

for

> bacteria and sent us home. 48 hours later is today. He is not much

> better , not any worse. Called them again, the culture is not back

yet.

> But if he is growing anything, they said the Cephlex would fight

that.

> He is very wheezy, not sure if it is because of a virus or asthma

or CF

> related. We have increased his nebs.to every four hours. He has

> pulmicort 2x/daily. Other times just ventilin. Doing CPT 4x/day.

> Don't know what else to do. I put my trust in the doctors, they

don't

> seem to want to admit him yet for IV antibiotics. I guess they

don't

> want him at the hospital unless absolutely necessary. But they

don't

> hear his cough at night, he is gagging. We are all sleep deprived.

>

> Help...feeling so frustrated and don't know what to do.

> Cheryl, mom to 3 boys, Zac 7 yrs. wocf, Jake 3 yrs. wocf,

20 mo

> wcf

>

>

>

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Thanks for your suggestions,

I have taken a leave from work until the new year. So they are out of

day care for now. We hope to have a nanny in place by then.

I will try tilting the crib, I don't know why I didn't think of that

before, I have done it with my first born when he was congested.

As for the humidifier, is it a warm or cool air one? I know they say

they aren't to be used with CFer's but it sounds like you are taking all

the right precautions.

Where do you live? Can you get Zyrtec at the drug store or do you need

a prescription? We live in Canada.

Tks so much, I'll try some of your ideas.

Cheryl

Re: Advise PLEASE!!

So sorry to hear about the craziness. My first suggestion would be

(if this is possible) to keep your son wcf out of day care. They

just breed illness and infection. Second, have you tried tilting his

crib? We do that when my 30 month old gets congested and it seems to

help a bit. Third, I know these are supposedly off limits, but we

use an ultrasonic humidifier when he is super congested. We use

boiled water only and clean the humidifier every day with

disinfectant. We run it only when he is sleeping and then air the

room out when he isn't in there. And Fourth, is he on any anti-

histimines? My son is on Zyrtec and it helps dry out the mucus. We

have to be extra sure that we keep him super hydrated. I hope this

helps!!

> Hello everyone,

>

> Here is where we are at: My son, , is 20 months old. He

started

> full time day care at the beginning of Sept. (with his 3 yr. Old

> brother) He was there, I'd say probably 3 days in total, got sick

right

> away, double ear infection, strep throat, congested chest. He had

never

> been in day care before this time. Then my middle son got the

stomach

> flu, of course, Matty caught it, runny runny poops for a few days.

He

> has had a runny nose probably throughout the last 6 weeks on and

off.

> Well, just last week, near the end of the week, his cough started.

The

> worst that we have ever heard. By Saturday morning, I was really

> worried. Called the hospital where our clinic is, and they said

bring

> him in for assessment. He had a fever, 38.8. Found out he had a

right

> ear infection. Did a chest x-ray to rule out pneumonia, doctors

said

> that it clear of that but looked congested, especially on the right

> side. He was put on Cephlex . They took a sputum sample to check

for

> bacteria and sent us home. 48 hours later is today. He is not much

> better , not any worse. Called them again, the culture is not back

yet.

> But if he is growing anything, they said the Cephlex would fight

that.

> He is very wheezy, not sure if it is because of a virus or asthma

or CF

> related. We have increased his nebs.to every four hours. He has

> pulmicort 2x/daily. Other times just ventilin. Doing CPT 4x/day.

> Don't know what else to do. I put my trust in the doctors, they

don't

> seem to want to admit him yet for IV antibiotics. I guess they

don't

> want him at the hospital unless absolutely necessary. But they

don't

> hear his cough at night, he is gagging. We are all sleep deprived.

>

> Help...feeling so frustrated and don't know what to do.

> Cheryl, mom to 3 boys, Zac 7 yrs. wocf, Jake 3 yrs. wocf,

20 mo

> wcf

>

>

>

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We are in Kansas (USA). We have to get a prescription for the

Zyrtec. As for the humidifier, it is a cool air ultrasonic. we got

ours at Walgreens. Good luck!

> > Hello everyone,

> >

> > Here is where we are at: My son, , is 20 months old. He

> started

> > full time day care at the beginning of Sept. (with his 3 yr. Old

> > brother) He was there, I'd say probably 3 days in total, got

sick

> right

> > away, double ear infection, strep throat, congested chest. He had

> never

> > been in day care before this time. Then my middle son got the

> stomach

> > flu, of course, Matty caught it, runny runny poops for a few

days.

> He

> > has had a runny nose probably throughout the last 6 weeks on and

> off.

> > Well, just last week, near the end of the week, his cough

started.

> The

> > worst that we have ever heard. By Saturday morning, I was really

> > worried. Called the hospital where our clinic is, and they said

> bring

> > him in for assessment. He had a fever, 38.8. Found out he had a

> right

> > ear infection. Did a chest x-ray to rule out pneumonia, doctors

> said

> > that it clear of that but looked congested, especially on the

right

> > side. He was put on Cephlex . They took a sputum sample to

check

> for

> > bacteria and sent us home. 48 hours later is today. He is not

much

> > better , not any worse. Called them again, the culture is not

back

> yet.

> > But if he is growing anything, they said the Cephlex would fight

> that.

> > He is very wheezy, not sure if it is because of a virus or asthma

> or CF

> > related. We have increased his nebs.to every four hours. He has

> > pulmicort 2x/daily. Other times just ventilin. Doing CPT 4x/day.

> > Don't know what else to do. I put my trust in the doctors, they

> don't

> > seem to want to admit him yet for IV antibiotics. I guess they

> don't

> > want him at the hospital unless absolutely necessary. But they

> don't

> > hear his cough at night, he is gagging. We are all sleep

deprived.

> >

> > Help...feeling so frustrated and don't know what to do.

> > Cheryl, mom to 3 boys, Zac 7 yrs. wocf, Jake 3 yrs. wocf,

> 20 mo

> > wcf

> >

> >

> >

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Have you tried a vapor bath? and makes one that I am currently

using for 's cold. It does help reduce some of the congestion. Just try

to keep him from really splashing a whole lot (not really a problem with the J &

J baby stuff though) We are using it right before bedtime. Also, her CF clinic

put her on nasal spray/ nose drops to help throughout the day. Good Luck!

Mom of 5 with CF ( and currently a cold!)

Advise PLEASE!!

Hello everyone,

Here is where we are at: My son, , is 20 months old. He started

full time day care at the beginning of Sept. (with his 3 yr. Old

brother) He was there, I'd say probably 3 days in total, got sick right

away, double ear infection, strep throat, congested chest. He had never

been in day care before this time. Then my middle son got the stomach

flu, of course, Matty caught it, runny runny poops for a few days. He

has had a runny nose probably throughout the last 6 weeks on and off.

Well, just last week, near the end of the week, his cough started. The

worst that we have ever heard. By Saturday morning, I was really

worried. Called the hospital where our clinic is, and they said bring

him in for assessment. He had a fever, 38.8. Found out he had a right

ear infection. Did a chest x-ray to rule out pneumonia, doctors said

that it clear of that but looked congested, especially on the right

side. He was put on Cephlex . They took a sputum sample to check for

bacteria and sent us home. 48 hours later is today. He is not much

better , not any worse. Called them again, the culture is not back yet.

But if he is growing anything, they said the Cephlex would fight that.

He is very wheezy, not sure if it is because of a virus or asthma or CF

related. We have increased his nebs.to every four hours. He has

pulmicort 2x/daily. Other times just ventilin. Doing CPT 4x/day.

Don't know what else to do. I put my trust in the doctors, they don't

seem to want to admit him yet for IV antibiotics. I guess they don't

want him at the hospital unless absolutely necessary. But they don't

hear his cough at night, he is gagging. We are all sleep deprived.

Help...feeling so frustrated and don't know what to do.

Cheryl, mom to 3 boys, Zac 7 yrs. wocf, Jake 3 yrs. wocf, 20 mo

wcf

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> Hello everyone,

Sorry to hear your son is not feeling well. Does he have nasal

congestion or is it just in his chest. Does he do a neb. with

Pulmozyme? Does he wake up from coughing or sleep through it? Has

he spit up any of the mucous? What did the dr.s say about the

wheezing? Typically, when my son has a continuous cough with a

wheeze that the increased bronchodialator and purlmicort breathing

treatments aren't helping, he goes on a short does of a steroid which

usually helps until the antibiotic can kick in. My son has allergy

and asthma components and regularly takes singulair and zyrtech which

has def. helped. He was very sick, like your describe from dx. at 18

mos. and until about 4. Now with his maintenance med's and our being

able to read his symptoms and treat sooner than we did before, he

seems not to be sick constantly. However, he still has not yet had a

cold stay a cold. If you son has a lot of nasal congestion, a

nighttime bath to help the secretions move and saline nose drops do

help. If his sinuses are clogged, we have had help from flonase.

It is so difficult to hear them and our hearts ache for them. I hope

he feels better soon and I hope some of our experiences can lend some

help to you and your family. Best Wishes!

Jo Ann, Mom to , 5 w/ CF and Tommy, 8 no CF.>

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