Re: Re: reply to sue

[Guest guest]

Hi again,

my husband does not have any trouble swallowing, he just mumbles

alot (but i suppose most men do) I know he had a lot of speach thereapy

when he was younger and they wanted to cut it but his parents did not want

that.

Abby sounds like a fighter.

tke care

sue

>

>Reply-To: cfparents

>To: cfparents

>Subject: Re: reply to sue

>Date: Wed, 19 Nov 2003 13:37:21 -0000

>

>I have a grand daughter with CF. She will be two this December. Her

>name is Abby (Abigail). Abby also has a tongue tie. Abby can not

>drink liquids. Some of the liquid enters hers lungs. We thicken her

>liquids so that they have the consistancy of honey. The doctros do

>not " think " that the tongue tie is the cause of the swallow problem.

>Does your husband have any trouble swallowing?

>

>Abby also has Arnold Chiari malformation. This is when the brain

>stem extends through the base of the skull to far. Arnold Chiari can

>also cause swallowing problems. We are just hoping that she outgrows

>the swallowing problems and doesn't have to have surgey for the

>Arnold Chiari.

>

>Gale

>Grandma to Abby (almost 2 yrs old with CF)

>

>

>

> > > > hi im new to this site, my name is sue and i have a 2yr oldwith

>cf.

> > >i live

> > > > in uk and after reading quite a few of ur posts thought id get

> > >intouch.

> > > > Ethan has been quite well of late and has only been diagnosed

>for 6

> > >months

> > > > hope to hear from some of u soon

> > > > take care

> > > > love sue

> > > >

> > > >

>_________________________________________________________________

> > > > Use MSN Messenger to send music and pics to your friends

> > > > http://www.msn.co.uk/messenger

> > >

> >

> > _________________________________________________________________

> > On the move? Get Hotmail on your mobile phone

>http://www.msn.co.uk/msnmobile

>

_________________________________________________________________

Get Hotmail on your mobile phone http://www.msn.co.uk/msnmobile