Guest guest Posted December 2, 2003 Report Share Posted December 2, 2003 In a message dated 12/1/2003 9:41:28 PM Central Standard Time, hark523@... writes: Patty Can you make a chart for him and tell him everyday he does not through a fit he can put a star on the chart and when he gets a whole week of stars he can pick an activity that he would like to do. Like have a friend over for the night or go shopping for something he would really like, or go to a movie he wants to see. Something he would really want to do. Bribery is the best way to go for temper tantrums. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2003 Report Share Posted December 2, 2003 Dear Patty, Do you think some of the tapes that I have (been listed on list) would help him. They are very short ones but done by those " kids -families-young adults) who have CF . He might NOT like doing it , but maybe get caught up with the seeing others ....I would be happy to send whatever might help . Even you parents learn from them. Also some booklets (easy read) for ADULTS & Adults to be booklets. Let me know ----with addy on post. ----or call me 1-. LOVE & HUGS< GrandmoMBEV Therapy Rebel Maybe someone could help clue me in.My 8 yr old (going on 18) cfer is an absolute pistol when it comes to doing his therapy, ESPECIALLY his vest.He was dx at 3, got his vest maybe a yr later and its been *@% & to pay ever since!Every nite, same thing, he cries for lack of a better term, a stuck pig(lol), and its " pack your bags cuz your going on the this is so " terrible " guilt trip.I DO NOT give into his demands.I have heard how he hates me, thinks I'm the meanest mom EVER, (etc) yet he must do the vest regardless.Once in a while, Before his tantrums, I may bargain(much like the with the devil) and allow him to do something special like spend the nite w/gramma and do a double vest the next day, but for the most part, when its time to do it, there's no wheelin' and dealin'.Yet, all these years later, much to my dismay, its like pulling teeth to get him to cooperate at all let alone gracefully.I have tried positive reinforcement, incentives, threats, showing him up on tantrums and things of the like and all attempts have failed.PLZ, can anyone help bring a little sanity to this situation?I'm at a loss! Help needed in Florida, Patty, mom to Ty wcf & 2wocf ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2003 Report Share Posted December 2, 2003 Hi, My five year old does this too. The weird thing is that she only does it when Daddy is home. I mean she complains about it when it's just me, but only at the end of the last frequency and it is not the constant whining and moaning when I am here with her by myself. On the weekends and in the evening, She starts before we put the vest on her and it continues until it's done (20 min). With her, I think, it has a lot to do with being connected to the vest and feeling tied down as well as wanting Daddy's attention. Mom of 5 with CF and one on the way Therapy Rebel Maybe someone could help clue me in.My 8 yr old (going on 18) cfer is an absolute pistol when it comes to doing his therapy, ESPECIALLY his vest.He was dx at 3, got his vest maybe a yr later and its been *@% & to pay ever since!Every nite, same thing, he cries for lack of a better term, a stuck pig(lol), and its " pack your bags cuz your going on the this is so " terrible " guilt trip.I DO NOT give into his demands.I have heard how he hates me, thinks I'm the meanest mom EVER, (etc) yet he must do the vest regardless.Once in a while, Before his tantrums, I may bargain(much like the with the devil) and allow him to do something special like spend the nite w/gramma and do a double vest the next day, but for the most part, when its time to do it, there's no wheelin' and dealin'.Yet, all these years later, much to my dismay, its like pulling teeth to get him to cooperate at all let alone gracefully.I have tried positive reinforcement, incentives, threats, showing him up on tantrums and things of the like and all attempts have failed.PLZ, can anyone help bring a little sanity to this situation?I'm at a loss! Help needed in Florida, Patty, mom to Ty wcf & 2wocf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2003 Report Share Posted December 2, 2003 Patty, That kills me to hear that you are having such a hard time. I was that dramatic also. I always told my parents that I hated them, and that they didn't know what I felt like. Brutal now that I think about it. But kids are kids. So I can't tell you about how do deal with this, since I have no idea what it's like to be a parent, let alone a CFers. So here I am no help, sorry. But I was a kid, and all I can say is feel NO guilt. You're saving your kids life. they will get over it. I did. and my parents and I have a wonderful relationship.....now =) Sorry you are having a hard time, it can't be easy. Stay strong > Maybe someone could help clue me in.My 8 yr old (going on 18) cfer > is an absolute pistol when it comes to doing his therapy, ESPECIALLY > his vest.He was dx at 3, got his vest maybe a yr later and its been > *@% & to pay ever since!Every nite, same thing, he cries for > lack of a better term, a stuck pig(lol), and its " pack your bags cuz > your going on the this is so " terrible " guilt trip.I DO NOT give > into his demands.I have heard how he hates me, thinks I'm the > meanest mom EVER, (etc) yet he must do the vest regardless.Once in a > while, Before his tantrums, I may bargain(much like the with the > devil) and allow him to do something special like spend the nite > w/gramma and do a double vest the next day, but for the most part, > when its time to do it, there's no wheelin' and dealin'.Yet, all > these years later, much to my dismay, its like pulling teeth to get > him to cooperate at all let alone gracefully.I have tried positive > reinforcement, incentives, threats, showing him up on tantrums and > things of the like and all attempts have failed.PLZ, can anyone help > bring a little sanity to this situation?I'm at a loss! > > Help needed in Florida, > Patty, mom to Ty wcf & 2wocf > > <image.tiff> > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > ------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2003 Report Share Posted December 2, 2003 Patty - I truly know how you feel. My daughter 13, diagnosed at 6, fights me EVERY treatment. She used to make herself vomit to not take medicine. It wipes the heck out of me. The 2 boys are nothing compared to her. I think its that they knew the " good " life. I shut off the computer, tv, etc. until her vest is on and she is ready to go. Screaming, bribes, rewards don't work. I just calmly and quietly shut off whatever she is doing til she is ready to start. Then I watch her like a hawk cause as soon as I leave the room everything gets turned off........ Patience is a virtue we shall acquire - if we don't we will be COMMITTED......... Rosemary in NY with 3 children (13, 11 and 7) with CF. I have a dog named TOBI and have coined the phrase " BREATHE DAMMIT " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2003 Report Share Posted December 2, 2003 Will he do it while he is sleeping? My 8 yr. old does her morning vest at 5:30am while she is sleeping. We also have the Acapella. She picks which one she wants to do. Does he play Nintendo, Playstation, or Game Boy? Traci also uses a mask to do nebulizer so she doesn't have to hold the cup. Lynette Carwana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2003 Report Share Posted December 2, 2003 My daughter is now 27 years old (Toni, Abby's mom). When she was about 5 years old I bought a necklace and hung it on the refrigerater door. I told her that she could have the necklace if she went 5 days in a row without having a fit. She NEVER earned that necklace. Come to think of it, bribery doesn't work with my son either. I guess that I have stubborn children. I think that Abby is going to be just as stubborn, but really cute. Gale Grandma to Abby, 23 months with CF > In a message dated 12/1/2003 9:41:28 PM Central Standard Time, > hark523@y... writes: > Patty > Can you make a chart for him and tell him everyday he does not through a fit > he can put a star on the chart and when he gets a whole week of stars he can > pick an activity that he would like to do. Like have a friend over for the > night or go shopping for something he would really like, or go to a movie he wants > to see. Something he would really want to do. Bribery is the best way to go > for temper tantrums. Deb A > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2003 Report Share Posted December 3, 2003 What about counseling or therapy for him and the family? Dawn mom of 4, 7 and under, the youngest wcf Quote Link to comment Share on other sites More sharing options...
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