Re: Re: pancreatic enztmes

[Guest guest]

Just my take, but I think most of us have needed enzymes

especially in infancy and childhood--being just a kid myself, at 66, I still

take them!

n Rojas, who doubts the total sufficiency of pancreases in general!

Re: pancreatic SUFFICIENT???

> Was your son having any malabsorption problems before diagnosis? We

> pursued cf dna testing because we thought Zach had fat malabsorption

> from pancreatic insufficiency. After his dna test came back with

> two known cf mutations, no one ever mentioned doing an elastase test

> to verify that he needed enzymes. Our GI doc is convinced that Zach

> has malabsorption problems that are NOT cause by pancreatic

> insufficiency. He thinks it could be food allergies, etc. I am

> confused. I hope that the test shows that Zach's pancreas is

> working. If he is pancreatic sufficient, then why in the H-E double

> hockey sticks didn't the cf clinic test for this back in March. It

> is a possiblity that I have been giving Zach enzymes needlessly.

> If Zach is pancreatic insufficient, then this GI doc has wasted my

> time and I will get over it, but if the CF clinic screwed up, I will

> have a hard time trusting them again.

> Sara - mommy to Zach 20 months wcf

>

>

> >

> > > Has anyone every had an elastase test done? Is this common?

> >

> >

> > Yes my son had one done while he was being worked up for CF at

> the

> > CF clinic. Only one place does them (so I was told ) and the wait

> > could be several weeks. It's painless - all you have to do is

> collect

> > a sample and wait. The elastase test showed my son was sufficient

> as

> > well. He does complain of belly pain (or did before his diagnosis)

> > but the workup discovered he was completely filled with stool. He

> now

> > is on a stool softener every day and it seems to make a big

> > difference in his belly pain.

> >

> > jan

>

>

>

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