Re: newbee-Dan Welcome to the Group

[Guest guest]

Dan

So glad you found us! You have come to the right place for information! Ask all the questions you would like there will be someone her to answer you or point you in the right direction.

Sounds like the stress of the wife leaving might have brought on the RP. Yes RP does not act well with stress.

Know we are here for you and post as much or as often as you like!

Lots of love

Glenda

newbee

hello my name is dan iam 36 and recently was diagnosed with rp.this is so wierd.can anybody tell me what to expect in the next couple of years.I have two children 14 and 9 and am so worried what would happen.thier mother left us 7 mos. ago and the stresses of being a single parent and the ones associated with a diagnosis of rp seem overwhelming right now and i know this will abate but for now a quest for information on this disease seems to be the only thing that can distract me from self pity(I find self pity a disgusting thing)after being prescribed antibiotics for my swollen ears from my gp I knew he was misdiagnosing me for perichondritis i went to the internet found the information i needed and asked dr. trentham at beth isreal in boston if he would be interested in seeing me he immediatly has taken me into his care and claimed i was the first of his patients to self diagnos he is a remarkable man with such high energy i feel grateful to him already, however our first meeting was so abrupt that i didn't have time to ask alot of questions and now i won't see him again til the 15th i guess thats why i'm here,am i even making sense?any information on what to expect would be appreciated,I guess i should have just said that in the beginning.thanxDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU