Re: Jen, you are not alone.

[Guest guest]

>

> Dear Jen,

>

> It is so hard living like this. WE have become the " joke " of the block with

some. They

know that we are serious tough. So they respect us....but I too, have heard

from the

" grape vine " that things that are hurtful have been said behind our backs.

>

Please don't take this the wrong way.

Two weeks ago my sister-in-law was buried. I had known her since 1951. Most of

the time

we got along. When I deveoped chemical sensitivities and latex allergy, I

refused to touch a

rubber handled knife when she asked me to slice some bagels, I later overheard

her

ridiculing me to my ex husband.

The eulogy and service were very moving. It took twenty minuutes. Then we went

to the

cemetery and that was it. Everyone got on with their lives the next day. I

decided it was

high time I stopped worrying about what others think of me and what they say

about me

because there won't be time to discuss it in a mere twenty minutes.

I gave myself permision to live life my way as long as it does not hurt others.

Refusing

starch and sugar and not touching rubber is not hurting others.

Carol F.

SCD 6 years, celiac

[Guest guest]

Just the fact that they were pretending to support us behind our backs and

they gave her popcorn really makes me irrate! We too have already lost ALL

family support. They don't stop pushing everytime so we don't even visit

anymore. It is sad but, no one else can help my baby girl but, me. It's a

hard lesson to learn. Jenn & K

Re: Jen, you are not alone.

>

> >

> > Dear Jen,

> >

> > It is so hard living like this. WE have become the " joke " of the block

with some. They

> know that we are serious tough. So they respect us....but I too, have

heard from the

> " grape vine " that things that are hurtful have been said behind our backs.

> >

> Please don't take this the wrong way.

>

> Two weeks ago my sister-in-law was buried. I had known her since 1951.

Most of the time

> we got along. When I deveoped chemical sensitivities and latex allergy, I

refused to touch a

> rubber handled knife when she asked me to slice some bagels, I later

overheard her

> ridiculing me to my ex husband.

>

> The eulogy and service were very moving. It took twenty minuutes. Then we

went to the

> cemetery and that was it. Everyone got on with their lives the next day. I

decided it was

> high time I stopped worrying about what others think of me and what they

say about me

> because there won't be time to discuss it in a mere twenty minutes.

>

> I gave myself permision to live life my way as long as it does not hurt

others. Refusing

> starch and sugar and not touching rubber is not hurting others.

>

> Carol F.

> SCD 6 years, celiac

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

[Guest guest]

I just love you Carol. Years of wisdom always speak from your heart. You are

right again.

Jen, take your cooler (and as my sister rudely says: " bring your sack lunch! " ),

like we do and go to their homes and visit anyways...don't expect their support

or expect validation. They more than likely will never believe in this. Live

is too short enjoy your family even if they do think you are nuts.

If you are lucky you can hold a rubber handle knife without having a strange

reaction! Not so funny when one is trying to find diapers without latex in them!

Cloth diapers are so much fun! Worrying about her plastic IV lines...made them

laugh at me. Next thing your know she is reacting from the darn

tape....underneath the stuff where small blisters. When they removed the tape

the skin came with it! They didn't role their eyes then! The immune system

totally gets out of whack with some of us! My next home will be a cave without

the chemicals of carpet.

Like I have said before, I have had more people roll their eyes than I can

count! I am a nut for a mother...didn't you hear?

Believe in yourself, believe in Elaine, heal yourself and your daughter and live

on and celebrate life again!

I learned form another wise person that, Resentment is a medicine that we take

expecting the other person to die! Never works...

I no longer talk about it with my sister. It upsets her this much. A pure

WASTE of time. Which Just upsets me. They don't care....I know that they could

be helped if they would eat this way too...but they are too addicted and to

convinced that the SADIET (standard American diet) is all that. She suffers

from a " vicious cycle " and seizures...but who am I to tell her? I am not her

doctor who makes money off of her sickness. Sadly to say she has not hit bottom

yet like those on this serve have. Plus, unlike us she has lots of money for

her copays, pills and tests! lol!

What is bothering me....is that our family is witnessing Kiki come out of her

AUTISM. They are truly thrilled. YET Now they are now saying that the always

knew that Kiki would be OK, that we shouldn't have worried so much.....not

giving one once of credit to SCDIET and all the hard work! Oh well....they can

believe what they think.

I will try to take my own advice to you......my resentment is making me sick

again..lol!!!

Antoinette and family of five (reason for SCD;

CD/ibd/ibs/colic/seizures/add/adhd/autism and more SCD 2/06)

[Guest guest]

Yes. The family is saying that Kali is doing better due to schooling and

time. It's sad that they haven't been open to witnessing the true miracles

that come almost everyday that my husband & I are seeing. Those who are

faithful will see a HUGE difference in these kids. I have no dx but, know I

have IBS and allergies. I have been on this diet with her for about a year

and feel MUCH better with less occurrences.

I just checked on my K in the next room. I found her spontaneously starting

an art project. I CAN " T see it until she's done! She gathered glue, tissue

paper and construction paper. We have never before witnessed a spontaneous

art project!!! We are healing her brain too. She has been initiating

activities herself lately instead of waiting for me to give her something to

do. What a big girl!!! Jenn & Kali

Re: Jen, you are not alone.

> I just love you Carol. Years of wisdom always speak from your heart. You

are right again.

>

> Jen, take your cooler (and as my sister rudely says: " bring your sack

lunch! " ), like we do and go to their homes and visit anyways...don't expect

their support or expect validation. They more than likely will never

believe in this. Live is too short enjoy your family even if they do think

you are nuts.

>

> If you are lucky you can hold a rubber handle knife without having a

strange reaction! Not so funny when one is trying to find diapers without

latex in them! Cloth diapers are so much fun! Worrying about her plastic

IV lines...made them laugh at me. Next thing your know she is reacting from

the darn tape....underneath the stuff where small blisters. When they

removed the tape the skin came with it! They didn't role their eyes then!

The immune system totally gets out of whack with some of us! My next home

will be a cave without the chemicals of carpet.

>

> Like I have said before, I have had more people roll their eyes than I can

count! I am a nut for a mother...didn't you hear?

>

> Believe in yourself, believe in Elaine, heal yourself and your daughter

and live on and celebrate life again!

>

> I learned form another wise person that, Resentment is a medicine that we

take expecting the other person to die! Never works...

>

> I no longer talk about it with my sister. It upsets her this much. A

pure WASTE of time. Which Just upsets me. They don't care....I know that

they could be helped if they would eat this way too...but they are too

addicted and to convinced that the SADIET (standard American diet) is all

that. She suffers from a " vicious cycle " and seizures...but who am I to

tell her? I am not her doctor who makes money off of her sickness. Sadly to

say she has not hit bottom yet like those on this serve have. Plus, unlike

us she has lots of money for her copays, pills and tests! lol!

>

> What is bothering me....is that our family is witnessing Kiki come out of

her AUTISM. They are truly thrilled. YET Now they are now saying that the

always knew that Kiki would be OK, that we shouldn't have worried so

much.....not giving one once of credit to SCDIET and all the hard work! Oh

well....they can believe what they think.

>

> I will try to take my own advice to you......my resentment is making me

sick again..lol!!!

>

> Antoinette and family of five (reason for SCD;

CD/ibd/ibs/colic/seizures/add/adhd/autism and more SCD 2/06)

>

>

>

[Guest guest]

Be careful about being resentful. It is exactly what Satan wants you to do.

I had to pray a lot about my horrible attitude lately as I sat in front of

our Lord in the blessed sacrament last night. Offer up all of this cruelty

from others for something specific. Now, if I can only make use of my own

advice.

Meleah

Re: Jen, you are not alone.

>I just love you Carol. Years of wisdom always speak from your heart. You

>are right again.

>

> Jen, take your cooler (and as my sister rudely says: " bring your sack

> lunch! " ), like we do and go to their homes and visit anyways...don't

> expect their support or expect validation. They more than likely will

> never believe in this. Live is too short enjoy your family even if they

> do think you are nuts.

>

> If you are lucky you can hold a rubber handle knife without having a

> strange reaction! Not so funny when one is trying to find diapers without

> latex in them! Cloth diapers are so much fun! Worrying about her plastic

> IV lines...made them laugh at me. Next thing your know she is reacting

> from the darn tape....underneath the stuff where small blisters. When

> they removed the tape the skin came with it! They didn't role their eyes

> then! The immune system totally gets out of whack with some of us! My

> next home will be a cave without the chemicals of carpet.

>

> Like I have said before, I have had more people roll their eyes than I can

> count! I am a nut for a mother...didn't you hear?

>

> Believe in yourself, believe in Elaine, heal yourself and your daughter

> and live on and celebrate life again!

>

> I learned form another wise person that, Resentment is a medicine that we

> take expecting the other person to die! Never works...

>

> I no longer talk about it with my sister. It upsets her this much. A

> pure WASTE of time. Which Just upsets me. They don't care....I know that

> they could be helped if they would eat this way too...but they are too

> addicted and to convinced that the SADIET (standard American diet) is all

> that. She suffers from a " vicious cycle " and seizures...but who am I to

> tell her? I am not her doctor who makes money off of her sickness. Sadly

> to say she has not hit bottom yet like those on this serve have. Plus,

> unlike us she has lots of money for her copays, pills and tests! lol!

>

> What is bothering me....is that our family is witnessing Kiki come out of

> her AUTISM. They are truly thrilled. YET Now they are now saying that

> the always knew that Kiki would be OK, that we shouldn't have worried so

> much.....not giving one once of credit to SCDIET and all the hard work!

> Oh well....they can believe what they think.

>

> I will try to take my own advice to you......my resentment is making me

> sick again..lol!!!

>

> Antoinette and family of five (reason for SCD;

> CD/ibd/ibs/colic/seizures/add/adhd/autism and more SCD 2/06)

>

>

>

[Guest guest]

>

> Be careful about being resentful. It is exactly what Satan wants you to do.

> I had to pray a lot about my horrible attitude lately as I sat in front of

> our Lord in the blessed sacrament last night. Offer up all of this cruelty

> from others for something specific. Now, if I can only make use of my own

> advice.

> Meleah

>

I just saw clips from 's TV interview of J. Fox.

said,

" When you belive in something, it gives you immunity. "

Carol F.

SCD 6 years, celiac