Re: help I do not know how to do this? Pulmicort

[Guest guest]

,

Tyler started out w/similar symptoms,just couldn't get the cough to

go away.Admitted him 12/4 for iv antibiotics.I'm not saying thats the

only way to go for now, but they suggested an aggressive approach as

to avoid lung damage(he cultured PA and funngus)Has your lil one

cultured anything?

Also I saw you signeed your 5 yr old has adhd.Can you tell me some

signs that led you to believe thats what he's got?Just today i got a

referral to have him eveluated for it, and while I'm excited(therapy

time is a living hell in my house...neighbors must think I'm beaating

him, lol), i'm also scared(msw are so doggone nosey, and i feel my

privacy is invaded, but in order to ensure self/family help i'll do

it.)Can you fill me in as to what to expect.One more thing, what kind

of meds is he on being that he has cf?I dont want Tyler to lose

weight.Hes only 25%ile height, and 5%ile weight and always has been

since birth.Lord knows i keep gaining trying to get HIM to gain(I ate

FOUR donuts today trying to get him to eat a ONE, which might i add

he never did...too late now, theyere gone, LOLOL):)

Patty, mom to Tyler,8,wcf and 2 lil ones wocf

> Hi all, is having a hard time lately, he has a cough that

just wont

> go away, he started out with a nasty junky wet cough, we had him

put on

> zithromax for a week, he improved slightly. After a week when his

cough continued I

> called his pulmonogolist and he put on Bactrim for 14 days

and now his

> cough is a dry deep wheezy hack, it sounds like his lungs are being

ripped

> apart. I took to the doctor today, his regular pediatrician

and he said

> 's lungs sound fine but that he is having asymptomatic

asthma and gave

> me a decongestant and pulmicort. OK first of all what the heck is

that? What

> does that mean asymptomatic asthma? Also, I have no idea how to use

the

> pulmicort, it says to put into your nebulizer, now it says it is

only to be used in

> the jet one, well how do I know if I have the right one?

has the Proneb

> Turbo nebulizer, will this one do? also which cup do I use, I have

one for the

> albuteral and one for the pulmozyme, does it matter? also

will be

> doing albuteral, pulmozyme and pulmicort all in one day is there

any

> complications or anything I need to know about the effects. I

really would appreciate any

> feedback.

>

> Thanks ...., mommy of 5 years old w/cf/adhd and

2 years

> old no CF

>

>

>

[Guest guest]

Hi ,

The jet nebulizer is the same as what you have so you're good there. You can use

either nebulizer but I am not sure if they would need to be cleaned in between.

My daughter has done albuterol/Intal, pulmozyme, Tobi and pulmicort one

following the other before. So yes it is OK. Also I am not saying this is

right, but she just shakes out the leftover med and adds the next one. She

hasn't gotten sick or anything from it and she is 19 so I let her have at it.

When I was " in charge " I made her use different nebs and cleaned them all after

every use. sigh. As for asymptomatic asthma the doc sounds nuts. If he is

wheezing it is symptomatic. So I am with you on that one. Also why would the

doc prescribe pulmicort if he is " asymptomatic " ? Makes no sense. Is this his CF

doc or pedi?

good luck,

M

[Guest guest]

> Also I saw you signeed your 5 yr old has adhd.Can you tell me some

> signs that led you to believe thats what he's got?Just today i got

a

> referral to have him eveluated for it,

The medications for ADHD generally do not interfer with CF

medications but thy all do to some extent affect eating and sleeping.

My son acted did well behaviorally on the smallest dose of Ritalin

except he wasn't going to bed until 11 to 12 at night and he wan't

eating at all. He is now on 40 mg of Strattera. He is sleeping much

better but he is not eating as much as I wished he would eat. He

hasn't gained any weight in a year.

jan

[Guest guest]

Oh NO!Tyler's up til 11 or so as it is.He never could seem to sleep

at night.Whats(not so)funny is he hasnt gain any weight to speak of

in yr WITHOUT meds for adhd. :(

Yep, i must finally be getting tired, i;m meessing up typing,lol.I'll

be to sleep b4 Ty will,lol.

P.S. EVERY single person i've talked to tells me they use stratera

(sp?), but its not covered by medicaid or cms unless its " medically

necessary " .DUH...if it wasnt why would they be on it?!?!?!Darned

insurance co.

Thanks for responding, Jan.

Patty, mom to ty,8,wcf and 2lil ones wocf

>

> > Also I saw you signeed your 5 yr old has adhd.Can you tell me

some

> > signs that led you to believe thats what he's got?Just today i

got

> a

> > referral to have him eveluated for it,

>

> The medications for ADHD generally do not interfer with CF

> medications but thy all do to some extent affect eating and

sleeping.

> My son acted did well behaviorally on the smallest dose of Ritalin

> except he wasn't going to bed until 11 to 12 at night and he wan't

> eating at all. He is now on 40 mg of Strattera. He is sleeping

much

> better but he is not eating as much as I wished he would eat. He

> hasn't gained any weight in a year.

>

> jan