Re: feeding question

[Guest guest]

We are supposed to do midnight doses of enzymes. The doctor who recommended

this said we could put enzymes through the button, but they might stick. The

reason he said we could try this is because has a mickey button and

we keep extra buttons at home. We have to change the button every so often

anyway. Sometimes the little balloon holding it in pops, and sometimes it just

doesn't seem to be working properly. We usually change it every 2-3 months.

Anyway, I don't know if you do this or not. If not, I definately would not

recommend putting enzymes in the button. Some of the meds we have put through,

like clyndomycin liquid seemed to slow down the milks going in because of the

sandy stuff in the med. We have not tried putting enzymes in, as the

clyndomycin did cause some problems, I was sure the bigger enzymes would. It

might

be different, depending on the size. is using a 14 French Mickey

Button.

Hope this makes sense and helps.

Lots of luck.....

Sue Pettit of Tupelo, Mississippi

mom to (17 wocf) driving and being the most responsible 17 yo I have

ever seen, (13 wocf) playing baseball, football, band, and whatever

else he can get into, and (12 wcf) into all sports, enjoying lots of

friends, running full speed and doing all she can---diagnosed at 8 days of age

at

LeBonheur Childrens Medical Center in Memphis, Tennessee, now seeing Doctors

Lyrene and Makris (and lots of other wonderful folks, of course) at UAB

Children's Hospital in Birmingham, Alabama

[Guest guest]

is on Nutren 2.0 at night. I dont think it has to do with the kind

of milk as to whether you need enzymes or not. At first she did not have to

take enzymes as often with the milk. We started off taking 2 enzymes before

starting the feeding and that was all. Then he added 2 enzymes in the morning

when she woke up. Then even later (much later) he added 2 enzymes during the

night. This all was due to the fact that she seemed to be having more oily

stools and not gaining weight.

One more item of interest. I noted some of you talking about oily stools.

When was on Pancerase, Pancrecarb, and Creon 5 & 10, she had oily

stools of various degrees. Since changing yet again to the now Creon 20 she no

longer has oily stools of any kind.

When she was on Creon 10 she had a lot of trouble with her stomach. They had

to give her golytely several times.

I think some enzymes work for some people better than others. I don't know

but it sure seems like it at least in s case.

Sue Pettit of Tupelo, Mississippi

mom to (17 wocf) driving and being the most responsible 17 yo I have

ever seen, (13 wocf) playing baseball, football, band, and whatever

else he can get into, and (12 wcf) into all sports, enjoying lots of

friends, running full speed and doing all she can---diagnosed at 8 days of age

at

LeBonheur Childrens Medical Center in Memphis, Tennessee, now seeing Doctors

Lyrene and Makris (and lots of other wonderful folks, of course) at UAB

Children's Hospital in Birmingham, Alabama

[Guest guest]

The formula can certainly " stand " for 8 hours without a problem.

Believe me, we do NOT get up in the middle of the night to feed

. His pump runs from 8:30 pm until 5 am at 40 ml/hour. We fill

the bag with enough formula at 8:30 and we are done with it.

In the summer, if there is no airconditioning the room he is sleeping

in it gets a little more complicated, but you can then put a bag with

ice or an ice pack around the pump bag. slept in his playroom

last summer since it was air-conditioned and his bedroom was not.

Good luck,

Judith, Steve, (RSS) and (non RSS) 5 3/4 year old twins