Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 Jen, I think that she'd make better progress if you'd pull some things. I'd eliminate the raw apple. The pealing can be especially hard to digest, but I'd take it out even if you have been pealing the apple. Raw celery is also an advanced food. I'd remove that. I'd also remove the peanutbutter. Peanutbutter has been a problematic food for many...maybe even most...of the children. What about substituting almond butter...which you can find in stores...or pecan butter...which you'd have to make yourself. How is she eating the raw garlic? Is it juiced to be used as an antifungal? I might pull this one as well, but I'm not sure that it is as concerning as the raw apple, raw celery, and peanutbutter. You can certainly use diluted orange juice, grape gruice, or cranberry juice for extra carbs. Just make sure that they are the legal brands. I think that you should be giving K all pealed, seeded, and cooked foods at this point. Have you tried giving her any of the other cooked veggies listed in the early stages on the " beyoond the intro " chart? Does she not tolerate them, not like them, ect? If she doesn't want to eat them, have you tried sneaking them in somehow? Meleah juice for carbs.... My dd won't eat barely any baked goods, barely any nuts and not in cooked or crushed form. She also cannot tolerate dairy much yet. Is it ok to be using watered-down grape, oj or cranberry juice instead to give her the carbs? She is hypoglycemic. This is what we've been doing. Adding barely any new foods slowly. This is what her diet looks like: applesauce & also raw apples raw celery salmon patties(salmon, eggs & macadamia flour) eggs(hard boiled and fried(olive oil)) Santa Cruz PB steak chicken occassionally bacon walnuts occassionally raw garlic & onions occassionally avacado water & homemade cranberry juice & OJ mixed with water -sometimes honey in baked goods K eats only free-range, organic foods. She cannot tolerate: Berries, dairy, spinach, some nuts, & mold Supplements include: TMG, folinic acid, & mb12 melatonin magnesium/epsom salts baths sometimes ginko biloba coconut oil clo & fish oil(nordic naturals)orange chelated zinc She is also on Nystatin right now per DAN! He also recommended her to take calcium supp. but, she can't without the C coming back again. She is a very hyper child at times which seems to be getting better. I usually don't get a response to many of my posts on this board and need help. I beleiev this is why we are lost right now. Can someone please chime in here? Jenn & K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 Jenn, I think I've responded to several of your posts recently. I've tried to answer any questions as best I could. If there's ever a time that you don't get an answer, please re-post. There are only four of us who share the moderating tasks here, and life is hectic for all of us. Not getting an answer could also just mean that we really don't know the answer.... but always try reposting. We're only human. You didn't mention here how long your daughter has been on SCD, but that doesn't matter. I will go by the fact that you are seeing some digestive problems.... and to me, that means you need to take a step back. I think you have to take out the raw foods.... raw apple, raw celery, raw garlic and onions. These things need to be cooked.... unless the individual is doing well with BMs, making progress and symptoms (whatever symptoms you started the diet for) are reduced. I also personally think you need to pull the peanut butter. Unless a kid is doing really well... moving along and making positive progress, I don't recommend peanut butter anymore for ANYone. It's really a legume... and should be considered advanced. It may impede progress for many kids, so if you're not where you wanna be, pull the peanut butter. You've listed walnuts.... if that means WHOLE walnuts, I'd recommend you pull those, too. You said she gets honey sometimes in baked goods.... which flour are you using for " baked goods " ? Just the macadamia? If she eats applesauce, you should be able to begin to sneak just a very small amount of pureed squash into that.... or get some variety by mixing in a small amount of pear sauce with the applesauce.... and increase slowly. If she's eating the salmon patties, you should be able to sneak squash in with that, too. Or pureed green beans. No, I don't think relying on juice to get carbs in is adequate. Patti juice for carbs.... My dd won't eat barely any baked goods, barely any nuts and not in cooked or crushed form. She also cannot tolerate dairy much yet. Is it ok to be using watered-down grape, oj or cranberry juice instead to give her the carbs? She is hypoglycemic. This is what we've been doing. Adding barely any new foods slowly. This is what her diet looks like: applesauce & also raw apples raw celery salmon patties(salmon, eggs & macadamia flour) eggs(hard boiled and fried(olive oil)) Santa Cruz PB steak chicken occassionally bacon walnuts occassionally raw garlic & onions occassionally avacado water & homemade cranberry juice & OJ mixed with water -sometimes honey in baked goods K eats only free-range, organic foods. She cannot tolerate: Berries, dairy, spinach, some nuts, & mold Supplements include: TMG, folinic acid, & mb12 melatonin magnesium/epsom salts baths sometimes ginko biloba coconut oil clo & fish oil(nordic naturals)orange chelated zinc She is also on Nystatin right now per DAN! He also recommended her to take calcium supp. but, she can't without the C coming back again. She is a very hyper child at times which seems to be getting better. I usually don't get a response to many of my posts on this board and need help. I beleiev this is why we are lost right now. Can someone please chime in here? Jenn & K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 What kind of problems can happen when one eats raw celery? We destring it and she doesn't have or never did have D except during die-off periods. What should I give her to eat for lunches in school? We don't have many choices. We usually use PB to dip the celery into. She is allergic to almonds and cashews. I have tried to make pecanbutter but cannot get it the same smoothness as the creamy pb. Any bits or pieces found by her and she refuses to eat it. I have been battling this for 18 months with SCD and ended up here. We are stuck but, we're still seeing improvements. We started out with cooked, deseeded, & peeled apples, pears, avacado & carrots. She rarely ever eats the carrots anymore and it was a real fuss to get them in her. We are doing legal juices and most of the time her garlic is juiced too but, rarely she will swipe a piece before it goes into the juicer. I juice some veggies like cucumber, celery, carrots & lettuces. At least I'm getting the veggies in her somehow. I would have to treat any cooked foods besides for the meat like medicine, half of a bite at a time. She refuses to eat anything red as well except for the apples. Thanks for the help I think. Although, I don't think it's necessary to peel, deseed and cook everything for her anymore like we did for the first year. Jenn & K juice for carbs.... My dd won't eat barely any baked goods, barely any nuts and not in cooked or crushed form. She also cannot tolerate dairy much yet. Is it ok to be using watered-down grape, oj or cranberry juice instead to give her the carbs? She is hypoglycemic. This is what we've been doing. Adding barely any new foods slowly. This is what her diet looks like: applesauce & also raw apples raw celery salmon patties(salmon, eggs & macadamia flour) eggs(hard boiled and fried(olive oil)) Santa Cruz PB steak chicken occassionally bacon walnuts occassionally raw garlic & onions occassionally avacado water & homemade cranberry juice & OJ mixed with water -sometimes honey in baked goods K eats only free-range, organic foods. She cannot tolerate: Berries, dairy, spinach, some nuts, & mold Supplements include: TMG, folinic acid, & mb12 melatonin magnesium/epsom salts baths sometimes ginko biloba coconut oil clo & fish oil(nordic naturals)orange chelated zinc She is also on Nystatin right now per DAN! He also recommended her to take calcium supp. but, she can't without the C coming back again. She is a very hyper child at times which seems to be getting better. I usually don't get a response to many of my posts on this board and need help. I beleiev this is why we are lost right now. Can someone please chime in here? Jenn & K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 Patti, Yes. You are one of those helpers for us lately. Thank you. Kali has been on SCD for over 18 months now. K doesn't seem to have any Gi issues except C ONLY SOMETIMES. Mostly cleared all up. Used to be hives, eczema, C and wheezing. So, since her symptoms have been reduced to almost none, she is able to tolerate coconut, & some raw stuff. I am thinking of pulling the PB although, I need a good replacement. I am using coconut & macadamia flour. Are veggies considered a carb too? I can try to sneak some squash into her salmon patties. That's a good idea. Thanks for giving me some real things to think about. Jenn & K juice for carbs.... My dd won't eat barely any baked goods, barely any nuts and not in cooked or crushed form. She also cannot tolerate dairy much yet. Is it ok to be using watered-down grape, oj or cranberry juice instead to give her the carbs? She is hypoglycemic. This is what we've been doing. Adding barely any new foods slowly. This is what her diet looks like: applesauce & also raw apples raw celery salmon patties(salmon, eggs & macadamia flour) eggs(hard boiled and fried(olive oil)) Santa Cruz PB steak chicken occassionally bacon walnuts occassionally raw garlic & onions occassionally avacado water & homemade cranberry juice & OJ mixed with water -sometimes honey in baked goods K eats only free-range, organic foods. She cannot tolerate: Berries, dairy, spinach, some nuts, & mold Supplements include: TMG, folinic acid, & mb12 melatonin magnesium/epsom salts baths sometimes ginko biloba coconut oil clo & fish oil(nordic naturals)orange chelated zinc She is also on Nystatin right now per DAN! He also recommended her to take calcium supp. but, she can't without the C coming back again. She is a very hyper child at times which seems to be getting better. I usually don't get a response to many of my posts on this board and need help. I beleiev this is why we are lost right now. Can someone please chime in here? Jenn & K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 Jenn, Yes, veggies are great carb sources. Squash especially.... carrots, too. Macadamia butter would be a good replacement if you decide to pull the peanut butter out. I realise peanut butter is inexpensive and convenient.... but if someone is having problems (digestive or otherwise), I'd just like to see them pull it out for a couple of weeks... just to see if things improve. Patti Re: juice for carbs.... Patti, Yes. You are one of those helpers for us lately. Thank you. Kali has been on SCD for over 18 months now. K doesn't seem to have any Gi issues except C ONLY SOMETIMES. Mostly cleared all up. Used to be hives, eczema, C and wheezing. So, since her symptoms have been reduced to almost none, she is able to tolerate coconut, & some raw stuff. I am thinking of pulling the PB although, I need a good replacement. I am using coconut & macadamia flour. Are veggies considered a carb too? I can try to sneak some squash into her salmon patties. That's a good idea. Thanks for giving me some real things to think about. Jenn & K ----- Original Message ----- Recent Activity a.. 24New Members Visit Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 Jenn, <<What kind of problems can happen when one eats raw celery? We destring it and she doesn't have or never did have D except during die-off periods. >> If you think the celery is being well tolerated and digested, then that's fine.... it's just that when anyone describes problems that they can't seem to get beyond, we like to recommend taking a step back to see if the problem has to do with the gut not really being truly healed yet. Raw celery is very fibrous... even if you de-string it. This may not cause a really *obvious* symptom like diarrhea, but still could get in the way of healing. But, you know her best.... and if your instincts tell you this is not causing any trouble, that's fine. <<What should I give her to eat for lunches in school? We don't have many choices. We usually use PB to dip the celery into. She is allergic to almonds and cashews.>> I would look for macadamia butter.... or hazelnut. I know you said she does fine with macadamia flour. <<I have tried to make pecanbutter but cannot get it the same smoothness as the creamy pb. Any bits or pieces found by her and she refuses to eat it.>> I know what you mean.... pecan butter works well in certain recipes... but you can't get it as smooth as peanut butter. <<We are stuck but, we're still seeing improvements. We started out with cooked, deseeded, & peeled apples, pears, avacado & carrots. She rarely ever eats the carrots anymore and it was a real fuss to get them in her.>> Hmmm.... I suppose you'd need to hide them by pureeing and mixing into meatloaf or something. Or, do you think she might accept cooked baby carrots if they were chilled and she could dip them in the nut butter? <<We are doing legal juices and most of the time her garlic is juiced too>> That's a great way..... raw garlic is fine in juice. <<I juice some veggies like cucumber, celery, carrots & lettuces. At least I'm getting the veggies in her somehow.>> That's perfectly fine.... you can do the raw juices because that removes the fiber so there is not the same concern about needing to break down the cell walls in the fibrous parts of raw veggies by cooking, to make them more digestible. Trouble is, then you've removed the fiber that is really needed when someone tends toward constipation. These juices are fine, though.... great way to get the nutrients in.... and you are getting carbs in. Yes... veggies have carbs! <<Thanks for the help I think.>> You're welcome... I think. <<Although, I don't think it's necessary to peel, deseed and cook everything for her anymore like we did for the first year.>> That's up to you.... if you feel things are progressing along just fine, then keep doing what you're doing. It just sounded to me like you were not pleased.... you've said you're " stuck " . It sounds like she is still pretty self-limiting, too.... which always makes me suspicious that there may be some healing hurdles. If that is true, I always feel it's best to go back to cooked foods.... for a while.... but if that would seriously impede her wanting to eat at all, then you need to do what you feel is best. I was giving it my best shot! Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 You you have done a beautiful job trying to help here. I am willing to take suggestions and I'm learning here too. You're right. We've always had to back up to stage intro foods when she is having a regression or die-off. Macadamia butter seems like something she would try. She doesn't like her foods mixed. Although, just today she ate PB on her celery for lunch, instead of the pb and celery alone. That's really something for her. She won't eat soup. I have to separate it afterwards. Chicken & broth in separate containers. She keeps her foods on a 3 day rotation also. That is she likes the same foods for 3 days and then won't eat them again for a few more days at least. It's hard to find foods to actually feed her sometimes. Does she really need the carrots cooked when I'm juicing them? I know she needs some fiber. How much exactly do you think she needs daily? Maybe somehow I could work up to that amt. I am NOT pleased that se has VERY limited language. This is what I need the most help with now with her. We are living day to day thinking, what can we do today to get better?. It's easier than saying to wait for something for a long time for me. There are hurdles in healing. Ups and downs. I can't tell you how many times K has had die-off in the first year of the diet. She was sick for 3 weeks at 3 months into it. I was relieved when she finally started to feel better. We have been through ---. I really appreciate you taking the time to think about Kali today. I would be afraid to take a lot of foods away so, maybe one at a time. She really has a very limited diet already. Jenn & K Re: juice for carbs.... Jenn, <<What kind of problems can happen when one eats raw celery? We destring it and she doesn't have or never did have D except during die-off periods. >> If you think the celery is being well tolerated and digested, then that's fine.... it's just that when anyone describes problems that they can't seem to get beyond, we like to recommend taking a step back to see if the problem has to do with the gut not really being truly healed yet. Raw celery is very fibrous... even if you de-string it. This may not cause a really *obvious* symptom like diarrhea, but still could get in the way of healing. But, you know her best.... and if your instincts tell you this is not causing any trouble, that's fine. <<What should I give her to eat for lunches in school? We don't have many choices. We usually use PB to dip the celery into. She is allergic to almonds and cashews.>> I would look for macadamia butter.... or hazelnut. I know you said she does fine with macadamia flour. <<I have tried to make pecanbutter but cannot get it the same smoothness as the creamy pb. Any bits or pieces found by her and she refuses to eat it.>> I know what you mean.... pecan butter works well in certain recipes... but you can't get it as smooth as peanut butter. <<We are stuck but, we're still seeing improvements. We started out with cooked, deseeded, & peeled apples, pears, avacado & carrots. She rarely ever eats the carrots anymore and it was a real fuss to get them in her.>> Hmmm.... I suppose you'd need to hide them by pureeing and mixing into meatloaf or something. Or, do you think she might accept cooked baby carrots if they were chilled and she could dip them in the nut butter? <<We are doing legal juices and most of the time her garlic is juiced too>> That's a great way..... raw garlic is fine in juice. <<I juice some veggies like cucumber, celery, carrots & lettuces. At least I'm getting the veggies in her somehow.>> That's perfectly fine.... you can do the raw juices because that removes the fiber so there is not the same concern about needing to break down the cell walls in the fibrous parts of raw veggies by cooking, to make them more digestible. Trouble is, then you've removed the fiber that is really needed when someone tends toward constipation. These juices are fine, though.... great way to get the nutrients in.... and you are getting carbs in. Yes... veggies have carbs! <<Thanks for the help I think.>> You're welcome... I think. <<Although, I don't think it's necessary to peel, deseed and cook everything for her anymore like we did for the first year.>> That's up to you.... if you feel things are progressing along just fine, then keep doing what you're doing. It just sounded to me like you were not pleased.... you've said you're " stuck " . It sounds like she is still pretty self-limiting, too.... which always makes me suspicious that there may be some healing hurdles. If that is true, I always feel it's best to go back to cooked foods.... for a while.... but if that would seriously impede her wanting to eat at all, then you need to do what you feel is best. I was giving it my best shot! Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 Jenn, <<today she ate PB on her celery for lunch, instead of the pb and celery alone. That's really something for her.>> This is great! Very small steps forward..... are still steps forward! YAY! <<Does she really need the carrots cooked when I'm juicing them?>> No... you don't have to cook the carrots you're juicing. <<I know she needs some fiber. How much exactly do you think she needs daily? >> This is difficult to say. I think she needs enough to keep her from becoming constipated, for sure. So.... whatever that amount is. It's very hard if she won't eat cooked veggies, because they do offer fiber, but in a form that is easier on the gut than raw foods. I am wondering about something..... *maybe* it is really too soon to try..... but maybe not.... Lentils offer a tremendous source of fiber.... and if you use the pink (aka- red) lentils, they have been de-hulled, so the very fibrous hull is not there to worry about. They cook in about 30 minutes and then if you could think of a way to season them that she might accept.... you *could* possibly end up with a consistency that would work as a dip..... sort of like hummus. Maybe cook in some garlic? What do you think? If you thought there was a chance she would try these, I would only want you to let her have a very small amount to start..... just to see how it goes. <<I am NOT pleased that she has VERY limited language. This is what I need the most help with now with her.>> Well, I can certainly commiserate with you on that.... my ten-yr-old daughter has almost zero functional speech. We just got a voice-output device for her.... but the learning curve is HUGE for both my husband and I, her teachers and therapists, etc. I'm taking an all day training course on Thursday. Hopefully, it will give her the ability to communicate much more in the future. <<There are hurdles in healing. Ups and downs. >> This is so true.... we should have it emblazoned on the main page of Pecanbread! True for everyone.... in so many ways. <<I would be afraid to take a lot of foods away so, maybe one at a time.>> I can understand that.... don't worry. We can keep trying to chip away at this masterpiece. Patti Quote Link to comment Share on other sites More sharing options...
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