Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 I will keep in my thoughts and prayers. Has to be hard for you to watch him. Kids usually handle it better than we do. I hope an pray that the next dr. visit will bring much more and better results for him to fight or suppress this stuff. Remember we are here if you need us! Lots of love Glenda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 I will keep you all in my thoughts and prayers. I cann't imagaine a child with RP. Good luck in your next dr. visit and hope there is alot they can fir him. Love ya all Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 My oh my, I am so happy I'm only getting the hooks put on a week before! After reading all of your complaints about the hooks and blisters I went to count how many packets of wax I have - 10 so far. I'm going to ask my ortho for even more next Tuesday when I get the hooks on. Better safe than sorry! I guess I'll order some more zip n' squeeze bags and I had totally forgotten about the jaw ice pack. Good call ! Yeah, the last few weeks have gone by really quickly. Scary!! I couldn't sleep last night despite having spent the whole day moving half of my furniture into storage and shipping the rest to Italy. My mind just kept on racing and making lists of things I need to buy in preparation for the surgery. But I'm determined not to let the surgery consume me these last few days ahead of it. Want to enjoy as much as I can now while my face is not swollen and I can bite into food. Something I've realized that I've gotten into the habit of doing to soothe my mind is fantasize about how great life will be post-surgery with my new bite. Here's to hoping that this happens! , good luck with your dance recitals! I'm sure you'll be the star of the show! , even though I don't know you personally you're good humor on this message board has been wonderful, really puts a smile on my face every time I read your posts. Have a good day ladies. More to come from me later, I'm sure. Now that I have more time on my hands I seem to post a lot more frequently. Hope I'm not driving anyone nuts! Sara > > > > > > Well I went to the surgeon today at 10:30 in the morning, > > then > > > > went > > > > > > to the orthodontist at 2:00pm. Here is my experience... > > > > > > > > > > > > At the surgeons office, they had to take 3 sets of > > impressions, > > > > so > > > > > 3 > > > > > > top and 3 bottom. I got through the tops fine and then the > > > > trouble > > > > > > started! The nurse couldnt get my bottom ones to work at > > all. I > > > > > must > > > > > > of sat there for at least 15 (no lie) molds. My surgeon > > final > > > > said > > > > > > he would work with the last three she took. My jaw was > > soooooo > > > > sore > > > > > > from it taking like an hour and a half. But I think I am a > > pro > > > > now > > > > > > lol. I also got a pan x-ray(with the hooks in ears haha). > > > > > > Anyways...then I went in another room and talked to the > > surgeon > > > > for > > > > > > a bit with my parents. I of course missed half the > > conversation > > > > > > cause they were still trying to get my stupid molds right. > > One > > > > > thing > > > > > > that I was bummed about was he said I will still have a > > gummy > > > > smile > > > > > > after. I have one centemeter of gum showing right now and > he > > > can > > > > > > only remove about 5-6mm without harming the roots of my > > teeth. > > > He > > > > > > did say there is a plastic surgery procedure for my lip > that > > > > could > > > > > > help...anyone know what this is???? He did say that I will > > > still > > > > > > look much different and better and my profile will not be > > > sunken > > > > > > back so far. > > > > > > > > > > > > He also disappointed me in saying that i will have a splint > > for > > > 6 > > > > > > weeks. But he mentioned he can only estimate for that so > > > > hopefully > > > > > > it will be less time! And he said that I must stay on all > > > > liquids > > > > > > for 2 full weeks, then I can start to slurp pasta and > > noodles > > > and > > > > > > such. > > > > > > > > > > > > He even gave me some zip and squeeze bags lol. He was > > totally > > > > > > shocked that I knew what they were and already had some at > > my > > > > > > house He said I will probably get even more at the > > > hospital. > > > > He > > > > > > apparently somehow knows the lady that came up with the > > bags! > > > > > > > > > > > > He also said that the surgery would be 4-7 hours long. He > > said > > > I > > > > > > would have a cathater and nose tube while under but they > > would > > > be > > > > > > removed before I get out of recovery. And I should be in > the > > > > > > hospital for 28-30 hours only. So I should get released on > > my > > > > > > birthday!!! The appointment did make me much more nervous > > > about > > > > > > the surgery though. I have surgery exactly 3 weeks from > > today > > > (21 > > > > > > days!) > > > > > > > > > > > > Ohhh...then I also went to the orthodontist. Luckily he did > > not > > > > > take > > > > > > molds like I thought he would have to!! That made my day! > > He > > > did > > > > > > put my surgical hooks on. They are like knob-stick looking > > > things > > > > > > that stick up from my wires. I have a few on each side and > > then > > > > one > > > > > > in the direct center on top and bottom. These two catch on > > my > > > > lips > > > > > > like anything! He also wrapped wire around all my brackets > > > > instead > > > > > > of O-rings. And I have been released from him until after > > > > surgery! > > > > > > All I have left is the surgeon's appt/hospital physical on > > June > > > > 7th. > > > > > > > > > > > > Sry this was sooo long..just thought I would let all the > > other > > > > pre- > > > > > > op people know how everything went! > > > > > > ~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 Thanks Sara for those kind words..Yes I do try to find humor in everything that I do! Life is surely to short not to. It also helps to get through all the stress of preparing for this surgery. I keep telling my surgeon the only requirement that I have is to put me back together in one piece....I don't want no crooked face...He just laughs..He must think I am joking or something..(haha) He also laughs when I tell him that he is going to be my #1 nightmare after this surgery is completed...Right now my OD is my #1 nightmare..A title he has earned..(haha) Yes , good luck on your dance recital..You will be the star of the show!! Talk to you both soon!! > > > > > > > Well I went to the surgeon today at 10:30 in the morning, > > > then > > > > > went > > > > > > > to the orthodontist at 2:00pm. Here is my experience... > > > > > > > > > > > > > > At the surgeons office, they had to take 3 sets of > > > impressions, > > > > > so > > > > > > 3 > > > > > > > top and 3 bottom. I got through the tops fine and then > the > > > > > trouble > > > > > > > started! The nurse couldnt get my bottom ones to work at > > > all. I > > > > > > must > > > > > > > of sat there for at least 15 (no lie) molds. My surgeon > > > final > > > > > said > > > > > > > he would work with the last three she took. My jaw was > > > soooooo > > > > > sore > > > > > > > from it taking like an hour and a half. But I think I am > a > > > pro > > > > > now > > > > > > > lol. I also got a pan x-ray(with the hooks in ears > haha). > > > > > > > Anyways...then I went in another room and talked to the > > > surgeon > > > > > for > > > > > > > a bit with my parents. I of course missed half the > > > conversation > > > > > > > cause they were still trying to get my stupid molds > right. > > > One > > > > > > thing > > > > > > > that I was bummed about was he said I will still have a > > > gummy > > > > > smile > > > > > > > after. I have one centemeter of gum showing right now and > > he > > > > can > > > > > > > only remove about 5-6mm without harming the roots of my > > > teeth. > > > > He > > > > > > > did say there is a plastic surgery procedure for my lip > > that > > > > > could > > > > > > > help...anyone know what this is???? He did say that I > will > > > > still > > > > > > > look much different and better and my profile will not be > > > > sunken > > > > > > > back so far. > > > > > > > > > > > > > > He also disappointed me in saying that i will have a > splint > > > for > > > > 6 > > > > > > > weeks. But he mentioned he can only estimate for that so > > > > > hopefully > > > > > > > it will be less time! And he said that I must stay on > all > > > > > liquids > > > > > > > for 2 full weeks, then I can start to slurp pasta and > > > noodles > > > > and > > > > > > > such. > > > > > > > > > > > > > > He even gave me some zip and squeeze bags lol. He was > > > totally > > > > > > > shocked that I knew what they were and already had some > at > > > my > > > > > > > house He said I will probably get even more at the > > > > hospital. > > > > > He > > > > > > > apparently somehow knows the lady that came up with the > > > bags! > > > > > > > > > > > > > > He also said that the surgery would be 4-7 hours long. He > > > said > > > > I > > > > > > > would have a cathater and nose tube while under but they > > > would > > > > be > > > > > > > removed before I get out of recovery. And I should be in > > the > > > > > > > hospital for 28-30 hours only. So I should get released > on > > > my > > > > > > > birthday!!! The appointment did make me much more > nervous > > > > about > > > > > > > the surgery though. I have surgery exactly 3 weeks from > > > today > > > > (21 > > > > > > > days!) > > > > > > > > > > > > > > Ohhh...then I also went to the orthodontist. Luckily he > did > > > not > > > > > > take > > > > > > > molds like I thought he would have to!! That made my > day! > > > He > > > > did > > > > > > > put my surgical hooks on. They are like knob-stick > looking > > > > things > > > > > > > that stick up from my wires. I have a few on each side > and > > > then > > > > > one > > > > > > > in the direct center on top and bottom. These two catch > on > > > my > > > > > lips > > > > > > > like anything! He also wrapped wire around all my > brackets > > > > > instead > > > > > > > of O-rings. And I have been released from him until after > > > > > surgery! > > > > > > > All I have left is the surgeon's appt/hospital physical > on > > > June > > > > > 7th. > > > > > > > > > > > > > > Sry this was sooo long..just thought I would let all the > > > other > > > > > pre- > > > > > > > op people know how everything went! > > > > > > > ~~ Quote Link to comment Share on other sites More sharing options...
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