Guest guest Posted November 28, 2006 Report Share Posted November 28, 2006 Jenn, Thank you for sharing these kinds of stories! I am committed to this diet for my boys and do see improvements. But it is slow go. Sometimes I worry if I am feeding something that is legal on the diet that they are having issues with and wonder how to determine. I am wondering these days if is having issues with honey. But if I take it out, he will probably go on a hunger strike. Seeing someone who is over 18 months into the diet seeing results even if it seems to be slow go, gives me reason to hope and keep trudging alone. When you get a chance, I really would like to hear more about what got you guys on the diet in the first place and the improvements you have seen over the course of 18 months. How old is your little girl now? You can e-mail me offserv at danamichellepope@... Right now I need all the encouragement I can get. We are going tomorrow for our appointment with the developmental pediatrician and even though there have been numerous improvements over the course of almost six months, she won't see that. She will see their tremendous delays and continued autistic symptoms. But I know getting this diagnosis should qualify them for more help and that is what we want. Anyway, thank you for the updates you share. I wish I could offer more suggestions and advice when you feel like you guys are struggling. I am just so new to this. Thanks, Dana Garrett and Jim and Jen wrote: I just got a phone call from the teacher. I was worried but, she said it was a good thing. She said K had dropped her mug she had been working on for a present for Christmas and the handle broke off. It got cleaned up and the pieces were large enough to keep so it could be glued. K really must have been thinking about how to fix it because after lunch during free-time she tried to tape it back together using almost 1 whole roll of scotch tape found at the teacher's desk. She did a great job lining up the broken pieces. I told the teacher not to throw it away. I want it. I am so proud of K for thinking about how to fix it! I feel like crying over a broken cup and No spilled milk! This is the kind of stuff I see after her regressions, die-off etc. For all those mistakes of supp's, diet, ect., she sure is thinking very clearly! Scotch tape clear! Jenn & K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2006 Report Share Posted November 28, 2006 Newbie or not you are a source of my support if you are willing to listen and offer your experiences, hope and encouragement. I am also still learning here. If you want to cut back on the honey, do it gradually. He won't recognize it if you do it like you are trying to wean him back. It really will be ok if that's what you choose to do. I will email you offlist about the story of how we got to the diet. K is 6 yrs. old. We went to see a dev. ped. and it was terrible. Good luck tomarrow in getting whatever you seek. Remember, we are moms healing our kids here. K was on this diet for 6 months before she got GI scopes done and nutritional testing. Her nutritional level was within range, although, some were low in range. I was relieved and started to really believe how much SCD has actually healed K. We get SSI because K has a diagnosis but, it is according to income from 3 months previous. We don't do well this time of year because SSI is still using Sept. income when I was working more. So, we are lower income and lower SSI too right now. All things are possible though and we have angels watching over us:). I am extremly greatful for what I have and the improvements I see almost everyday with her. God Bless, Jenn & K Re: no more broken cup.... Jenn, Thank you for sharing these kinds of stories! I am committed to this diet for my boys and do see improvements. But it is slow go. Sometimes I worry if I am feeding something that is legal on the diet that they are having issues with and wonder how to determine. I am wondering these days if is having issues with honey. But if I take it out, he will probably go on a hunger strike. Seeing someone who is over 18 months into the diet seeing results even if it seems to be slow go, gives me reason to hope and keep trudging alone. When you get a chance, I really would like to hear more about what got you guys on the diet in the first place and the improvements you have seen over the course of 18 months. How old is your little girl now? You can e-mail me offserv at danamichellepope@... Right now I need all the encouragement I can get. We are going tomorrow for our appointment with the developmental pediatrician and even though there have been numerous improvements over the course of almost six months, she won't see that. She will see their tremendous delays and continued autistic symptoms. But I know getting this diagnosis should qualify them for more help and that is what we want. Anyway, thank you for the updates you share. I wish I could offer more suggestions and advice when you feel like you guys are struggling. I am just so new to this. Thanks, Dana Garrett and Jim and Jen wrote: I just got a phone call from the teacher. I was worried but, she said it was a good thing. She said K had dropped her mug she had been working on for a present for Christmas and the handle broke off. It got cleaned up and the pieces were large enough to keep so it could be glued. K really must have been thinking about how to fix it because after lunch during free-time she tried to tape it back together using almost 1 whole roll of scotch tape found at the teacher's desk. She did a great job lining up the broken pieces. I told the teacher not to throw it away. I want it. I am so proud of K for thinking about how to fix it! I feel like crying over a broken cup and No spilled milk! This is the kind of stuff I see after her regressions, die-off etc. For all those mistakes of supp's, diet, ect., she sure is thinking very clearly! Scotch tape clear! Jenn & K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2006 Report Share Posted November 28, 2006 I love these kinds of stories from parents! Keep them coming... Mimi > I just got a phone call from the teacher. I was worried but, she said it was > a good thing. She said K had dropped her mug she had been working on for a > present for Christmas and the handle broke off. It got cleaned up and the > pieces were large enough to keep so it could be glued. K really must have > been thinking about how to fix it because after lunch during free-time she > tried to tape it back together using almost 1 whole roll of scotch tape > found at the teacher's desk. She did a great job lining up the broken > pieces. I told the teacher not to throw it away. I want it. I am so proud of > K for thinking about how to fix it! I feel like crying over a broken cup and > No spilled milk! This is the kind of stuff I see after her regressions, > die-off etc. For all those mistakes of supp's, diet, ect., she sure is > thinking very clearly! Scotch tape clear! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 Mimi, I felt I had to share to encourage others. K was TALKING CLEAR WORDS in her sleep last night as well. It was definitely not a happy dream but, who cares right? I cannot be any more excited. Jenn & K Re: no more broken cup.... I love these kinds of stories from parents! Keep them coming... Mimi > I just got a phone call from the teacher. I was worried but, she said it was > a good thing. She said K had dropped her mug she had been working on for a > present for Christmas and the handle broke off. It got cleaned up and the > pieces were large enough to keep so it could be glued. K really must have > been thinking about how to fix it because after lunch during free-time she > tried to tape it back together using almost 1 whole roll of scotch tape > found at the teacher's desk. She did a great job lining up the broken > pieces. I told the teacher not to throw it away. I want it. I am so proud of > K for thinking about how to fix it! I feel like crying over a broken cup and > No spilled milk! This is the kind of stuff I see after her regressions, > die-off etc. For all those mistakes of supp's, diet, ect., she sure is > thinking very clearly! Scotch tape clear! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 Jenn, I am so thrilled to hear that your daughter is talking !! Mimi > Mimi, > I felt I had to share to encourage others. K was TALKING CLEAR WORDS in > her sleep last night as well. It was definitely not a happy dream but, who > cares right? I cannot be any more excited. Jenn & K > Re: no more broken cup.... > > > I love these kinds of stories from parents! Keep them coming... > Mimi > > I just got a phone call from the teacher. I was worried but, she said it > was > > a good thing. She said K had dropped her mug she had been working on for > a > > present for Christmas and the handle broke off. It got cleaned up and > the > > pieces were large enough to keep so it could be glued. K really must > have > > been thinking about how to fix it because after lunch during free-time > she > > tried to tape it back together using almost 1 whole roll of scotch tape > > found at the teacher's desk. She did a great job lining up the broken > > pieces. I told the teacher not to throw it away. I want it. I am so > proud of > > K for thinking about how to fix it! I feel like crying over a broken cup > and > > No spilled milk! This is the kind of stuff I see after her regressions, > > die-off etc. For all those mistakes of supp's, diet, ect., she sure is > > thinking very clearly! Scotch tape clear! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2006 Report Share Posted November 30, 2006 Yes. She says 1-2 words at a time. Or she will say, " no, what a minute " , " I'm sorry, " " I love you " , " Goodbye mom " , " good morning " . She knows some people's names too. She knows everything receptively. But, seems to have a hard time processing what you want her to do so, it takes her a minute to do a task that you ask of her but, she is compliant and understanding and will do it. She also seems to have processing info. problems when she tries to get the info. from her brain to her lips to speak it in language. She gets very frustrated at times. I can see though that many times she really does know what the answe is. This is our main problem. I love hearing her voice and will fight everyday to keep her going in this direction. Thanks all for your help and encouragement. So glad you all don't get all upset with me trying to figure these little things out. Jenn & K Re: no more broken cup.... > > > I love these kinds of stories from parents! Keep them coming... > Mimi > > I just got a phone call from the teacher. I was worried but, she said it > was > > a good thing. She said K had dropped her mug she had been working on for > a > > present for Christmas and the handle broke off. It got cleaned up and > the > > pieces were large enough to keep so it could be glued. K really must > have > > been thinking about how to fix it because after lunch during free-time > she > > tried to tape it back together using almost 1 whole roll of scotch tape > > found at the teacher's desk. She did a great job lining up the broken > > pieces. I told the teacher not to throw it away. I want it. I am so > proud of > > K for thinking about how to fix it! I feel like crying over a broken cup > and > > No spilled milk! This is the kind of stuff I see after her regressions, > > die-off etc. For all those mistakes of supp's, diet, ect., she sure is > > thinking very clearly! Scotch tape clear! > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.