Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 Hello, ... I read your e-mail and was somewhat puzzled about the one year waiting list....I am passing on the phone numbers that Heidi gave to me back in April....Heidi instructed me to tell them that I have RP and that I need to see the doctor for further evaluation & treatment. Heidi said that she got her husband, Don, an appointment within1 week!. I'll be leaving for Mayo Clinic next week....I called and referred myself back in April for a July appointment. I guess I called too early because I was informed that they schedule only up to 2 months in advance. Mayo rhematology appointment coordinators, , M-F, 8-5 central time. I was informed that Dr. Michet and Dr. Luthra are rheumys with specialty interests in RP Your doctor can refer you by calling the 1- Referring Physician Service as well Check out their web sites @ http://wwww.mayo.edu/int-med/rheum/appoint-info.htm Best wishes and Aloha! Message: 6 Date: Wed, 10 Jul 2002 20:37:59 -0500 Subject: Iowa City Y'all are so helpful to me...i hope i am able to return the kindness sometime! Hope, Prayers and sunny thoughts to you all! I found out on Monday that my trip to the Mayo Clinic is about a year in the future! Some waiting list! SOO, my PCP has made an apptmnt for me at Iowa City with Dr. Ashman (a Rheumy) on July 26th! (this year ; )) We'll see if he agrees with my ENT's diagnosis of RP. Anyone know of Iowa City or Dr. Ashman? I've seen 3 rheumy in the Des Moines/Ames area in the last 7 years...none of them i would care to go back to! Anyone out there in my area that knows someone they like? Love, Sunshine [This message contained attachments] ______________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 , thank you for all the info. I have it printed and ready to mail to my PCP along with the new brochure! I will also try calling Mayo Clinic on my own...we'll see what happens?!?! PCP should get my info by Tuesday and at lunch-time tomorrow I will call the 800# at Mayo AND take a couple of brochures to my ENT. Bob, sounds like you and I are in the same boat...my ENT is 100% sure i have RP, but the Rheumy says NO RP based on a CATscan that shows no scarring. My symptoms are hoarse voice, throat pain, middle ear-ache and more recently chest pain & very dry eyes. The ENT has examined me while having a flare, but the Rheumy examined me while i was o.k. Trying to get a second opinion has not been fun....but i have an appointment at Iowa City in two weeks! Thank you to all the POWERS-That-be for the great brochures! Glad to hear the girls are doing better, Love, Sunshine P.S. is my husband...e-mail is set up in his name. He is THE greatest...my BEST friend! We celebrate our 28th year together on Wednesday. > Hello, ... > > I read your e-mail and was somewhat puzzled about the one year waiting > list....I am passing on the phone numbers that Heidi gave to me back in > April....Heidi instructed me to tell them that I have RP and that I need > to see the doctor for further evaluation & treatment. Heidi said that > she got her husband, Don, an appointment within1 week!. > > I'll be leaving for Mayo Clinic next week....I called and referred myself > back in April for a July appointment. I guess I called too early because > I was informed that they schedule only up to 2 months in advance. > > Mayo rhematology appointment coordinators, , M-F, 8-5 central > time. I was informed that Dr. Michet and Dr. Luthra are rheumys with > specialty interests in RP > > Your doctor can refer you by calling the 1- Referring > Physician Service as well > > Check out their web sites @ > http://wwww.mayo.edu/int-med/rheum/appoint-info.htm > > Best wishes and Aloha! > > Message: 6 > Date: Wed, 10 Jul 2002 20:37:59 -0500 > From: " L Burke " <d_bburke@n...> > Subject: Iowa City > > Y'all are so helpful to me...i hope i am able to return the kindness > sometime! Hope, Prayers and sunny thoughts to you all! > I found out on Monday that my trip to the Mayo Clinic is about a year in > the future! Some waiting list! SOO, my PCP has made an apptmnt for me at > Iowa City with Dr. Ashman (a Rheumy) on July 26th! (this year ; > )) We'll see if he agrees with my ENT's diagnosis of RP. > Anyone know of Iowa City or Dr. Ashman? > I've seen 3 rheumy in the Des Moines/Ames area in the last 7 years...none > of them i would care to go back to! Anyone out there in my area that > knows someone they like? > Love, Sunshine > > > > > > [This message contained attachments] > > > > ______________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2002 Report Share Posted July 15, 2002 " A.C. Lau " wrote: > > Hello, ... > > I read your e-mail and was somewhat puzzled about the one year waiting > list....I am passing on the phone numbers that Heidi gave to me back in > April....Heidi instructed me to tell them that I have RP and that I need > to see the doctor for further evaluation & treatment. Heidi said that > she got her husband, Don, an appointment within1 week!. > > I'll be leaving for Mayo Clinic next week....I called and referred myself > back in April for a July appointment. I guess I called too early because > I was informed that they schedule only up to 2 months in advance. > > Mayo rhematology appointment coordinators, , M-F, 8-5 central > time. I was informed that Dr. Michet and Dr. Luthra are rheumys with > specialty interests in RP > > Your doctor can refer you by calling the 1- Referring > Physician Service as well > > Check out their web sites @ > http://wwww.mayo.edu/int-med/rheum/appoint-info.htm > > Best wishes and Aloha! > KAREN - when are you going to be at Mayo Clinic????? I have an appt there on Wed July 17th at 1pm with Dr Ytteberg!! Would be great if we were there at the same time = would like to meet you!! Let me know ASAP - thanks!! Barbara from SD > Message: 6 > Date: Wed, 10 Jul 2002 20:37:59 -0500 > > Subject: Iowa City > > Y'all are so helpful to me...i hope i am able to return the kindness > sometime! Hope, Prayers and sunny thoughts to you all! > I found out on Monday that my trip to the Mayo Clinic is about a year in > the future! Some waiting list! SOO, my PCP has made an apptmnt for me at > Iowa City with Dr. Ashman (a Rheumy) on July 26th! (this year ; > )) We'll see if he agrees with my ENT's diagnosis of RP. > Anyone know of Iowa City or Dr. Ashman? > I've seen 3 rheumy in the Des Moines/Ames area in the last 7 years...none > of them i would care to go back to! Anyone out there in my area that > knows someone they like? > Love, Sunshine > > [This message contained attachments] > > ______________________________________ > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
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