Guest guest Posted December 3, 2003 Report Share Posted December 3, 2003 Wow, that's pretty alarming. I hope it actually turns out to be nothing. Becky, mom of Ricky 8 with CF and Andy 5 no CF Burkholderia dolosa BOSTON (AP) -- Children's Hospital in Boston has begun isolating patients carrying a rare strain of bacteria, which has been found in the lungs of at least 20 patients with cystic fibrosis and possibly contributed to the death of one woman. " We're alarmed because we had only seen (Burkholderia dolosa) one time in the past 10 years, " said Dr. Craig Gerard, chief of the respiratory disease division at the hospital. Burkholderia dolosa are harmless to most people, and state health officials said other patients at Children's face no risk. However people with cystic fibrosis, a genetic disease that causes mucus to accumulate in their lungs, are highly susceptible to infection. Also, Burkholderia dolosa is resistant to many antibiotics, making it more difficult to kill. Until recently, labs could not distinguish Burkholderia dolosa from several related bacteria strains. In 2001, a woman with cystic fibrosis died a few days after she tested positive for Burkholderia dolosa, leading doctors to suspect it played a role her death, Gerard told The Boston Globe. However another patient has lived with the bacteria in his lungs since 1992 with no apparent ill effects, Gerard said. The hospital launched aggressive infection control efforts about six weeks ago when the Michigan lab that analyzes samples from cystic fibrosis patients concluded that five Children's patients had newly tested positive for the bacteria. That brought the number of patients who carry Burkholderia dolosa to at least 20. Hospital officials believe the bacteria is spread between cystic fibrosis patients, perhaps when an infected patient coughs on an uninfected one, so the decision was made to isolate patients who carry Burkholderia dolosa to prevent further contamination. Children's recently sent letters to 450 cystic fibrosis patients explaining that those who test positive for the bacteria will be isolated from other cystic fibrosis patients, and allowed to leave their rooms only when escorted by staff. The actions by Children's won praise from Dr. Alfred De Jr., chief of the state Bureau of Communicable Disease Control, who said, " They seem to be doing all the right things. " People with cystic fibrosis have a difficult battle with infections, largely because their lungs lack the normal ability to clear mucus, creating a perfect breeding ground for bacteria. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2004 Report Share Posted March 7, 2004 > Hi Everyone, > > FYI - I just got my second notice in as many months from Children's > Hospital in Boston and a greater than expected number of pts are > colonized with a newly-described Burkholderia dolosa. Thank you, now I know why they questioned us at MGH whether we had been to Children's recently when we went to pay. I accidently handed them my son' Children's card instead of the MGH card. They said Children's was having some trouble but I didn't question him further and wondered later what the problem was. jan Quote Link to comment Share on other sites More sharing options...
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