Ted introduction and looking for some help

November 27, 2003

Hi everyone this is Ted I am a single father of 1 very little special boy who is

5 with CF

I have had some recent challenges and would like to see what can be done to

resolve them.

Can I do it alone. Most likely not. What I need are the issues that impair

the development of the family with children with special needs. For single

parents the issues that impair employment and frustrate the single parent who is

trying there best to provide care and educate others for there child's care and

acquire subsidized day care without any money. Hence one does not qualify for

E.I. unless there is a caretaker so I can look for or get working. Even from

being in a position of homeless My son and I would have to go to the shelters.

Anyhow lets see if this message gets through and if so. The details of my

experience and the thoughts of dysfunction in the entire system and possible

solutions.

Ted

November 27, 2003

Hello Ted.Does your child go to a CF clinic? If so does your clinic have a

social worker? Have you applied for SSI which also helps with medicaid.Have you

tried Department of Social Services they have programs called TANF--EAF the

names are Temporary Assistance to Needy Families,and Emergency Aid to

Families.Some of these are loans made by DSS to help get you what you need and

they have

to be repaid .Some are for helping on specific items or services needed but

don't have to be repaid.Have you checked into churches for daycare paid by

DSS?Some of the pharmacutical companies also have compassion programs where they

help patients with no insurance get reduced or free medicines.If you want info

I'm sure the people on this list can help as we are from all over the country

--alos the whole world.Good Luck in your Quest.BeckyB--.Mama to 8--2w/cf--Nana

to 2

November 27, 2003

Ted, welcome aboard; with an accurate diagnosis, in the state (California)

that I live in, you would be eligible for SSI (Social Security Insurance)

for the

child and Medicaid for the child and then maybe you could get

state-supported

day care (which we may lose here) for your little guy and could work. Thank

you for telling us about your situation. Others need the information, too.

Also,

in some states a single parent can get AFDC and Food Stamps and actually

stay at home with him at least for a while; that is true here. Highest

Hopes!

Love,

n Rojas, wcf, mom of 3 adults (very), youngest wcf, too; as a widow I

have faced this with my youngest!

Ted introduction and looking for some help

> Hi everyone this is Ted I am a single father of 1 very little special boy

who is 5 with CF

> I have had some recent challenges and would like to see what can be done

to resolve them.

> Can I do it alone. Most likely not. What I need are the issues that

impair the development of the family with children with special needs. For

single parents the issues that impair employment and frustrate the single

parent who is trying there best to provide care and educate others for there

child's care and acquire subsidized day care without any money. Hence one

does not qualify for E.I. unless there is a caretaker so I can look for or

get working. Even from being in a position of homeless My son and I would

have to go to the shelters. Anyhow lets see if this message gets through

and if so. The details of my experience and the thoughts of dysfunction in

the entire system and possible solutions.

> Ted

>

November 28, 2003

TED- Check with the Dept. of Health in whatever State you live in they are a

program that will assist you. Also, many of the CF medications that are

costly offer scholarships. If you can pinpoint a need maybe we can help or at

least give advice.

Hang in there........

Rosemary in NY with 3 children (13, 11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

December 3, 2003

Ted:

Our Foundation can assist you with medical expenses and therapists to do

treatments so that you can work. Visit our website at www.r4stars.org and

print the grant application for assistance, fill it out and return it to us.

Our phone # is .

Thanks,

father of 12 y/o daughter w cf

The content of this email is for informational purposes only. It is not

intended to be a substitute for professional medical advice, diagnosis, or

treatment. Always seek the advice of your physician or other qualified

health provider with any questions you may have regarding a medical

condition. Never disregard professional medical advice or delay in seeking

it because of something you have read in this email! If you think you may

have a medical emergency, call your doctor or 911 immediately. The Reach for

the Stars Foundation to Benefit Children with Cystic Fibrosis, Inc. ( " Reach

for the Stars " ) does not recommend or endorse any specific tests,

physicians, products, procedures, opinions, or other information that may be

mentioned in this email. Reliance on any information provided by Reach for

the Stars, Reach for the Stars employees, or others mentioned in this email,

is solely at your own risk.