Guest guest Posted September 12, 2000 Report Share Posted September 12, 2000 I did it, I did it, I did it!!!!!!!!!!!!!!!!!!!!! I can't believe it is over. You guys were right, It was a snap. I'd have it again tomorrow if I needed to. I am already home, and have been shopping, driving, etc.. Staples are gone. Just a little bruising around one site, but NO PAIN NOW OR EVER! Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2000 Report Share Posted September 12, 2000 Hey , Bob here. Its now tuesday, I had it Friday and it was a breeze! Discharged Saturday, and cruising the town on Sunday. Went to clinic today, staples out, and fully released. I can't believe I did it! Thank for all your help and support. BOb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Just call and ask your doctor what he thinks. I have prednisone induced high blood pressure, but take medication to control that. I am one of the lucky ones who has never been on really high doses of prednisone, thereby minimizing the the damage that it can cause. I started on 20 mg., but along with that my doctor started me immediately on other prednisone sparing drugs. Good luck on getting this flare stopped. Are you seeing a rheumatologist? Take care, squeek --- Estes wrote: > , , anyone, > > Based on advice to get this flare stopped before it > does further damage I was thinking about calling my > DR > about Prednizone this morning. However, I checked my > BP and it was 165/105 with pulse rate 51. Also my > sugar was 295. Now I wonder if I should even ask > about > Prednizone. Ya'll got any thoughts? > > Bob Estes > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 I was diagnosed on the basis of my symptoms...the McAdam Standard...and my clinical response to prednisone. Have never had a biopsy and the doctor has never felt one was necessary. What he has observed has been enough. Take care! I believe my dx came about 6 years after the beginning of this disease. squeek --- Estes wrote: > > This is Bob and I have been quietly reading the > postings since my EENT told me that my biopsy was > NEGATIVE so I didn't have RP. > > I am confused about something. I read somewhere > that > there was no conclusive test for diagnoising RP. If > they can't say when it is positive how can they say > when it is negative? > > When the Doc said the biopsy was NEGATIVE I asked > him > what that meant? He said simply that it means you > don't have RP. > > Does this sound right to you guys? Thanks, Bob > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 My left ear is red, burning and throbbing. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 Bob, Gosh I'm so sorry about your problems. I would insist on something to start working on the RP. Have you tired a stronger Anti inflamatory? I know when I first flared I was on Vioxx until that stopped working. I sure hope you get some relief soon. We all know how painful a flare is. No one thinks an ear can cause so much problems. Please let us know what you find out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 , My GP has some problems with Pred for me. I am diabetic and I have a heart problem. Last year they put a stent in to open a 100% blockage in my left artery inside my heart. I am on meds that keep my rate at 50 and my BP 130/80. My BS has been about 300 since tis RP stuff began. I am seeing GP next Wed and Rhumy July 24. If I don't get adicted to COD before then I'll be OK. IBP works pretty good most of the time to make the pain tolerable Take care, Bob --- RCColloran@... wrote: > Bob, it sure sounds like you need some pred or > something to stop that flare. > Please don't wait too long. You should not be > suffering. > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 Marilyn, As I said I am scheduled to see the Docs soon so let's wait to see what they come up with. Thanks, Bob --- marilynkayk wrote: > Hi Bob, > > Welcome to the group. I have never had a biospy of > my ear and I > definitely have RP, based on all of the symptoms > that I had. Joint > pain and swelling, left ear red, swollen and > EXTREMELY painful, nose > red and sore, and vasculitis. The lobe of my ear > has never been > affected though. Only the stiff outer part. > They did do a biopsy of the vasculitis on my leg and > all they said > was that it was vasculitis. > My understanding is that there is no conclusive test > for RP. The > diagnosis is based on the exam at the time of a > flare up. There are > other diseases though where the ear can be affected, > but I don't > remember what they are. Can look it up if you want > me to. > Marilyn > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2002 Report Share Posted July 15, 2002 In a message dated 07/15/2002 6:59:38 AM Central Daylight Time, Rpolychondritis writes: , It is not the upper, outer part of the ear. Although the rim of the ear is very tender, the center of the pain is just above the lobe. The lobe is not envolved at all but just above it there is severe swelling and pain. The back of the ear is very tender from just above the lobe to the base of the cartiledge. Sometimes it feels like my glasses are putting pressure there even when my glasses are not on. Bob, Has your Rheumy ever seen RP? I say get a second opinion from another Rheumy. And keep in mind, your ear doesn't have to be involved for a diagnosis of RP. Quote Link to comment Share on other sites More sharing options...
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