Ok I know the dangers of self-diagnosis but....

[Guest guest]

I just read something that has me VERY concerned. For background,

I've been having episodes of hypoglycemia EVERY DAY now for the past

month or so. I've mentioned this to every doctor I've seen and the

only one who listened at all was my PCP...who did a NON (I repeat

NON!) fasting test and didn't find anything out of the ordinary with

my blood levels of whatever it is they look for in hypoglycemia. So,

I thought I was out of the woods even though I get this as I said

EVERYDAY!! I told the DINK at Lahey about it and he didn't seem

concerned so I just thought it was something else that accompanied

this disease and chalked it up to yet another symptom. However, I

have just read some very disturbing news and of course now I'm

bringing it here to the experts for advice. Apparently, an

insulinoma (usually benign tumor in 99% of cases thankfully) can be

INSIDE of the pancreas, and thus, not apparent on visual testing

which is the only kind of testing I've had thus far. The only was to

definitively dx it is to do a 72 hour FASTING test and see what the

results are. I'm now very scared that this is what I've got and I've

got a call into the first gastro doc I saw here locally who was also

the one that thought an ERCP w/manometry is indicated.

Anyway....they just called me back and the nurse is going to talk to

dr and call me back....thoughts anyone?? Any experience here with

insulinomas and/or hypoglycemic episodes on a daily basis? Sorry to

sound so paranoid, but what I just read was quite disturbing in

light of the fact that these tumors are so tiny they are not usually

seen on visual type testing which is all I've had to date.

thanks as always...