Re: Cipro/Diarreah? - Katy

[Guest guest]

Katy,

Kathy just spoke with our CF doctor and he wants to discontinue the

Cipro and just proceed w/Tobi. He really thinks that the Tobi is

what kills the Pa and said they are beginning to leave off the Cipro

anyway. Because of Abby's good weight gains he doesn't think it is

pancreatic and since none of our others have a virus he's doubtful

it's that. So that's the route we're taking.

Joe

> Joe,

>

> Piper was started on Tobi and Cipro on Monday, and we are having

the same problem! Her diarrhea is so loose it is like water, now her

bottom is so raw that it is bleeding in places. I have a call in to

the Pulmonologist on call, but haven't heard from them yet. On

Monday night I took her to the ER where my husband is a nurse,

because she was throwing up and had diarrhea and fever, I was afraid

that she would dehydrate, so they started an IV and ran some fluid in

her, they really thought that it was just a stomach virus since my

son had the same thing. Well, my son is better, and it seems that

Piper's diarrhea is worse. Hopefully the Pulm. on call will call us

back soon, so I can let you know what he says. I hope that Abby is

better soon!!!

>

>

> Katy

> Mom to Austin 4 no CF & Piper 16 months w/CF

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[Guest guest]

Will do. Abby is not raw but when ours get that way Kathy lets them

sit in a warm tub for awhile, pats them dry then applies Desitin. I

hope Piper gets better and we'll be in touch. Our girls are about

the same age and seem to be going through some similiar things.

Abby's b-day is Aug. 7th.

Joe

> > Joe,

> >

> > Piper was started on Tobi and Cipro on Monday, and we are having

> the same problem! Her diarrhea is so loose it is like water, now

her

> bottom is so raw that it is bleeding in places. I have a call in to

> the Pulmonologist on call, but haven't heard from them yet. On

> Monday night I took her to the ER where my husband is a nurse,

> because she was throwing up and had diarrhea and fever, I was

afraid

> that she would dehydrate, so they started an IV and ran some fluid

in

> her, they really thought that it was just a stomach virus since my

> son had the same thing. Well, my son is better, and it seems that

> Piper's diarrhea is worse. Hopefully the Pulm. on call will call us

> back soon, so I can let you know what he says. I hope that Abby is

> better soon!!!

> >

> >

> > Katy

> > Mom to Austin 4 no CF & Piper 16 months w/CF

> >

> >

> >

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