Guest guest Posted September 12, 2006 Report Share Posted September 12, 2006 I called yesterday to see if I could exchange my regular Brainchild II supps for the ultra sensitive & my son's DAN! nutritionist (where I got them from) told me they are fine for SCD & even the probiotics we use (with bifidum) & to " ignore all that " . This has me concerned, because my ASD son is 12ys old, severe, & lots of things that typically help others have not helped but made him worse. I feel like if I'm going to do this for him I've got to do it all out, for all of us. I'm not posting this to encourage anyone to " ignore " all the illegal supps, but actually because I'm concerned about this advice & need some input. She also wanted to speak with me before I start so I have a phone consult scheduled for next week (she was adament she needed to speak with me first). Is this typical DAN! advice when starting SCD? What have others experiences been with their practitioners? Also, if anyone feels particular supplements (illegal ones) held back your child's progress on SCD I'd like to hear about it too. I need more info before my consult with her so I can really discuss this. May post offlist. Again, I'm not trying to divert anyone, I just need help, experiences, & information here. Thanks very much, Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2006 Report Share Posted September 12, 2006 , I'd be concerned, too. How can she say that you should follow scd when she says that some of the protocall is a crock. If you don't follow scd protocall, then you're not really doing scd. I don't have any specifics on questions that I think should be asked of her at your phone consultation. I'd just be concerned. I'll give it some thought, and let you know if I come up with anything. Meleah DAN! nutritionist & supps >I called yesterday to see if I could exchange my regular Brainchild > II supps for the ultra sensitive & my son's DAN! nutritionist (where > I got them from) told me they are fine for SCD & even the probiotics > we use (with bifidum) & to " ignore all that " . This has me concerned, > because my ASD son is 12ys old, severe, & lots of things that > typically help others have not helped but made him worse. I feel > like if I'm going to do this for him I've got to do it all out, for > all of us. > > I'm not posting this to encourage anyone to " ignore " all the illegal > supps, but actually because I'm concerned about this advice & need > some input. She also wanted to speak with me before I start so I > have a phone consult scheduled for next week (she was adament she > needed to speak with me first). > > Is this typical DAN! advice when starting SCD? What have others > experiences been with their practitioners? > > Also, if anyone feels particular supplements (illegal ones) held > back your child's progress on SCD I'd like to hear about it too. I > need more info before my consult with her so I can really discuss > this. May post offlist. > > Again, I'm not trying to divert anyone, I just need help, > experiences, & information here. > > Thanks very much, > Michele > > > > > > For information on the Specific Carbohydrate Diet, please read the book > _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following > websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2006 Report Share Posted September 12, 2006 Michele, SCD is really only effective when done with 100% fanatisism. That includes taking legal supplements when you can. Some of us have meds with illegals in them but that's the nature of the beast and we take them anyway. Did your DAN! recommend SCD? I find it disturbing that he or she would say " ignore all that " and still promote SCD. When possible, you want to comply with SCD with legal supplements. Charlene Subject: DAN! nutritionist & supps I called yesterday to see if I could exchange my regular Brainchild II supps for the ultra sensitive & my son's DAN! nutritionist (where I got them from) told me they are fine for SCD & even the probiotics we use (with bifidum) & to " ignore all that " . This has me concerned, because my ASD son is 12ys old, severe, & lots of things that typically help others have not helped but made him worse. I feel like if I'm going to do this for him I've got to do it all out, for all of us. I'm not posting this to encourage anyone to " ignore " all the illegal supps, but actually because I'm concerned about this advice & need some input. She also wanted to speak with me before I start so I have a phone consult scheduled for next week (she was adament she needed to speak with me first). Is this typical DAN! advice when starting SCD? What have others experiences been with their practitioners? Also, if anyone feels particular supplements (illegal ones) held back your child's progress on SCD I'd like to hear about it too. I need more info before my consult with her so I can really discuss this. May post offlist. Again, I'm not trying to divert anyone, I just need help, experiences, & information here. Thanks very much, Michele ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.405 / Virus Database: 268.12.3/445 - Release Date: 9/11/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2006 Report Share Posted September 12, 2006 Actually, no, I have not spoken to her about SCD at all - yet. I had tried it half heartedly a few years ago but of course that didn't work out well & I had no support at the time. My son has been GFCF for almost 5yrs & me & baby for several months. My holistic practitioner regards SCD highly & has seen many of her autistic patients benefit from it so she recommended it really for me, but knowing I have an ASD son so I could do it for everyone. I only called the DAN! nutritionist because I wanted to exchange the Brainchild & explained why to her office worker, who called her, & then called me back to relay that information & to say she wanted to speak with me first. He did also say they have other kids on SCD in her practice but since I've never spoken to her about it personally I don't know what her attitude is or what she'll recommend, except that she said to " ignore all that " on the supps. She's been somewhat helpful but not to the degree that I'm not questioning of her; I question what she's saying greatly & am wondering if I even want to pay for the consult (not free!). It could be helpful, or not. Thanks, Michele > > Michele, > > SCD is really only effective when done with 100% fanatisism. That includes taking legal supplements when you can. Some of us have meds with illegals in them but that's the nature of the beast and we take them anyway. > > Did your DAN! recommend SCD? I find it disturbing that he or she would say " ignore all that " and still promote SCD. When possible, you want to comply with SCD with legal supplements. > > Charlene > > > > Subject: DAN! nutritionist & supps > > > I called yesterday to see if I could exchange my regular Brainchild > II supps for the ultra sensitive & my son's DAN! nutritionist (where > I got them from) told me they are fine for SCD & even the probiotics > we use (with bifidum) & to " ignore all that " . This has me concerned, > because my ASD son is 12ys old, severe, & lots of things that > typically help others have not helped but made him worse. I feel > like if I'm going to do this for him I've got to do it all out, for > all of us. > > I'm not posting this to encourage anyone to " ignore " all the illegal > supps, but actually because I'm concerned about this advice & need > some input. She also wanted to speak with me before I start so I > have a phone consult scheduled for next week (she was adament she > needed to speak with me first). > > Is this typical DAN! advice when starting SCD? What have others > experiences been with their practitioners? > > Also, if anyone feels particular supplements (illegal ones) held > back your child's progress on SCD I'd like to hear about it too. I > need more info before my consult with her so I can really discuss > this. May post offlist. > > Again, I'm not trying to divert anyone, I just need help, > experiences, & information here. > > Thanks very much, > Michele > > > > > > > ------------------------------------------------------------------- ----------- > > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.1.405 / Virus Database: 268.12.3/445 - Release Date: 9/11/2006 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2006 Report Share Posted September 12, 2006 I am new at this too, and I am also with a Dan Dr. I called up to order new supplements and to let them know I was switching gears with my son, as I felt the GFCF wasn't doing enough for him. They did not request a consult,nor did I feel like I personally needed one as they are big advocates of gfcf at our facility, and the best advice I have gotten has been from pecanbread. I don't know what the reason for a consult would be, other than to try and prepare you for whats to come. I thought I had a handle on it and what to expect....but I felt like I was going crazy, as we had seen the worst die off he has ever had(not trying to scare you, just thought this might be a reason they wanted a consult). my Dan didn't even offer it, and I found myself putting out sos on pecanbread about every day for the first week. I also made Some minor mistakes in the beginning, which caused me to have to start over.They did not tell me to check my supplements,my good friends here did,thus the mistake. Maybe it wouldn't be a bad idea, if the consults are not astronomical. If they are expensive, Stick with these guys, so far NOONE has steered me wrong! I hope this helps, if I can help in any way please email me personally. I have heard of peoplewho start around the same time sometimes keeping a journal and exchanging notes together,to see what kinds of things happen at what times.- mom to Dylan ASD- " diagnosed " 2003. > >Reply-To: pecanbread >To: pecanbread >Subject: Re: DAN! nutritionist & supps >Date: Tue, 12 Sep 2006 19:32:44 -0000 > >Actually, no, I have not spoken to her about SCD at all - yet. I had >tried it half heartedly a few years ago but of course that didn't >work out well & I had no support at the time. My son has been GFCF >for almost 5yrs & me & baby for several months. My holistic >practitioner regards SCD highly & has seen many of her autistic >patients benefit from it so she recommended it really for me, but >knowing I have an ASD son so I could do it for everyone. I only >called the DAN! nutritionist because I wanted to exchange the >Brainchild & explained why to her office worker, who called her, & >then called me back to relay that information & to say she wanted to >speak with me first. He did also say they have other kids on SCD in >her practice but since I've never spoken to her about it personally >I don't know what her attitude is or what she'll recommend, except >that she said to " ignore all that " on the supps. > >She's been somewhat helpful but not to the degree that I'm not >questioning of her; I question what she's saying greatly & am >wondering if I even want to pay for the consult (not free!). It >could be helpful, or not. > >Thanks, Michele > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2006 Report Share Posted September 12, 2006 Anyone who says you should do SCD but " ignore all that " and use illegal supplements and probiotics with bifidus... simply does not understand the diet. This, unfortunately, seems to happen frequently with the DAN (and other) practitioners. They seem to think they can pick and choose what they want to prescribe from SCD.... but allow all kinds of other things along with it.... which demonstrates a lack of true understanding of SCD and how it works. Sadly, a fair number of families will end up being disappointed by the results they get. Patti DAN! nutritionist & supps I called yesterday to see if I could exchange my regular Brainchild II supps for the ultra sensitive & my son's DAN! nutritionist (where I got them from) told me they are fine for SCD & even the probiotics we use (with bifidum) & to " ignore all that " . This has me concerned, because my ASD son is 12ys old, severe, & lots of things that typically help others have not helped but made him worse. I feel like if I'm going to do this for him I've got to do it all out, for all of us. I'm not posting this to encourage anyone to " ignore " all the illegal supps, but actually because I'm concerned about this advice & need some input. She also wanted to speak with me before I start so I have a phone consult scheduled for next week (she was adament she needed to speak with me first). Is this typical DAN! advice when starting SCD? What have others experiences been with their practitioners? Also, if anyone feels particular supplements (illegal ones) held back your child's progress on SCD I'd like to hear about it too. I need more info before my consult with her so I can really discuss this. May post offlist. Again, I'm not trying to divert anyone, I just need help, experiences, & information here. Thanks very much, Michele Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.