Some Questions

[Guest guest]

I have some questions for you all......have you ever woken up in the

middle of the night with the pain (I so far have not -- why is

that?) and do you feel progressively worse throughout the course of

the day? I sure seem to, in fact, I wasn't even able to make it to

a 4:30 GI doc app't. yesterday because I was too sick to drive.

They've scheduled me in for 4:45 today and I sure as he** need to

get to that one so I can find out what more we can do or at least

what the doc's got up his sleeve in the way of diagnostic

procedures. If I don't get into work this week (was out all last

week) I will have NO paycheck next Friday and I'm totally stressing

about that.. I'm curious how it progresses on a daily basis for

others. Please let me ok?? Just wondering if others have

a " pattern " of sorts.

thanks in advance

[Guest guest]

Hi , I think we all get a little more tired as the day

progresses but yes I do feel worse as the day goes by. I have taken

rests miday and that helps, but since I am getting better I am

trying not to so that I can sleep a decent nights rest. I used to

often wake with pain, several times a night. Turn a way and jabbbb

it got me. I am feeling better and thanking the Heavenly Father for

that and slept a complete night last night. 1030pm until 9am

without waking, did take a little bendryl so I guess thats

cheating. But that is the first time I slept straight through in I

dont know how long.

I will probably always be a bit weaker, I will probably never have

my same zest, but thats ok, I was way too zesty anyway. Calming

down would do me some good. The docs have me on Ativan so I stay

clam during my recovery, I get very hyper. Dont feel bad if you

have to slow things down a bit in the afternoons, thats normal. My

panc is always a crankier by that time of day, mid afternoon, made

it hard to eat dinner some times too. My panc does not like coffee

either, thats a tough one to loose. I'm sipping a watered down brew

now. Oh well, we must make our consolations.

Warmly

> I have some questions for you all......have you ever woken up in

the

> middle of the night with the pain (I so far have not -- why is

> that?) and do you feel progressively worse throughout the course

of

> the day? I sure seem to, in fact, I wasn't even able to make it

to

> a 4:30 GI doc app't. yesterday because I was too sick to drive.

> They've scheduled me in for 4:45 today and I sure as he** need to

> get to that one so I can find out what more we can do or at least

> what the doc's got up his sleeve in the way of diagnostic

> procedures. If I don't get into work this week (was out all last

> week) I will have NO paycheck next Friday and I'm totally

stressing

> about that.. I'm curious how it progresses on a daily basis for

> others. Please let me ok?? Just wondering if others have

> a " pattern " of sorts.

>

> thanks in advance

>

[Guest guest]

Thanks and best wishes to you for a speedy recovery!! I

was just curious as to whether or not others experienced this sort

of thing. The pattern with me is I have never (yet) awakened in the

night with the pain but I'm on some pretty heavy doses of sleeping

meds. I've gone to sleep at night with the pain, but have never

woken up with it. In the morning I usually wake up with mild pain

and nausea, but it gets progressively worse as the day goes on

whether I eat or not. Yesterday didn't eat all day and still had

the same pattern. I've got to get into my GI doc today at 4:45 and

I'm just dreading it because by that time of day yesterday I was in

agony and had to call to cancel. Pretty sad when you're too sick to

go see a doctor!! But, I want to find out today where we are going

to proceed from here......so fingers crossed that I'll be well

enough to actually get to the appointment. They said they'd call if

they get a cancellation so I'm really hoping they do, as it would be

much easier on me than that rocky road that usually starts between

1:00 and 2:00 every day.....

thanks again and hugs

> > I have some questions for you all......have you ever woken up in

> the

> > middle of the night with the pain (I so far have not -- why is

> > that?) and do you feel progressively worse throughout the course

> of

> > the day? I sure seem to, in fact, I wasn't even able to make it

> to

> > a 4:30 GI doc app't. yesterday because I was too sick to drive.

> > They've scheduled me in for 4:45 today and I sure as he** need

to

> > get to that one so I can find out what more we can do or at

least

> > what the doc's got up his sleeve in the way of diagnostic

> > procedures. If I don't get into work this week (was out all

last

> > week) I will have NO paycheck next Friday and I'm totally

> stressing

> > about that.. I'm curious how it progresses on a daily basis for

> > others. Please let me ok?? Just wondering if others have

> > a " pattern " of sorts.

> >

> > thanks in advance

> >

[Guest guest]

,

You said so far you had not woken in pain in the middle of the night, or has

this just happened? I didn't quite understand.

To answer your question, yes, I have woken in the middle of the night and

then had the pain continue and worsen throughout the course of the day.

This is a pattern that used to happen to me all the time before my pancreas

burned out. I, and others, call that a flareup, where the pain continues for

several days, yet eventually subsides before it goes into a full acute

pancreatitis attack. That's the chronic part of the disease. When this

happened, I would stop eating and only take liquid nourishment, trying to

" rest " the inflamed pancreas, until the pains subsided. I would drink tea,

clear

juices and plenty of water - the water is very important to keep the pancreas

well hydrated. Most often during an episode we find that we become very

dehydrated, if we don't consume lots and lots of water.

Sometimes this would only last a day or two, other times it would go on for as

long as a week. In my case, after a year, the pain eventually became a daily

occurance, requiring me to be on 24 hour pain medication. My pattern of

progression to pancreas burnout was much faster than most people's, so

please don't expect that the same would happen to you that quickly. I am only

trying to explain how the pattern progresses for some people, and what to do

when the pains linger.

With love, hope and prayers,

Heidi

Heidi H. Griffeth

www.pancassociation.org/anthology.htm#Heidi

South Carolina

SC & SE Regional Rep.

PAI

Note: All information or advice is personal opinion only, and should not be

substituted for professional medical consultation.

[Guest guest]

,

I have occasionally woken up in the middle of the night with major pain,

but not often. Plus, I usually wake up every 4 hours anyways and I don't

know why. I can even take sleeping pills and I will STILL wake up every

4 hours. This has been going on for a couple of years now, so I'm sort

of used to it.

And yes, I do seem to get worse in the evenings. For about a year while

I was still working, I wasn't even able to eat dinner things had gotten

so bad, so I was drinking one or two ensure in the middle of the night

to compensate for the missed meal (though I did and still do have bad

days where I am hardly able to eat anything all and usually stick to

either fluids or baby food (the fruit and cereal ones only - the other

stuff is so bad tasting no wonder babies spit the stuff out alot, lol).

Luckily, things have eased up some now that I'm not working anymore (no

more stress to make it into work and stay awake and stuggle through the

day on minimal to no pain meds). No matter what, bad day or good day, my

pain seems to be worst at night and real early mornings. In fact, when

I've had most of my acute attacks that landed me in the hospital, it was

usually late nigth (around 11pm or so,) or real early morning (5 to 6

am) when they started and I'd end up in the emergency rooms because the

doctor's office wasn't opened.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.

[Guest guest]

Thanks Heidi...I was just trying to see if others had a similar

pattern. I have not (yet) woken in the night with pain but then

again, like I said, I take some pretty heavy duty sleep meds because

of my insomnia problems so who knows? The pattern mine is taking

lately is that the pain is pretty much there all the time but on

different levels on " the scale. " This week so far, I've had 2 days

where the pain has suddenly intensified tremendously along with

nausea. This happened yesterday and is why I didn't go to my dr

appt. They can squeeze me in at 2:45 today though, so I'm hoping

that it doesn't get too severe before then like it did yesterday. I

haven't eaten much today and so far pain today is probably a 2

compared to yesterday's 10 although I do have some moments of nausea

still today.

So, if I understand correctly.....sometimes the pain would subside

totally right before going into a full blown acute attack?? Once

again, the doc hasn't made any kind of firm diagnosis yet either.

My enzyme levels haven't gone up since the first time this happened

right before the GB surgery. But he must be suspecting something

otherwise I don't think he would have put me on the enzymes and the

anti-spasmodic. Just to get a diagnosis at this point would relieve

some of my anxiety anyway at this rate.

Does everyone differ in where they actually FEEL the pain? I'm

curious about that too....mine is right behind and in between my rib

cage. Some of these doctors at first were trying to tell me I had

costochondritis but were puzzled because with that your actual rib

cage is extremely tender even to touch and mine wasn't at all.

Anyway, thanks for the input

> ,

>

> You said so far you had not woken in pain in the middle of the

night, or has

> this just happened? I didn't quite understand.

>

> To answer your question, yes, I have woken in the middle of the

night and

> then had the pain continue and worsen throughout the course of the

day.

> This is a pattern that used to happen to me all the time before my

pancreas

> burned out. I, and others, call that a flareup, where the pain

continues for

> several days, yet eventually subsides before it goes into a full

acute

> pancreatitis attack. That's the chronic part of the disease.

When this

> happened, I would stop eating and only take liquid nourishment,

trying to

> " rest " the inflamed pancreas, until the pains subsided. I would

drink tea, clear

> juices and plenty of water - the water is very important to keep

the pancreas

> well hydrated. Most often during an episode we find that we

become very

> dehydrated, if we don't consume lots and lots of water.

>

> Sometimes this would only last a day or two, other times it would

go on for as

> long as a week. In my case, after a year, the pain eventually

became a daily

> occurance, requiring me to be on 24 hour pain medication. My

pattern of

> progression to pancreas burnout was much faster than most

people's, so

> please don't expect that the same would happen to you that

quickly. I am only

> trying to explain how the pattern progresses for some people, and

what to do

> when the pains linger.

>

> With love, hope and prayers,

> Heidi

>

> Heidi H. Griffeth

> www.pancassociation.org/anthology.htm#Heidi

> South Carolina

> SC & SE Regional Rep.

> PAI

>

> Note: All information or advice is personal opinion only, and

should not be

> substituted for professional medical consultation.

[Guest guest]

Thanks Kimber...I just sent a loooong " diatribe " in response to

Heidi's message. Well, I'm off to the GI doc's in about 15 mins or

so but the panc is acting up again a bit.

Another question for you all: does this make you feel completely

exhausted and weak at all? I imagine it does but it definitely does

to me. I've been taking naps during the day of late and I'm the

type that usually can't sleep at all.

thanks Kimber!!

> ,

> I have occasionally woken up in the middle of the night with major

pain,

> but not often. Plus, I usually wake up every 4 hours anyways and I

don't

> know why. I can even take sleeping pills and I will STILL wake up

every

> 4 hours. This has been going on for a couple of years now, so I'm

sort

> of used to it.

>

> And yes, I do seem to get worse in the evenings. For about a year

while

> I was still working, I wasn't even able to eat dinner things had

gotten

> so bad, so I was drinking one or two ensure in the middle of the

night

> to compensate for the missed meal (though I did and still do have

bad

> days where I am hardly able to eat anything all and usually stick

to

> either fluids or baby food (the fruit and cereal ones only - the

other

> stuff is so bad tasting no wonder babies spit the stuff out alot,

lol).

> Luckily, things have eased up some now that I'm not working

anymore (no

> more stress to make it into work and stay awake and stuggle

through the

> day on minimal to no pain meds). No matter what, bad day or good

day, my

> pain seems to be worst at night and real early mornings. In fact,

when

> I've had most of my acute attacks that landed me in the hospital,

it was

> usually late nigth (around 11pm or so,) or real early morning (5

to 6

> am) when they started and I'd end up in the emergency rooms

because the

> doctor's office wasn't opened.

>

> Kimber

>

> --

> Kimber

> Vallejo, CA

> hominid2@c...

> Note: All advice given is personal opinion, not equal to that of a

licensed physician or health care professional.

[Guest guest]

Hi

I have had pain in the middle of night 3 times. Without warning or

special reason.

Normaly I take Ketogan tablet 5 mg as soon as I fell just a little

pain. I rest totaly for 5 hours and in this way I am on my feet

again. Otherwise I can be in pain for up to one hour because my

stomach will not absorbe the tablet proberly and I have to continue

with Ketogan for up to 24 hours.

In most cases I can can solve this problem taking Ketogan supp., but

when the pain is to strong I also get diarrhoea.

Pain at night is always strong from the first moment.

I often dream I am in pain and wake up bading in cold sweat. All 3

times I have first thought it is just a dream, but no. The first 2

times I had to be admitted to hospital to avoid shock.

I now use Temgesic 0,2 mg to be placed under the toungue. That

solves my problem getting fast painrelieve.

Now I take Temgesic in stead of Ketogan. Works faster and easyer. I

have problems falling asleep but since I am afraid falling asleep

when I am not sure the attack is over it does not matter so much.

Sometimes I set the alarmclock the wake me up 4 hours after the last

tablet. Then I in time will know, if I have to take more tablets or

the attack is over.

By the way I also dream that I forget not to drink beer. I wake up

bading in cold sweat, hearing famely and friends shouting at each

other who to blame. They never blame me!

Jeppe, Denmark

> I have some questions for you all......have you ever woken up in

the

> middle of the night with the pain (I so far have not -- why is

> that?) and do you feel progressively worse throughout the course

of

> the day? I sure seem to, in fact, I wasn't even able to make it

to

> a 4:30 GI doc app't. yesterday because I was too sick to drive.

> They've scheduled me in for 4:45 today and I sure as he** need to

> get to that one so I can find out what more we can do or at least

> what the doc's got up his sleeve in the way of diagnostic

> procedures. If I don't get into work this week (was out all last

> week) I will have NO paycheck next Friday and I'm totally

stressing

> about that.. I'm curious how it progresses on a daily basis for

> others. Please let me ok?? Just wondering if others have

> a " pattern " of sorts.

>

> thanks in advance

>

[Guest guest]

Thanks for you reply Jeppe. I guess I'm just trying to determine how

the pain pattern is in other people. If there is a pattern at all

or if it just hits out of nowhere or what. Mine takes on a pattern

of sorts......gets progressively worse starting about noon time and

is in peak by about 4-8 pm or so.

thanks again for your response and wishing you well

> > I have some questions for you all......have you ever woken up in

> the

> > middle of the night with the pain (I so far have not -- why is

> > that?) and do you feel progressively worse throughout the course

> of

> > the day? I sure seem to, in fact, I wasn't even able to make it

> to

> > a 4:30 GI doc app't. yesterday because I was too sick to drive.

> > They've scheduled me in for 4:45 today and I sure as he** need

to

> > get to that one so I can find out what more we can do or at

least

> > what the doc's got up his sleeve in the way of diagnostic

> > procedures. If I don't get into work this week (was out all

last

> > week) I will have NO paycheck next Friday and I'm totally

> stressing

> > about that.. I'm curious how it progresses on a daily basis for

> > others. Please let me ok?? Just wondering if others have

> > a " pattern " of sorts.

> >

> > thanks in advance

> >

[Guest guest]

,

I'm so sorry I didnt' get this email until today because I was gone on

vacation since May 25 and just started to download my email yesterday in

the afternoon and didn't get much of a chance to even look at it until

today. I also had a gotten a cold that reared it's head on this last

Tuesday (June1st) when I got home from my vacation and I was so under

the weather with it I didn't even hook my computer up until yesterday.

So I've now got a lot of email to catch up on. How did your GI appt. go?

And yes, the problems with waking up in the middle of the night does

make me tired and so I end up taking naps through out the day and

totally ruins my sleep pattern. The more often I wake up in the night,

the worse I feel the next day. I've sort of gotten used to waking up

every four hours, but if I wake up in smaller intervals than that is

when I get tired now, since this has been going on so long. Also, part

of my problem was sleep apnea (stop breathing in the middle of the

night) and have been getting better quality sleep now that I've got a

CPAP machine to help me continuing breathing while I'm sleeeping.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.