RE: Lenora - Re: FW: GrandMomBev

[Guest guest]

Lenora - Re: FW: GrandMomBev

Bev,

Don't worry, this information is public it was published on the New

England Journal at the beginning of the month.

It has been the talk of a few sites since then.

But I talked to our cf doc and he said that Tobi and Genta are very

similar drugs and he wonders if that's the reason why so many people

do so well on Tobi and some other dont.

Also, Genta is suppose to be a very safe antibiotic, but there is a

patient on another list that had a bad reaction to it.

Love to you and thank you for being around,

> > Thanks Keeley. My son has one (G542x). I wish the CFF sounded more

> > hopeful about this. Also, I wonder about all the known side

> effects

> > from Gentamycin.

> >

> > >Lenora,

> > >

> > > The article refers to stop mutations, which are a specific

> class

> > >of mutations. I think all the stop mutations end in " X " . My

> > >daughter has one, R553X. I know there are several more stop

> > >mutations. Hope that helps.

> > >

> > >Keeley

> > >Mom to Leila, 15m. wcf and zz alpha, and Hadley, 3.5 yrs. nocf

> > >

> > > Re: FW: CF NEWS FROM AROUND THE WORLD

> > >

> > >

> > > Hi everyone, I am trying to find out the exact gene that the

> > > Ashkenazi Jews carry for CF. Does anyone know?

> > > Thank you,

> > > Lenora

> > >

> > >

> > >

[Guest guest]

Thanks for your post. I am always dubious about me giving medical info

,even in that form as I am NOT a clinician. Your great to clarify it to me.

Also nice to hear what your doc said too.

It was sent to me thru the Boomer Easion newsletter. They send out each

day. the info comes from folks from all over the world. I love reading it .

Thanks again for your help ......always

LOVE & HUGS, grandmoMBEV

Lenora - Re: FW: GrandMomBev

Bev,

Don't worry, this information is public it was published on the New

England Journal at the beginning of the month.

It has been the talk of a few sites since then.

But I talked to our cf doc and he said that Tobi and Genta are very

similar drugs and he wonders if that's the reason why so many people

do so well on Tobi and some other dont.

Also, Genta is suppose to be a very safe antibiotic, but there is a

patient on another list that had a bad reaction to it.

Love to you and thank you for being around,

> > Thanks Keeley. My son has one (G542x). I wish the CFF sounded more

> > hopeful about this. Also, I wonder about all the known side

> effects

> > from Gentamycin.

> >

> > >Lenora,

> > >

> > > The article refers to stop mutations, which are a specific

> class

> > >of mutations. I think all the stop mutations end in " X " . My

> > >daughter has one, R553X. I know there are several more stop

> > >mutations. Hope that helps.

> > >

> > >Keeley

> > >Mom to Leila, 15m. wcf and zz alpha, and Hadley, 3.5 yrs. nocf

> > >

> > > Re: FW: CF NEWS FROM AROUND THE WORLD

> > >

> > >

> > > Hi everyone, I am trying to find out the exact gene that the

> > > Ashkenazi Jews carry for CF. Does anyone know?

> > > Thank you,

> > > Lenora

> > >

> > >

> > >