Guest guest Posted October 13, 2003 Report Share Posted October 13, 2003 I think I would go with my CF doctor's opinion! I do not have CF, my daughter does, but.......at 20 years old I had to have my gallbladder removed. I was in more pain than giving birth to my children! It is obviously causing her problems, why not remove it? I agree with the comment that she needs the food that you are having to keep from her. I have been able to eat anything I want since my gallbladder was removed 14 years ago! Good luck, Lorenzen, mom of 16 wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2003 Report Share Posted October 13, 2003 I posted about two weeks ago in reference to my 6 wcf. She had been having lots of abdomen pain mainly after eating and at night and last I posted they were thinking it could be ulcerative colitis. Last week she was put back in the hospital and a ultrasound was done and she has Gallstone's. A surgeon was called in and decided that the gallbladder does not need to be taken out because it is not inflamed and the CF Doctor is saying that it does need to be taken out. She is currently on a low fat diet, and she is not having no pain, but if we eat anything with fat like whole milk, ice-cream, spaghetti, her normal diet, she has pain. What experience have you all have on gallbladder and problems? Tracey Oldham toldham@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2003 Report Share Posted October 13, 2003 Tracey, Hi I have gallbladder problems but I can't imagine how I would keep weight on if she had a problem with hers. I have found that a while after I was dx'd with gallbladder problems I was able to add fatty foods back into my diet but I can tell when I have over done it with them. Is the surgeon aware of the nutritional/malabsorbtion issues with CF? She needs those fatty foods! I hope that she is feeling better soon. Gallstones I posted about two weeks ago in reference to my 6 wcf. She had been having lots of abdomen pain mainly after eating and at night and last I posted they were thinking it could be ulcerative colitis. Last week she was put back in the hospital and a ultrasound was done and she has Gallstone's. A surgeon was called in and decided that the gallbladder does not need to be taken out because it is not inflamed and the CF Doctor is saying that it does need to be taken out. She is currently on a low fat diet, and she is not having no pain, but if we eat anything with fat like whole milk, ice-cream, spaghetti, her normal diet, she has pain. What experience have you all have on gallbladder and problems? Tracey Oldham toldham@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2003 Report Share Posted October 13, 2003 n - keep this up and there will be nothing left of you!!!!!!!!!!! Rosemary in NY with 3 children (13, 10.6 and 6.6) with CF. I have a dog named TOBI and have coined the phrase " BREATHE DAMMIT " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2003 Report Share Posted October 13, 2003 I must say that I have not regretted the loss of the following: tonsils and adenoids, appendix, uterus and THE GALL BLADDER! Come to think of it, I do not miss those polyps either--and thank heavens the removal of all these does not require a transplant! Love to all at crataegus, n Rojas, Rojas5915@... > I think I would go with my CF doctor's opinion! I do not have CF, my daughter > does, but.......at 20 years old I had to have my gallbladder removed. I was > in more pain than giving birth to my children! It is obviously causing her > problems, why not remove it? > I agree with the comment that she needs the food that you are having to keep > from her. I have been able to eat anything I want since my gallbladder was > removed 14 years ago! > Good luck, > Lorenzen, mom of 16 wcf > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2003 Report Share Posted October 13, 2003 Tracey, I am sorry to hear about 's gall stones. It will hard for you to get enough calories in her, if she has pain when ever she eats fat. I wish that I had some good advise for you, but I don't know anything about gall stones. Do they pass, like kidney stones? Gale > I posted about two weeks ago in reference to my 6 wcf. She had been having lots of abdomen pain mainly after eating and at night and last I posted they were thinking it could be ulcerative colitis. Last week she was put back in the hospital and a ultrasound was done and she has Gallstone's. A surgeon was called in and decided that the gallbladder does not need to be taken out because it is not inflamed and the CF Doctor is saying that it does need to be taken out. She is currently on a low fat diet, and she is not having no pain, but if we eat anything with fat like whole milk, ice-cream, spaghetti, her normal diet, she has pain. What experience have you all have on gallbladder and problems? > > > Tracey Oldham > toldham@l... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2003 Report Share Posted October 13, 2003 Gallstones, like kidney stones, typically go hand in hand with magnesium deficiency. Sorry... You knew I was going to say that, didn't you? I can't help it... the research speaks for itself. Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2003 Report Share Posted October 14, 2003 Thanks to everyone on your info, it has helped me so much. I spoke back to 's CF doctor Monday afternoon. He said the Gallbladder does indeed need to come out weather it is inflamed or not that it has stones in it and that will cause her more problems in the future. But it seems that the pediatric surgeon at the children's hospital does not want to take it out because it is not inflamed and see's no need in it. So, The CF nurse is calling the pediatric surgeon's nurse today to talk it over and she will be calling me. Until then we are struggling to try and gain any weight or at least maintain the weight, is six years old and only 36 pounds. She has always had problems in gaining weight we can maintain the weight but gaining is hard she does grow taller on each clinic visit but she is still just barley on the chart height and weight wise. She had meconium lilius when she was born(six weeks early), she lost about two inches of her small intestine and had a colostomy for over a month them reversed it a week after her due date. three months after her birth we were able to bring her home. she had liver problems when she came home from hospital because of the hiperal(iv nutrition) she was on the three months she was put on actigal to lower her billirubin numbers and to help the liver. Her liver levels went back to normal after about two months being at home and since then all has been well. Until this year in march she had her first case of pneumonia. Thanks again for listening to me and for your info. May God Bless!!!!!!!! Tracey Gallstones I posted about two weeks ago in reference to my 6 wcf. She had been having lots of abdomen pain mainly after eating and at night and last I posted they were thinking it could be ulcerative colitis. Last week she was put back in the hospital and a ultrasound was done and she has Gallstone's. A surgeon was called in and decided that the gallbladder does not need to be taken out because it is not inflamed and the CF Doctor is saying that it does need to be taken out. She is currently on a low fat diet, and she is not having no pain, but if we eat anything with fat like whole milk, ice-cream, spaghetti, her normal diet, she has pain. What experience have you all have on gallbladder and problems? Tracey Oldham toldham@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2003 Report Share Posted October 14, 2003 n, How *awfully nice* of your surgeon to recommend magnesium AFTER the fact. Did you ask him which new toy of his you funded by him removing your gall bladder -- summer beach house, ski cabin, second Mercedes, his kids' Ivy League college tuition? Kim --- " marionjrojas " <Rojas5915@C...> wrote: > Kim--never would have guessed! Oddly, however, my > g.i. surgeon recommended magnesium at $00-800mg. > after I had my GB out! Someone is noticing! > Keep up publicising Magnesium; plenty of research to > support that one! > Cheers! > n Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2003 Report Share Posted October 14, 2003 Tracey, Before surgery, I'd get a third opinion from a pediatric GI specialist, NOT a CF specialist, and I'd start her on magnesium and taurine asap. Kim --- " Tracey Oldham " <toldham@l...> wrote: > Thanks to everyone on your info, it has helped me so much. > > I spoke back to 's CF doctor Monday afternoon. He said the Gallbladder does indeed need to come out weather it is inflamed or not that it has stones in it and that will cause her more problems in the future. But it seems that the pediatric surgeon at the children's hospital does not want to take it out because it is not inflamed and see's no need in it. So, The CF nurse is calling the pediatric surgeon's nurse today to talk it over and she will be calling me. > > Until then we are struggling to try and gain any weight or at least maintain the weight, is six years old and only 36 pounds. She has always had problems in gaining weight we can maintain the weight but gaining is hard she does grow taller on each clinic visit but she is still just barley on the chart height and weight wise. She had meconium lilius when she was born(six weeks early), she lost about two inches of her small intestine and had a colostomy for over a month them reversed it a week after her due date. three months after her birth we were able to bring her home. she had liver problems when she came home from hospital because of the hiperal(iv nutrition) she was on the three months she was put on actigal to lower her billirubin numbers and to help the liver. Her liver levels went back to normal after about two months being at home and since then all has been well. Until this year in march she had her first case of pneumonia. > > Thanks again for listening to me and for your info. > May God Bless!!!!!!!! > Tracey > Gallstones > > > I posted about two weeks ago in reference to my 6 wcf. She had been having lots of abdomen pain mainly after eating and at night and last I posted they were thinking it could be ulcerative colitis. Last week she was put back in the hospital and a ultrasound was done and she has Gallstone's. A surgeon was called in and decided that the gallbladder does not need to be taken out because it is not inflamed and the CF Doctor is saying that it does need to be taken out. She is currently on a low fat diet, and she is not having no pain, but if we eat anything with fat like whole milk, ice-cream, spaghetti, her normal diet, she has pain. What experience have you all have on gallbladder and problems? > > > Tracey Oldham > toldham@l... > > > Quote Link to comment Share on other sites More sharing options...
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