Re: Transplant Update/BECKI

[Guest guest]

Hey, Lady- sounds like you are in good hands!

Love,

n

Transplant Update

> Hey Everyone

> I heard from the lung Transplant group at Mayo again today.We're gonna set

up

> tetsing to start on January 5th. Its a boat load of testing ! ! !

> 1. CT scans

> 2. Anergeic skin testing (allergies I believe...could have misspelled it)

> 3. V/Q Scan

> 4.Pancrease and Kidney Transplant Appt(not sure why)

> 5. Echo

> 6. PFTs

> 7.Shunt Studies

> 8. Ride Sided Exercise Heart Cath..this does not sound fun

> 9. Possily reflux studies (not sure yet)

>

> Plus some more I can't think of...they said they may add more like a bone

> marrow biopsy.

>

> Meetings with

> 1. Both surgeons

> 2. Pulmo docs

> 3. TX coordinator

> 4. Dietician

> 5. Social Worker

> 6. Financial Coord.

> 7. Shrink

> 8. Endocrine consult (diabetes)

>

> Anyways...I found out they have a Mc House for adults so

we're

> hoping to get in there.It'll save a boat load of $$$. Especially when we

just

> got billled $2000 to fix our car today....UGHHHHHHHHHHhhhhhhhhhhhhhhh

>

> I am feeling like pooie although I can do a really awsome impressionation

of

> Darth Vador right now....you shouold hear it. As soon as I get my car back

> I'll be club med bound...=)

>

> Becki

> YOUR FAVORITE LilGooberGirl

> YOUNGLUNG EMAIL SUPPORT LIST

> www.topica.com/lists/younglung

> Pediatric Interstitial Lung Disease Society

> http://groups.yahoo.com/group/InterstitialLung_Kids/

>

>

>