Transplant Update

[Guest guest]

Hey Everyone

I heard from the lung Transplant group at Mayo again today.We're gonna set up

tetsing to start on January 5th. Its a boat load of testing ! ! !

1. CT scans

2. Anergeic skin testing (allergies I believe...could have misspelled it)

3. V/Q Scan

4.Pancrease and Kidney Transplant Appt(not sure why)

5. Echo

6. PFTs

7.Shunt Studies

8. Ride Sided Exercise Heart Cath..this does not sound fun

9. Possily reflux studies (not sure yet)

Plus some more I can't think of...they said they may add more like a bone

marrow biopsy.

Meetings with

1. Both surgeons

2. Pulmo docs

3. TX coordinator

4. Dietician

5. Social Worker

6. Financial Coord.

7. Shrink

8. Endocrine consult (diabetes)

Anyways...I found out they have a Mc House for adults so we're

hoping to get in there.It'll save a boat load of $$$. Especially when we just

got billled $2000 to fix our car today....UGHHHHHHHHHHhhhhhhhhhhhhhhh

I am feeling like pooie although I can do a really awsome impressionation of

Darth Vador right now....you shouold hear it. As soon as I get my car back

I'll be club med bound...=)

Becki

YOUR FAVORITE LilGooberGirl

YOUNGLUNG EMAIL SUPPORT LIST

www.topica.com/lists/younglung

Pediatric Interstitial Lung Disease Society

http://groups.yahoo.com/group/InterstitialLung_Kids/

[Guest guest]

Becki,

I hope that all of testing goes well for you. Please keep us posted

and let us know. I'll be thinking about you.

Gale

> Hey Everyone

> I heard from the lung Transplant group at Mayo again today.We're

gonna set up

> tetsing to start on January 5th. Its a boat load of testing ! ! !

> 1. CT scans

> 2. Anergeic skin testing (allergies I believe...could have

misspelled it)

> 3. V/Q Scan

> 4.Pancrease and Kidney Transplant Appt(not sure why)

> 5. Echo

> 6. PFTs

> 7.Shunt Studies

> 8. Ride Sided Exercise Heart Cath..this does not sound fun

> 9. Possily reflux studies (not sure yet)

>

> Plus some more I can't think of...they said they may add more like

a bone

> marrow biopsy.

>

> Meetings with

> 1. Both surgeons

> 2. Pulmo docs

> 3. TX coordinator

> 4. Dietician

> 5. Social Worker

> 6. Financial Coord.

> 7. Shrink

> 8. Endocrine consult (diabetes)

>

> Anyways...I found out they have a Mc House for adults

so we're

> hoping to get in there.It'll save a boat load of $$$. Especially

when we just

> got billled $2000 to fix our car

today....UGHHHHHHHHHHhhhhhhhhhhhhhhh

>

> I am feeling like pooie although I can do a really awsome

impressionation of

> Darth Vador right now....you shouold hear it. As soon as I get my

car back

> I'll be club med bound...=)

>

> Becki

> YOUR FAVORITE LilGooberGirl

> YOUNGLUNG EMAIL SUPPORT LIST

> www.topica.com/lists/younglung

> Pediatric Interstitial Lung Disease Society

> http://groups.yahoo.com/group/InterstitialLung_Kids/

>

>

>

[Guest guest]

Becki,

I hope the trip to club med will help you get rid of the Vader voice and feel

better. I will keep thinking good thoughts for you about the tx tests!

Transplant Update

Hey Everyone

I heard from the lung Transplant group at Mayo again today.We're gonna set up

tetsing to start on January 5th. Its a boat load of testing ! ! !

1. CT scans

2. Anergeic skin testing (allergies I believe...could have misspelled it)

3. V/Q Scan

4.Pancrease and Kidney Transplant Appt(not sure why)

5. Echo

6. PFTs

7.Shunt Studies

8. Ride Sided Exercise Heart Cath..this does not sound fun

9. Possily reflux studies (not sure yet)

Plus some more I can't think of...they said they may add more like a bone

marrow biopsy.

Meetings with

1. Both surgeons

2. Pulmo docs

3. TX coordinator

4. Dietician

5. Social Worker

6. Financial Coord.

7. Shrink

8. Endocrine consult (diabetes)

Anyways...I found out they have a Mc House for adults so we're

hoping to get in there.It'll save a boat load of $$$. Especially when we just

got billled $2000 to fix our car today....UGHHHHHHHHHHhhhhhhhhhhhhhhh

I am feeling like pooie although I can do a really awsome impressionation of

Darth Vador right now....you shouold hear it. As soon as I get my car back

I'll be club med bound...=)

Becki

YOUR FAVORITE LilGooberGirl

YOUNGLUNG EMAIL SUPPORT LIST

www.topica.com/lists/younglung

Pediatric Interstitial Lung Disease Society

http://groups.yahoo.com/group/InterstitialLung_Kids/

[Guest guest]

Wow Becki sounds like it's going to be a very busy time!

Hope you manage to get into Mc house and that you now

have your repaired car back!

Barbara

Mum to Nicky 15 wocf and Kristy 12 wcf

> Hey Everyone

> I heard from the lung Transplant group at Mayo again today.We're

gonna set up

> tetsing to start on January 5th. Its a boat load of testing ! ! !

> 1. CT scans

> 2. Anergeic skin testing (allergies I believe...could have

misspelled it)

> 3. V/Q Scan

> 4.Pancrease and Kidney Transplant Appt(not sure why)

> 5. Echo

> 6. PFTs

> 7.Shunt Studies

> 8. Ride Sided Exercise Heart Cath..this does not sound fun

> 9. Possily reflux studies (not sure yet)

>

> Plus some more I can't think of...they said they may add more like

a bone

> marrow biopsy.

>

> Meetings with

> 1. Both surgeons

> 2. Pulmo docs

> 3. TX coordinator

> 4. Dietician

> 5. Social Worker

> 6. Financial Coord.

> 7. Shrink

> 8. Endocrine consult (diabetes)

>

> Anyways...I found out they have a Mc House for adults

so we're

> hoping to get in there.It'll save a boat load of $$$. Especially

when we just

> got billled $2000 to fix our car

today....UGHHHHHHHHHHhhhhhhhhhhhhhhh

>

> I am feeling like pooie although I can do a really awsome

impressionation of

> Darth Vador right now....you shouold hear it. As soon as I get my

car back

> I'll be club med bound...=)

>

> Becki

> YOUR FAVORITE LilGooberGirl

> YOUNGLUNG EMAIL SUPPORT LIST

> www.topica.com/lists/younglung

> Pediatric Interstitial Lung Disease Society

> http://groups.yahoo.com/group/InterstitialLung_Kids/

>

>

>