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Re: I'M NEW

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welcome nina.Ican't write too much about this goup because i'm french an my english is very poor.But it's such a nice and friendly group .you can find help of each sort here.bienvenue

Marie-pia

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--- nina5808 wrote:

> I'M NEW TO THIS .DIDN'T KNOW THERE WAS A SUPPORT

> GROUP FOR RP. I WAS

> FEELING ALL ALONE...I'M LOOKING AT HAVING MY NOSE

> CARTLAGE REPLACED

> SOON..HAS ANYONE BEEN DOWN THAT ROAD TO HELP LET ME

> KNOW WHAT I'M IN

> FOR...COULD USE SOME ONE TO TALK TO....NINA

>

> Welcome, Nina - you are not now alone!! There are

around 200 in this group, although obviously we are

not all active all the time. I have a hole in the

cartilage in my nose, but I have never had any

suggestion that it could be replaced, so I can't help

on that one.

My name is Liz, I have had rp I think at least 14

years, but it was only diagnosed about 5 years ago.

However, I am much better since I have been taking

meds (pred, methotrexate, plaquenil) for it! Tell us

a little more about yourself. This group comprises a

great bunch of people, and we give each other support,

sympathy and laughter. It was a blessing to me when I

found it - well, it still is!!!

Look forward to hearing more, love Liz

__________________________________________________

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