day #1 of diet for 2 1/2 yr old....

[Guest guest]

my son has cold and cough and now my husband and i do but we decided

to start the intro menu today. we have been gearing up for the last

2 wks by weening my son off refined sugar and cow's milk. we had to

stronghold his arms and legs down and shove the food in then i had

to hold his hand and reassure him that it would be ok so he wouldn't

spit it out or gag. he took a few tiny bites of the farmer's cheese

laced with drop of honey, a few tiny gelatin squares, raisins,

ground burger with hard boiled egg pureed and about 2oz of warm

chicken/carrot soup. we had to give him a few raisins to bribe him

or distract him. we were ecstatic that it was his 1st warm real meal

he has ever eaten. the poor little guy still went to bed hungry but

i feel hopeful that he will come to accept this new way of eating

soon. my husband is taking tomorrow off work so we can continue to

forcefeed him. his stools were solid today and i don't ever remember

that. he is already improving: more eye contact, less stimming

behaviors, attempting more to talk, etc.

i am concerned that his nystatin has 50% sucrose in it. can i finish

off the pint and then have the pharmacist add fructose or dextrose

on the next order. i believe we have a 45 day supply in the pint.

insurance denied Speech therapy but may approve occupational

therapy, no guarantee. they sd speech loss has to be from injury,

stroke or congenital anomoly (well i would think autism is 2 of

those things:genetics and injury from vaccines/antiobiotics or

environmental toxins). i am not fiting it because the state pays for

2 days per wk of ST. i am sick of insur cos.

[Guest guest]

As long as you are using the Nystatin with sugar in it, he will not really be

100% on the diet. Also, raisins are a very advanced food.... not for beginners,

and certainly not allowed on intro. So... while I'm sure that what he's eating

right now is much better than before, he is NOT on the SCD intro diet if he's

eating raisins and taking the Nystatin you currently have.

You can go ahead and finish that supply of Nystatin if you want to (I understand

it's expensive), but he will not be *truly* on SCD until you either stop using

it altogether, or get a sugar and starch-free version.

Patti

day #1 of diet for 2 1/2 yr old....

my son has cold and cough and now my husband and i do but we decided

to start the intro menu today. we have been gearing up for the last

2 wks by weening my son off refined sugar and cow's milk. we had to

stronghold his arms and legs down and shove the food in then i had

to hold his hand and reassure him that it would be ok so he wouldn't

spit it out or gag. he took a few tiny bites of the farmer's cheese

laced with drop of honey, a few tiny gelatin squares, raisins,

ground burger with hard boiled egg pureed and about 2oz of warm

chicken/carrot soup. we had to give him a few raisins to bribe him

or distract him. we were ecstatic that it was his 1st warm real meal

he has ever eaten. the poor little guy still went to bed hungry but

i feel hopeful that he will come to accept this new way of eating

soon. my husband is taking tomorrow off work so we can continue to

forcefeed him. his stools were solid today and i don't ever remember

that. he is already improving: more eye contact, less stimming

behaviors, attempting more to talk, etc.

i am concerned that his nystatin has 50% sucrose in it. can i finish

off the pint and then have the pharmacist add fructose or dextrose

on the next order. i believe we have a 45 day supply in the pint.

insurance denied Speech therapy but may approve occupational

therapy, no guarantee. they sd speech loss has to be from injury,

stroke or congenital anomoly (well i would think autism is 2 of

those things:genetics and injury from vaccines/antiobiotics or

environmental toxins). i am not fiting it because the state pays for

2 days per wk of ST. i am sick of insur cos.

[Guest guest]

Your insurance may require that same stipulation for ot. Ours did for

speech, occupational, and physical therapies. Here's how we got around it.

We just had our dr. write a letter to the insurance company that our son

needed x amount of x therapy per week for recovery. It worked.

Meleah

day #1 of diet for 2 1/2 yr old....

> my son has cold and cough and now my husband and i do but we decided

> to start the intro menu today. we have been gearing up for the last

> 2 wks by weening my son off refined sugar and cow's milk. we had to

> stronghold his arms and legs down and shove the food in then i had

> to hold his hand and reassure him that it would be ok so he wouldn't

> spit it out or gag. he took a few tiny bites of the farmer's cheese

> laced with drop of honey, a few tiny gelatin squares, raisins,

> ground burger with hard boiled egg pureed and about 2oz of warm

> chicken/carrot soup. we had to give him a few raisins to bribe him

> or distract him. we were ecstatic that it was his 1st warm real meal

> he has ever eaten. the poor little guy still went to bed hungry but

> i feel hopeful that he will come to accept this new way of eating

> soon. my husband is taking tomorrow off work so we can continue to

> forcefeed him. his stools were solid today and i don't ever remember

> that. he is already improving: more eye contact, less stimming

> behaviors, attempting more to talk, etc.

>

> i am concerned that his nystatin has 50% sucrose in it. can i finish

> off the pint and then have the pharmacist add fructose or dextrose

> on the next order. i believe we have a 45 day supply in the pint.

>

> insurance denied Speech therapy but may approve occupational

> therapy, no guarantee. they sd speech loss has to be from injury,

> stroke or congenital anomoly (well i would think autism is 2 of

> those things:genetics and injury from vaccines/antiobiotics or

> environmental toxins). i am not fiting it because the state pays for

> 2 days per wk of ST. i am sick of insur cos.

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

> _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

> websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

[Guest guest]

I would think that using " failure to thrive " as a reason for the

nutritionist referal would be sufficient. The weight loss and all should be

reason enough to cover it. Our dr. just wrote a letter saying that our son

needed 2 hrs. of ot and 2 hrs. of speech each week as restorative therapy.

She didn't have to give any specifics in the letter, and Etna covered it.

You could always get a general letter like that just using the words

" restorative therapy " and fax that over. Then, you can have the clinic

where you want to do therapy call to check on whether the insurance has

decided to cover it.

Meleah

Re: day #1 of diet for 2 1/2 yr old....

> would the insurance require the doctor to justify what he was

> recovering from? they said that malabsorption was too general and that

> they would need more information.

>

> would just having the doctor say he needed x hrs/wk of ST & OT really

> be enough?

>

> i am afraid to go ahead with the nutritionist even with a ref'l from

> my doctor because the nutritionist would need a diagnosis like failure

> to thrive. my child is losing weight (he is skin and bones). he is

> hardly eating at all since we pulled his snacks and milk. would the

> doctor be able to use " failure to thrive " ?

>

>

>

>

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

> _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

> websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

[Guest guest]

Hi guys,

When we had to use Nystatin we got the stuff made plane. Nothing but

the medicine with no starch or ilegals in it. With nothing in

it...just the medicine. Most compounding pharmacies will do this.

At home I adda touch of honey and apple sauce to the dose and it

worked fine. I do not trust fructose or dextrose becasue most of it

is derived from corn and is not truly a monosacharide, therefore not

being legal on the SCDiet and will feed the bad gut flora.

Hope this helps,

Antoinette mom to KIKI-2 (ASD, CD and more) SCD 2/06