Re: We found out Mikayla's aspirating...

[Guest guest]

Hi Donna,

I'm surprised this is the first time they have recommended a video

swallow study to be done. Wasn't she diagnosed with reflux early on?

When Ellie was diagnosed with reflux, they had us get one done to make

sure she was not aspirating anything into her lungs. I can definitely

understand your disappointment. At least you found now! Hope Mikayla

had a happy birthday

Mom to Ellie 1yr wCF and Jack 3yrs noCF

We found out Mikayla's aspirating...

She's been having trouble weaning from her bottle. She just doesn't

take any volumes from her sippy, so before beginning behavior mod

therapy, her CF Dr. ordered a video swallow. OMG - she was

aspirating with her unthickened formula and also with thickened

formula. She's always struggled with her bottle and now we know

why! We've taken her off all oral fluids and now we'll feed her

peptamin exclusively through her G-Tube. Thank God for the tubie!

We'd be in club med if we didn't have it. I'm disappointed that

it's taken an entire year to find this out. Poor thing - no wonder

she hasn't been fond of fluids. Has anyone else delt with this with

a 1 year old?

Donna

Mikayla wcf (1)

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[Guest guest]

Abby had a video swallow test when she was six months old. She also

asperated thickened fluids. She was fed really thickened formula and

baby food (by mouth) until she was probably 14 months old. She is

now almost two years old and still has to have thickened food, but

only thickened to a honey consistency.

Gale

> She's been having trouble weaning from her bottle. She just

doesn't

> take any volumes from her sippy, so before beginning behavior mod

> therapy, her CF Dr. ordered a video swallow. OMG - she was

> aspirating with her unthickened formula and also with thickened

> formula. She's always struggled with her bottle and now we know

> why! We've taken her off all oral fluids and now we'll feed her

> peptamin exclusively through her G-Tube. Thank God for the tubie!

> We'd be in club med if we didn't have it. I'm disappointed that

> it's taken an entire year to find this out. Poor thing - no wonder

> she hasn't been fond of fluids. Has anyone else delt with this

with

> a 1 year old?

>

> Donna

> Mikayla wcf (1)