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Re: Dawn flaring

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Hi Glenda

Well it started off ok, the weekend that is. But Saturday Morning, I woke up with a headache from you know where. By about 10 am my face and nose were swelling like you know what, and then both ears swelled shut, and the dizziness set in. Had to hold on to the furniture just to walk across the room. Tell me what is it that when your so dizzy you can hardly move, and your body decides you have to go to the bathroom 50 times that day, whats the connection. well whatever it is I hate it. So I finally gave in and started back on pred. Today the ears are red but not really swollen, the pred has at least relieved the dizziness. Oh well enough of my whinning, it just bugs me that about the time you think you have this cRaP kicked in the ass, it turns around and bites you in the ass. Guess i didn't run fast enough, so it caught up with me. I'm doing better today, just sort of wiped out.

sorry , i usually don't whine, but i just feel rotten and had to get it out.

love you guys

dawn

Glenda McClennen wrote:

Dawn

What would we do without you??? So glad that you let us know you were leaving this weekend. We worried about you all weekend when you were busy wearing yourself out. Sounds like you deserve a restful weekend.

Lots of love

Glenda

DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

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Dawn

You of all people should know better! This is what we are here for is to listen to all the nags, whines, and complaints! REMEMBER!!!

Next time you need to run faster so the RP can't catch up and bite you in the ass! Darn....If that was the only place it bit you that wouldn't actually be too bad!

Sending good thoughts and prayers that the pred kicks in soon and you are on the mend in no time.

Lots of Love

Glenda

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Hi

Got a question, concerning RP and the joints, I am having an awful time with my left shoulder joint, Can hardley use it at all, and it feels inflamed and I can't left it, even to come my hair. Has this every happened to any one.

dawn

Glenda McClennen wrote:

Dawn

You of all people should know better! This is what we are here for is to listen to all the nags, whines, and complaints! REMEMBER!!!

Next time you need to run faster so the RP can't catch up and bite you in the ass! Darn....If that was the only place it bit you that wouldn't actually be too bad!

Sending good thoughts and prayers that the pred kicks in soon and you are on the mend in no time.

Lots of Love

Glenda

DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

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Dawn, you just keep whinning and complaining. You don't do enough of that.

LOl

I'm so sorry you are flaring. Please take Marilyns advise and call the dr.

There is no need for you to suffer with the pain.

Please let me know how you are doing.

hugs

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Dawn You of all people should know

better! This is what we are here for is to listen to all the nags,

whines, and complaints! REMEMBER!!! Next time you need to run

faster so the RP can't catch up and bite you in the ass! Darn....If

that was the only place it bit you that wouldn't actually be too

bad! Sending good thoughts and prayers that the pred kicks in soon

and you are on the mend in no time.Lots of LoveGlenda

>

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--- Dawn wrote:

>

> Hi

> Got a question, concerning RP and the joints, I am

> having an awful time with my left shoulder joint,

> Can hardley use it at all, and it feels inflamed and

> I can't left it, even to come my hair. Has this

> every happened to any one.

> dawn >

Dawn, it has happened to me with both shoulders

(fortunately not at the same time) The first time was

before I had a dx of RP (although I am sure I had

already had it for some time) It was accompanied by a

horrific shooting pain down my arm. I went to see an

orthopadic surgeon, he x rayed it, and said the joint

looked a bit narrow, so he wanted to do an MRI

followed by surgery. Well, like all us clever people,

I didn't want to do surgery so I said could I try

physical therapy. He said sure, while shurgging his

shoulders. Its up to you. Well of course the PT so

sooo painful I couldn't do it. I eventually went for

the MRI, and he showed me what was happening, a bony

spur was rubbing on the tendon and damaging it (hence

the pain down the arm). I had surgery, felt awful

afterwards, had to go on pred, but eventually 6 mos -

12 months if I remember later it was 100 per cent OK.

About two years later it happended on the other side,

I did not mess about, I went and got it sorted staight

away!! It wasn't as bad post surgery as the first

time, but by this time I was aware of the RP, they

used a child's tube for the anaesthesia, my throat was

still v. painful afterwards but overall I did not feel

so ill. The rehab took just as long, swimming or

water exercises was the most helpful thing. Now my

shoulders are my two best joints!!!! What they did

was remove the offending bit of bone and a bit of

cartilage, and made the joint more roomy and repaired

the tendon which was torn.

I have gone into a bit of detail, so that if it

doesn't go away you will have yours looked at earlier

rather than later! I suffered unnecessarily for

almost two years because I was stubborn!!! Feel better

Dawn, love Liz

WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY

> INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE

> ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING

> ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE

> FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE.

> REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE

> DIFFERENT FOR MANY OF US. THANK YOU

>

>

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