Re:SCD and Kiki's seizures

[Guest guest]

Hi Antoinette,

This is totally my personal opinion and you really have to make your own

decision.

However, every drug comes with it's own side effects and baggage.. so if you

have been having 5 months seizure free in between the ones you are seeing...

and having success with the diet thus far... I think you have the answer

before you.

My son personally has more then that, and sometimes longer (but never over 2

mins that is actually considered long to us now... prior use to be hours)

however the hour long ones came from beginning meds... etc.. so of course for me

and him our decision was/is clear.

Take care,

Marlene:)

Mom to i 10 years old now... the 4 others in the tribe are 21, 16, 15

and 3

Agenesis of the Corpus Collosum, Dandy , Lipomyleomengicele-Tethered

Cord Syndrome, no Pituitary Gland yet all systems functioning fine, (!?),

Previously Uncontrolled Status-Seizure Disorder; controlled w/out meds since

9/97, Sensory Integration Disorder (check out my new clips!!), Iris Colobomas,

PDD-NOS, CVA-resulting in Left sided Hemi, " Non " -Verbal with a heck of a lot to

say, need I go on... if you made it this far... check out what all this

means to i... nada LOL... here:_ http://www.clipshack.com/25409_

(http://www.clipshack.com/25409)

P.S. Sometimes even the " experts " are wrong... to date I believe they are

still

only practicing medicine... only one has perfected it; He doesn't walk this

earth.

Is still in the business of miracles. Check out the clips

_http://www.clipshack.com/25409_ (http://www.clipshack.com/25409)

" Be careful. Don't think these little children are worth nothing. I tell you

they have angels in heaven who are always with my Father in heaven. "

18:10