Guest guest Posted October 15, 2003 Report Share Posted October 15, 2003 I am so sorry your start was such a true disaster. What a terrible shock. I am glad however that you saw all the signs of " not right' .It is so much better to get on with treatments as soon as possible. You all will make it & things will get better. I will hold you all in my special thoughts each day.. LOVE & HUGS, grandmomBEV Introducing P2 He cruised along til 2 weeks old. Then 1 day I repeatedly tried to tell my nurse that he wasnt the same, he was pale, his poos looked OILY?, and when I kissed him he tasted salty! The Dr ordered test but I could see he had already made up his mind what it was and now I know why. The next day Craig had to go back to work in Bunbury so Mum stayed with me at the Hospital Hostel. We went out for tea and to the pictures. We arrived back to the special nursery only to see the Nurses and Drs in a flap. They took Mum and I aside but wouldnt tell me until Craig arrived. I explained that he couldnt come back, he has to go to work and he cant just have time off work like most people as he had a month off that Christmas when his Mum died. I said in not the nicest way. Just tell me. When he said Cystic Fibrosis, I was thinking like - Cerebral Palsy, I had no Idea. I could tell by the tears in Mums eyes it was serious. They gave me the nutshell version and a t first I didnt cry. All I could think of was strangling Craigs ex wife for putting me through hell and for saying 'I hope your f'!*n baby dies' the day I had him. Dad and my other brother drove Craig up and arrived in less than 2 hours. I stood there to tell Craig and I couldnt say it. Mum said 's got Cystic Fibrosis' My Dad went limp, Craigs eyes filled with tears and he said 'the lung disorder?' Then the Dr came in and gave us the full version. We had all the free phone calls we could make thanks to a well funded Womens and Childrens Hospital appeal. I rang everyone, Craig couldnt, I'll never forget his sister saying 'well he didnt get it from our side'! She is usually th nicest person, but I've never looked at her the same way. We spent 5 weeks in all in Perth 2 weeks at King womens hospital and 3 weeks at PMH Princess Margaret Hospital for kids. When we got home he wasnt even 2kg! (4lb) --------------------------------- Yahoo! Search - Looking for more? Try the new Yahoo! Search Quote Link to comment Share on other sites More sharing options...
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