Re: IRON SUPPLEMENTS are not legal

[Guest guest]

When I started the diet I had read about them not being allowed. I

hardly took it; maybe a couple of times, half heartedly, but not

knowing what to do becz I felt I needed it but I do not eat liver.

Regardless I haven't had them since.

It's tough to write things, because if something is mentioned once

it's assumed it's been a regular thing when it hasn't been. I've

been very careful - the kids have been VERY clean especially & I'm

not seeing anything with them either. So it's not just me.

We're a tough family. Nothing goes " easy " nor are there immediately

or even any results with many things for whatever reason. Maybe

there are other complications, maybe we just need lots more time. It

does get tiresome, plugging away without the results but with many

challenges. I'm doing it though. No one is perfect but I've been

doing this.

Michele

>

> Iron supplements are not to be taken because the tear up the

system. Instead use Liver once a

> week. CHICKEN LIVER SPAGHETTI

http://www.scdrecipe.com/recipes/r_011_00400.php

>

> See the Liver Pate' in Breaking The Vicious Cyce by Elaine

Gottschall from the library or from http://www.scdiet.com/ on page

87

>

> Cook in an iron skillet also can help.

>

> *Iron supplements are not to be taken because the tear up the

system. Instead use Liver once a

> week. CHICKEN LIVER SPAGHETTI

http://www.scdrecipe.com/recipes/r_011_00400.php

> The SCD™ Knowledge Base Iron Supplements

> Elaine writes: on

>

http://www.breakingtheviciouscycle.info/knowledge_base/kb/iron_supple

ments.htm

> Pleeeeeze do not get vitamins with iron; they encourage all kinds

of infections especially in the gut, and iron has had much research

done on it re other diseases. No oral iron if you can help it. Just

eat the liver pate and if you like liver, eat it at least once a

week. Now, now, Marilyn and Colleen, no remarks.

> Seth writes:

> Iron levels and anemia is a tricky subject. Anemia can be caused

by many factors, low iron levels being only one of them. Poor iron

levels can be caused by a lot of different things as well. For one,

the body sequesters iron and hides it when you have an infection. If

the ideas behind BTVC are correct, and I think they are, then that

means those of us with IBD have an ongoing infection. So low levels

of iron may be from bleeding (which a lot of us IBDers suffer from),

malabsorption, or in many cases the result of the body trying to

hide the iron stores from infectious bacteria.

> Taking oral iron, in my experience, is not a great idea. Iron

supplement have always caused me GI problems, pain, cramping, etc.

Iron can be very harsh on the gut and may catalyze oxidative

reactions which can damage the surface of the intestines.

Furthermore, many pathogens thrive on iron - and by taking oral iron

you may be adding to the bacteria overgrowth problem that the SC

Diet is trying to quell.

> Iron shots (which I had when I was younger) are painful, but at

least bypass the problem of iron on the gut.

> There are certain supplements you can take to help absorb iron

better. For one, Vitamin C binds to iron in food and helps

facilitate the transportation of iron across the intestines into the

bloodstream. Lactoferrin, a protein the body uses to bind to iron,

can also be useful if taken by supplement. It binds tightly to iron,

keeping it from catalyzing oxidative reactions, keeping it away from

pathogenic bacteria, and also helps the body absorb the iron.

Lactoferrin supplements can be expensive.

> Finally, having low levels of iron, as long as it is not impacting

your energy levels, is not a bad thing. High iron levels have been

implicated in heart disease - whether this has anything to do with

infections, which I think it does, is controversial. But

nonetheless, having more iron is not good when it comes to heart

disease. We have known that women seem to be protected from heart

disease until they hit menopause. It was always thought that

estrogen was the protecting factor. However, researchers recently

found that this was not the case. Women on hormone therapy after

menopause were not protected. Now the current thinking is that it is

the menses that lead to lower levels of iron that protects woman

from heart disease. So after menopause and the menses stop, iron

levels build back up and woman are at risk again.

> So my non-medical advice would be to not worry about iron

supplementation unless it is causing anemia and interfering with

your energy levels, etc.

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> " During an acute inflammatory response, serum iron levels decrease

while levels of ferritin (the iron storage protein) increase,

suggesting that sequestering iron from pathogens is an important

host response to infection (16). Despite the critical functions of

iron in the immune response, the nature of the relationship between

iron deficiency and susceptibility to infection, especially with

respect to malaria, remains controversial. High-dose iron

supplementation of children residing in the tropics has been

associated with increased risk of clinical malaria and other

infections, such as pneumonia.

> 16. Beard, J.L. Iron biology in immune function, muscle

metabolism, and neuronal functioning. Journal of Nutrition. 2001;

volume 131: pages 568S-580S. "

> And.. if that isn't enough information, Ben has kindly forwarded

this link to the list. If you scroll down, you'll come upon the

sentence, " Use with caution in Inflammatory bowel disease such as

ulcerative colitis or Crohn's disease. "

> From the LI listserve

>

>

>

>

>

> ________________________________________

> Loving Care,Grammy Gay IBS-1930, IBD-1984, SURGERY-1988, CD-1994,

> SCD-1997, REMISSION-1998, NO-MEDS.

> Put my address in your contact list or your address book.

> Grammy_Bauer@... for list serve

> *My Web Site: http://www.SCDiet.net/

> hebegb70@... Support Group

> *Put in Subject: SCDiet SCD Pals or help, Please

> *** Or I may not see your post to me. ALSO: ***

> *FOR SCD-Friendly Doctor, Componding Pharmacy,

> and Vacation area, please

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> SCD Cookbooks: http://www.scdiet.com/ Chalmers

> *LIST OF SCD FOODS: E-mail to scdiet@...

> SCDiet.com will provide this at no charge.

> In the subject put CARD REQUEST

> Give your name and address to get it snail mail.

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> Active Parenting Today Online Groups

> [parenting classes from the comfort of home]

> Join: *http://www.activeparenting.com/aptog.htm

>

> ---------------------------------

> Cheap Talk? Check out Yahoo! Messenger's low PC-to-Phone call

rates.

>

>

[Guest guest]

Thank you; I hope so. My 12y old autistic son is downright violent

today. It's really bad...

Michele

> >

> > Iron supplements are not to be taken because the tear up the

> system. Instead use Liver once a

> > week. CHICKEN LIVER SPAGHETTI

> http://www.scdrecipe.com/recipes/r_011_00400.php

> >

> > See the Liver Pate' in Breaking The Vicious Cyce by Elaine

> Gottschall from the library or from http://www.scdiet.com/ on

page

> 87

> >

> > Cook in an iron skillet also can help.

> >

> > *Iron supplements are not to be taken because the tear up the

> system. Instead use Liver once a

> > week. CHICKEN LIVER SPAGHETTI

> http://www.scdrecipe.com/recipes/r_011_00400.php

> > The SCDT Knowledge Base Iron Supplements

> > Elaine writes: on

> >

>

http://www.breakingtheviciouscycle.info/knowledge_base/kb/iron_supple

> ments.htm

> > Pleeeeeze do not get vitamins with iron; they encourage all

kinds

> of infections especially in the gut, and iron has had much

research

> done on it re other diseases. No oral iron if you can help it.

Just

> eat the liver pate and if you like liver, eat it at least once a

> week. Now, now, Marilyn and Colleen, no remarks.

> > Seth writes:

> > Iron levels and anemia is a tricky subject. Anemia can be

caused

> by many factors, low iron levels being only one of them. Poor

iron

> levels can be caused by a lot of different things as well. For

one,

> the body sequesters iron and hides it when you have an

infection. If

> the ideas behind BTVC are correct, and I think they are, then

that

> means those of us with IBD have an ongoing infection. So low

levels

> of iron may be from bleeding (which a lot of us IBDers suffer

from),

> malabsorption, or in many cases the result of the body trying to

> hide the iron stores from infectious bacteria.

> > Taking oral iron, in my experience, is not a great idea. Iron

> supplement have always caused me GI problems, pain, cramping,

etc.

> Iron can be very harsh on the gut and may catalyze oxidative

> reactions which can damage the surface of the intestines.

> Furthermore, many pathogens thrive on iron - and by taking oral

iron

> you may be adding to the bacteria overgrowth problem that the SC

> Diet is trying to quell.

> > Iron shots (which I had when I was younger) are painful, but

at

> least bypass the problem of iron on the gut.

> > There are certain supplements you can take to help absorb iron

> better. For one, Vitamin C binds to iron in food and helps

> facilitate the transportation of iron across the intestines into

the

> bloodstream. Lactoferrin, a protein the body uses to bind to

iron,

> can also be useful if taken by supplement. It binds tightly to

iron,

> keeping it from catalyzing oxidative reactions, keeping it away

from

> pathogenic bacteria, and also helps the body absorb the iron.

> Lactoferrin supplements can be expensive.

> > Finally, having low levels of iron, as long as it is not

impacting

> your energy levels, is not a bad thing. High iron levels have

been

> implicated in heart disease - whether this has anything to do

with

> infections, which I think it does, is controversial. But

> nonetheless, having more iron is not good when it comes to heart

> disease. We have known that women seem to be protected from

heart

> disease until they hit menopause. It was always thought that

> estrogen was the protecting factor. However, researchers

recently

> found that this was not the case. Women on hormone therapy after

> menopause were not protected. Now the current thinking is that

it is

> the menses that lead to lower levels of iron that protects woman

> from heart disease. So after menopause and the menses stop, iron

> levels build back up and woman are at risk again.

> > So my non-medical advice would be to not worry about iron

> supplementation unless it is causing anemia and interfering with

> your energy levels, etc.

> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> > " During an acute inflammatory response, serum iron levels

decrease

> while levels of ferritin (the iron storage protein) increase,

> suggesting that sequestering iron from pathogens is an important

> host response to infection (16). Despite the critical functions

of

> iron in the immune response, the nature of the relationship

between

> iron deficiency and susceptibility to infection, especially with

> respect to malaria, remains controversial. High-dose iron

> supplementation of children residing in the tropics has been

> associated with increased risk of clinical malaria and other

> infections, such as pneumonia.

> > 16. Beard, J.L. Iron biology in immune function, muscle

> metabolism, and neuronal functioning. Journal of Nutrition.

2001;

> volume 131: pages 568S-580S. "

> > And.. if that isn't enough information, Ben has kindly

forwarded

> this link to the list. If you scroll down, you'll come upon the

> sentence, " Use with caution in Inflammatory bowel disease such

as

> ulcerative colitis or Crohn's disease. "

> > From the LI listserve

> >

> >

> >

> >

> >

> > ________________________________________

> > Loving Care,Grammy Gay IBS-1930, IBD-1984, SURGERY-1988, CD-

1994,

> > SCD-1997, REMISSION-1998, NO-MEDS.

> > Put my address in your contact list or your address book.

> > Grammy_Bauer@ for list serve

> > *My Web Site: http://www.SCDiet.net/

> > hebegb70@ Support Group

> > *Put in Subject: SCDiet SCD Pals or help, Please

> > *** Or I may not see your post to me. ALSO: ***

> > *FOR SCD-Friendly Doctor, Componding Pharmacy,

> > and Vacation area, please

> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> > SCD Cookbooks: http://www.scdiet.com/ Chalmers

> > *LIST OF SCD FOODS: E-mail to scdiet@

> > SCDiet.com will provide this at no charge.

> > In the subject put CARD REQUEST

> > Give your name and address to get it snail mail.

> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> > Active Parenting Today Online Groups

> > [parenting classes from the comfort of home]

> > Join: *http://www.activeparenting.com/aptog.htm

> >

> > ---------------------------------

> > Cheap Talk? Check out Yahoo! Messenger's low PC-to-Phone call

> rates.

> >

> >

[Guest guest]

I don't expect a response to this but I gotta tell ya hearing this admonition

over and over again on this list is really troubling to me as my dtr keeps

becoming dangerously anemic and the doctors are insinuating I'm mistreating her

if I don't get the iron supplements into her. They make her crazy with stomach

pain and they refuse to understand how awful her behaviors are when she's taking

them. Believe me she needs alot more than liver. They're talking now about doing

iron shots to bypass the gut. I'm a mess. They just finished a 5.5 hour xray

series after 2 cups of barium which proved nothing and now want to put her in

the hospital with an ng tube down her nose to pour in the laxative crapola then

give her a combined endoscopy and colonoscopy the following day. It just never

ends with this kid and i am feeling like the world's worst mom.

Sherry mom to jamie 17 Down Syndrome/Autism SCD 3 years

[Guest guest]

All this talk reminded me of how well I was doing on a B comp. I

have a B12 shot right now but I remember feeling pretty good on the

B comp. I stopped taking it 2yrs ago while pregnant becz it made me

so sick. I'm going to go back on a comp; hopefully it won't be too

much with the shots; I don't think there's much B12 in the comps

though. Might want to try her on a good B complex...I hope it works

for me again.

Michele

>

> Sherry,

> You're a great mom! I know it must feel awful not to be able to

make all this yucky stuff go away for her. Poor .... what a lot

to go through! And in the end, I suppose it will mostly just be for

the purpose of the doctors being able to say they ruled everything

out. ??

>

> I would definitely go for the shots.... and bypassing the gut.

Would the shots be really traumatic for her? Seems like they may be

able to get her levels up faster. I would think that if the gut is

really whacked out, the iron may not be absorbed correctly anyway.

>

> I was told by my naturopath that she always prescribes B-complex

vitamins when someone's labs come back showing low iron.....

apparently those play a big part in absorbtion of iron. And, of

course, Vitamin C.

>

> I wish oral iron supps didn't do such a number on the gut. I know

they really tend to feed yeast.

>

> Hang in there.... you need a hug?

((((((((((((((((((((Sherry))))))))))))))))))))

>

>

> Patti

>

> Re: IRON SUPPLEMENTS are not legal

>

>

> I don't expect a response to this but I gotta tell ya hearing

this admonition over and over again on this list is really troubling

to me as my dtr keeps becoming dangerously anemic and the doctors

are insinuating I'm mistreating her if I don't get the iron

supplements into her. They make her crazy with stomach pain and they

refuse to understand how awful her behaviors are when she's taking

them. Believe me she needs alot more than liver. They're talking now

about doing iron shots to bypass the gut. I'm a mess. They just

finished a 5.5 hour xray series after 2 cups of barium which proved

nothing and now want to put her in the hospital with an ng tube down

her nose to pour in the laxative crapola then give her a combined

endoscopy and colonoscopy the following day. It just never ends with

this kid and i am feeling like the world's worst mom.

> Sherry mom to jamie 17 Down Syndrome/Autism SCD 3 years

>

>

[Guest guest]

Hi SHerry,

> I don't expect a response to this but I gotta tell ya hearing this

admonition over and over again on this list is really troubling to

me as my dtr keeps becoming dangerously anemic and the doctors are

insinuating I'm mistreating her if I don't get the iron supplements

into her. They make her crazy with stomach pain and they refuse to

understand how awful her behaviors are when she's taking them.

I can attest to the stomach pain of the iron pills. When I was

diagnosed as a teen with UC I had extreme anemia. The hospital

wanted to do a transfusion but I was terrified of getting needles

let alone doing a transfusion. I fainted 3 times as they talked

about giving me the transfusion. Finally they said they'd give me

iron pills instead - I can still remember the gut pain today. Nasty

stuff.

>Believe me she needs alot more than liver.

Did they give any reason for the low anemia? Is she having blood in

stool or something else?

> They're talking now about doing iron shots to bypass the gut.

Others have found thie shots to be a good alternative to iron pills.

I'm a mess. They just finished a 5.5 hour xray series after 2 cups

of barium which proved nothing and now want to put her in the

hospital with an ng tube down her nose to pour in the laxative

crapola then give her a combined endoscopy and colonoscopy the

following day. It just never ends with this kid and i am feeling

like the world's worst mom.

Your not a bad mom, in fact your the opposite -a great mom who is

fighting for her girl.

Sheila

> Sherry mom to jamie 17 Down Syndrome/Autism SCD 3 years

>

>