KRISTINE

[Guest guest]

e,

Eilish cultured it about 3 years ago for a whole year. She was on 3

cipro. & colistin for 3 months then they would re-test and if it was

still there which it was then they would put her back on it for another

3 months. This went on for 13months, so she did 4 cycles of it. But

thankfully she hasn't cultured it for over 2 years. So if it doesn't go

first time keep going. Although we always treat it for 3 months not 3

weeks as that isn't no where near long enough. Check the Danish Cf web

site they do it for three months and we copy them.

(Australia)

p.s. PA is the abbreviation for Pseudomonas

results are in

Ok everyone, I need a little help. the Dr. just called. has

staph aureus and pseudomonas. this is the first time she has

cultered pseudomonas ( we really need to come up with an

abbreviation for this word)and he is going to put her on cipro for

three weeks and tobi for 28 days on and then 28 days off etc. She

will continue to take the pulmozyme and do her vest twice a day. Oh,

I forgot, the good news...no MRSA! However, I just don't know what

to do with this information. I know that typically cf'ers

eventually end up with pseudomonas and so I am not too surprised at

this news. Regarding Tobi, are there any side effects when using the

nebulizer? He said that there were side effects when using the other

form ( liquid form?) like hearing loss and damage to one of the

organs, I think he said the kidney. to tell you the truth after I

heard the word pseudomonas, the rest was all " blah blah blah " like

Charlie Brown's teacher. He also said that eventually the cipro will

stop working...then what!?!?! What can I expect? SOMEBODY PLEASE

TELL ME SHE IS GOING TO BE OK!

I appreciate all your help!!

e