LEE

[Guest guest]

Lee,

How do you get your petrol paid for? Never heard of that unless its a

W.A. thing.

(S.A.)

Introducing P3

We spent 5 weeks in all in Perth 2 weeks at King womens hospital

and 3 weeks at PMH Princess Margaret Hospital for kids.

When we got home he wasnt even 2kg! (4lb)

I've/We've had our ups n downs, but I feel bad when I talk about my

experience because there are people out there who didnt find out their

child had it til they were 1 or four. People with kids or relative or

other disorders responses were always competitive but I've found that

people with kis with CF are alot more sympathetic, cos they've been

through it and more, and sometimes less. But at the end of the day

theres no competition.

3 days before I left PMH Craigs best mate's daughter came up with ehr

litle boy born 9 days later. We had got to know ea other when pregnant.

She was a single Mum at 20 and whenI said you didnt have to come all the

way up here , she said yes I did, I knew straight away. Jayden has CF

too. We have been very lucky to have ea other but I feel bad, cos I

found out at 2 weeks and Jayden was home for 5 weeks. Emma must've been

going out of her head, as you have probably heard it before, your Dr

saying ' you're a new Mum, its nothing!'

I am sorry to give you such a long version of my experience, but this is

the shortest I could get it down to.

Half the stuff I've heard you all writing, I dont even know about, but

I have heard at PA etc off the internet.

I ALSO feel terrible that it costs you all so much. Australia truly is

a lucky country, we have a government funded Medicare system. If you go

into a Public Hospital for anything it doesnt cost anything (excluding

elective surgery) Car accidents etc are funded by the transport

accident commision, people who dont work can get the DOLE unemployment

benefits, whether they try to get work or not. We have a single mothers

pensionetc and kids born with disorders ie CF have a health care card

just like single mums and people on the dole. So mos things only cost

$3.70, If you order meds through PMH you sometimes get 4 bottles for

$3.70. Craigs work pays top cover private health insurance. We had to

pay $275 for his Neb and got $180 back off insurance. The gov also has

a system where they pay for your petrol every time you take your child

to PMH. Im so sorry guys.

What I'd like to see is a screening program when you get married -

genetic testing. Althoug like , many kids over here are born with

unmarried parents. But it's food for thought.

is now 20 months weighs nearly 10kg and neddless to say is the

cutest thing Ive ever seen. He has me laughin all day long.

He has a best friend Chloe who has jsut turned 1, they are the same size

and she is now HEAVIER than him. The hardest part for me has been

catching up on weight! He's had bouts of vomiting, he's had two upper

resp inf's, but nothing serious yet! touch wood.

He has very thick cream (12g fat in 20ml) in every feed and bottle. It

took a long time for him to tolerate cream, he used to just vomit it

back up months ago. He also has Polyjoule (powdered cals) in his

bottles. and is in fact still on infant formula because it has more fat,

vits and mins than follow on formulas.

I get fed up with people commenting on him having a bottle at his age

etc, but hardly ever have to answer back, because I have some very

faithful friends who just snap when i get embarrassed. They end up

embarrassing the crap out of any smarty. They are also very respectful

of all my wishes - washing hands etc, they always ring to say if their

kids are sick. Wish Craigs family were that compliant!

Better sign off there, your eyes will be gettin sore

Thanks for such a great support group.

Lee and (20m wcf) Schaeche

Bunbury Wa

Australia

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