Re: Rant n Rave/n

[Guest guest]

n,

Whaaaaaaaat? You are a tall woman, you could tap Arnie on the

head, ;-) ! And please, don't ever shut up, it would be quiet boring

around here, :-)

Love to you and hugs, although, I don't think I could reach to kiss

you, I am only 5'4.5 " .

> Rant n' Rave--I think that was a very good rant and rave and I feel

the same

> way--not dead yet but having major complications, and I do mean

major despite

> my amasing height and astonishing weight and pink cheeks (facial),

or appearan ce of being as we say in Spanish of being " rosada y

gordita,; " I am just plain

> rosa (as my surname, maiden one) implies, and definitly " gorda, "

which means in

> Spanish " chubby! Now I was not chubby until I had seven joint

eplacement sur

> geries and major osteoarthritis set in, but I am not the 120 lbs. I

was before

> then either; my previous all time high was 134 at 5' 10.5 inches

tall! The joys of aging, which as Kathy , wcf, at 59, says

rightly, are a privilege denied to many. I am 66 and try hard not to

rant and rave too much,

> even about my youngest who is 38--I think--wcf, and doing very

well. I try to

> be thankful, but it is hard and the s Hopkins classification of

cystic fibrosis as being " classic, " " non-classic, " or " cf-related! "

does not really

> help. I have always assumed that the difference, regardless of

mutations was

> in gene penetration, but I had best shut up for now, anyway.

> I love to you all,

> n Rojas, who appreciated the previous Rant n Rave!

> > I have seen references made a couple of times now stating that

> > doctors have told parents that their child has a " mild "

> > or " moderate " case of CF. How can this be possible? Thats almost

> > like saying you are only kind of pregnant. I understand that CF

> > effects everyone differently and to different extremes. However,

I

> > find it hard to beleive that there are different levels. How can

you

> > have cf " mildly " ? You may not have extreme symptoms, but would'nt

> > you think that there is a difference between symptoms and the

actual

> > disease. This bugs me. I would hate to think the doctors are

saying

> > this to help ease the pain for the parents/child which I think is

> > misleading. lived with this disease for 9 years with no

> > complications, no severe or extreme symptoms, so does this mean

that

> > she went from a " mild case " to a more " moderate case " , whats

next?

> > Will she graduate to " well its not that bad yet " case which will

> > eventually lead to " theres no stopping it now " case? I just feel

> > like if a doctor tells someone that their case is mild, then he

is

> > telling them that #1, it won't get any worse and #2, there is a

> > chance that it will get better. Its just crazy.

> >

> > I could go on for another 2 hours, but will spare you all. Must

be

> > pms. Hmmm, no wonder my husband went out of town to go fishing

for

> > the weekend. So now you all get to listen to me rant and rave

> >

> > Thanks!

> > e

> >

> >

> >

> > -------------------------------------------

> > The opinions and information exchanged on this list should IN NO

WAY

> > be construed as medical advice.

> >

> > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

> >

> > ------------------------------------

> >

> >

> >