Second Opinions

[Guest guest]

Marcia, please see the listing of members on the LPA Medical Advisory Board

at http://www.lpaonline.org/resources_medboard.html

Members of the LPA Medical Advisory Board are available to provide

physician-to-physician consultation.

I'd suggest that your physician start with one of the following individuals:

M. i, M.D., Ph.D. (chairman)

Clinical Genetics Center - Room 353

University of Wisconsin

1500 Highland Avenue

Madison, WI 53706-2280

Telephone: (608) 263-6874

Fax: (608) 263-3496

Kathleen S. " Dee "

Clinical Coordinator

Greenberg Center for Skeletal Dysplasias

s Hopkins Hospital - Blalock 1012-C

600 North Wolfe Street

Baltimore, MD 21205

Telephone: (410) 614-0977 or (410) 614-2594

Fax: (410) 614-2522

E-mail: deedee@...

Good luck!

Cara Egan

LPA Public Relations

> From: Marcia Frederick <emdwarf@...>

> Date: Wed, 19 Sep 2001 18:58:24 -0700 (PDT)

> dwarfism

> Subject: Second Opinions

>

> Hello,

> I'm Marcia, mother of 3 year old achon . 's

> neurologist noticed " slippage " in her neck when taking

> annual X-rays. When she looks up, her vertebrate

> seems to slip out of place. We have a MRI scheduled

> for Monday. Her doctor said that if there is tissue

> build up then she will need a fusion. If no tissue

> build-up then we will monitor her closely. We would

> like to know of specialists who would look at her MRI

> and X-ray and offer a second opinion if surgery is

> recommended. We live in Gadsden, AL and 's

> neurologist is at Children's Hospital in B'ham. He is

> a wonderful doctor and did 's decompression at 4

> months. He sees over 100 dwarfs and is familiar with

> dwarfism, but we want to be sure since this, according

> to him, would be a major operation.

> Also, what is the costs for reviewing films?

> also has kyphosis (sp) and is braced for that.

> Several times her ortho has talked about the

> possibility of a fusion to correct that. She will be

> evaluated for that in October.

> Any help or suggestions will be greatly appreciated.

> Marcia.

>

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[Guest guest]

I wondered about second opinions. You sound very informed, Sassy and I'm sure you did a second or more. >>> I always recommend a second opinion~ goes 2 the old saying "2 minds R always better then 1". Oh I had more then a few opinions on mine. 3 within my area point blank looked at my x~rays and said "beyond my capability"... then there was doctor 4, 5 & 6 which I just flat out did NOT LIKE~ their manner of speaking about the issue or their bedside manners with regards to patients SUCKED.... 7 was a maybe and 8 a huge NO NO... (3 minute man as I called him!) 9th was my specialist that's known to "fix other doctors screw-ups" but it was his work ethics, the way he dealt hands on with his patients before me but more importantly... I was actually a person & NOT a chart! I had 50 questions & he had 50 answers.... plus give me options ABC I hadn't even considered and he wasn't worried about lunch or "fluffin his wallet" with the next case! Some doctors are just flat out MONEY HUNGRY and even through there's a simplier "CHEAPER for the patient" solution to be had... they'll automatically start at surgery.... and and and big ticket collections to ensure they can afford to pay their malpractice insurance I suppose! Some trust their doctors so much... they'll never question their judgement... and that'll hopefully not come to be a huge mistake for them.

[Guest guest]

I've searched the past posts for ideas of what type of physician to see for a

second opinion on the treatment of plagiocephaly. It appears most people go to

a neurosurgeon or cranial plastic surgeon. Could anyone that got a second

opinion from either one share their experience? I'm curious what insight or

solutions these specialists may have.

Thanks!

Jocelyn

ton, Illinois