Re: We are going to continue this diet......

[Guest guest]

Eileen....

I almost thought I had accidently replied to the wrong person earlier today.

You are posting under two different e-mail/screen names, right? You are also

" mrsrous " ? I realized your earlier post today was from another address and

thought I might owe someone an apology.

I'm glad you have the plain Nystatin now. I think you would just have been

spinning your wheels and not getting anywhere if you kept the other on board.

He will likely not feel well.... and it's not uncommon for a kid to lose weight.

Maybe some of the other parents here who have experienced the same will post

some encouraging messages to you.

I'm glad to hear you are so determined. Hopefully the DAN doctor will be more

supportive and helpful. Just don't listen to the other one.

Try not to get too worried and I would really try NOT to force feed him....

except you do need to keep fluids going.... so if you have to give him a

teaspoon at a time of diluted juice in a syringe, then so be it.

Did I ask you before if he likes frozen things?? Would he go for a popsicle? You

can do a fruit puree... or even a combo of fruit and a bit of squash pureed and

freeze it into a popsicle. If he even took a few licks that would be positive.

There is a recipe on pecanbread.com for peanut butter brownies..... I would

highly recommend you try making those ... but with almond butter, instead of

peanut butter at first. They are EASY to make.... and I would be shocked if he

didn't like them. I have to hide them from my husband and teenage son (who

aren't on SCD).

No more raisins, though.... okay? Not just yet.

Do you have enough help coming in and giving you a hand with the babies? Is your

husband supportive of the diet?

Patti

We are going to continue this diet......

I appreciate all of your great advice. if i wasn't seeing such great

changes in my son already i would consider quitting until there was

a better time but i can't go back to the way he used to eat. that

would be like giving heroin to a heroin addict. yes, i am stressed

with 2 infants under 4 mos old and all of us being sick with a cold

& ear infections this week but we made a decision to do this diet

for our son and try to make him well. he has to be one of the

pickiest autistic kids around but we are going to figure this out. i

have the raw compound form of nystatin which we will mix with a

small amount of juice starting tonight. i finally found friendship

farmer's cheese after calling 10 places. i am freezing a lot of

legal stuff that he isn't eating so i feel i have more ducks in a

row now. my pediatrician finally gave me the diagnosis " failure to

thrive " so we might be able to include a nutritionist or dietician

in on the therapy with the feeding team for picky eaters. the

pediatrician said he could still lose more weight because he has

more reserves but we should start to get concerned if he loses 2

more pounds. he is down to 26# now.

we are scheduled to see a DAN doctor next tuesday 10/10 so we will

be getting set up with supplements. this DAN doctor is the one who

told me to get my son started on the SCD before the appointment. is

it necessary to do a DNA profile for $300. what would be the benefit

of that test? we already did urine, stool and blood tests.

[Guest guest]

I don't know who your dan is, but just be honest with them about what is

financially possible for you. That's what my dan has said from the start.

I can't give my opinion on doing a dna test because she didn't even feel

that we needed that. But, she has always said that she will advise me on

what she feels needs to be done, and we are to let her know if something

just is not financially possible. That will also help your dan to

prioritize tests, treatments, supplements, ect.

Meleah scd 05/06

iel 3.5yrs. asd, Ethan 5yrs., Mark 18mths.

We are going to continue this diet......

>I appreciate all of your great advice. if i wasn't seeing such great

> changes in my son already i would consider quitting until there was

> a better time but i can't go back to the way he used to eat. that

> would be like giving heroin to a heroin addict. yes, i am stressed

> with 2 infants under 4 mos old and all of us being sick with a cold

> & ear infections this week but we made a decision to do this diet

> for our son and try to make him well. he has to be one of the

> pickiest autistic kids around but we are going to figure this out. i

> have the raw compound form of nystatin which we will mix with a

> small amount of juice starting tonight. i finally found friendship

> farmer's cheese after calling 10 places. i am freezing a lot of

> legal stuff that he isn't eating so i feel i have more ducks in a

> row now. my pediatrician finally gave me the diagnosis " failure to

> thrive " so we might be able to include a nutritionist or dietician

> in on the therapy with the feeding team for picky eaters. the

> pediatrician said he could still lose more weight because he has

> more reserves but we should start to get concerned if he loses 2

> more pounds. he is down to 26# now.

>

> we are scheduled to see a DAN doctor next tuesday 10/10 so we will

> be getting set up with supplements. this DAN doctor is the one who

> told me to get my son started on the SCD before the appointment. is

> it necessary to do a DNA profile for $300. what would be the benefit

> of that test? we already did urine, stool and blood tests.

>

>

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

> _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

> websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

[Guest guest]

Mrsdeals,

I read your lastest post.. have been following your posts on startingthe diet

with your son. Boy have you gone thorugh it! I just wanted to let you know

that I have had some stuff with my duagther starting this diet.. a little

different, becuase she is pretty agreeable when it comes to food, but she is so

limited .. can't tolerate foods, has allergies, etc.

Anyway, we got to a place where we had lost so much wieght (5%) of her

body wieght, that I was at the point where something had to give, or we had to

stop SCD. Like you, I didn't wan to. So what I ended up doing was

compromising. I gave her some foods that I knew weren't ok for her.. but were

legal.. and mmight even impied progress.. but in the end would get us where we

wanted to be: staying on the diet and healing. It's just my two cents worth..

I gave my daughter more honey than I should, and then some veges that she

wasn't digeting properly ( coould see some in BM's) adn stuff like that. Then

we went back and " did it right when her tastes could tolerate more foods. just

an idea. And maybe you have already done this. good luck and we will be

praying for your family. Hope you all get over your colds.

Ellen Mom of Emma age 3 SCD over 60 days