Introducing P3

[Guest guest]

We spent 5 weeks in all in Perth 2 weeks at King womens hospital and 3

weeks at PMH Princess Margaret Hospital for kids.

When we got home he wasnt even 2kg! (4lb)

I've/We've had our ups n downs, but I feel bad when I talk about my experience

because there are people out there who didnt find out their child had it til

they were 1 or four. People with kids or relative or other disorders responses

were always competitive but I've found that people with kis with CF are alot

more sympathetic, cos they've been through it and more, and sometimes less. But

at the end of the day theres no competition.

3 days before I left PMH Craigs best mate's daughter came up with ehr litle boy

born 9 days later. We had got to know ea other when pregnant. She was a single

Mum at 20 and whenI said you didnt have to come all the way up here , she said

yes I did, I knew straight away. Jayden has CF too. We have been very lucky to

have ea other but I feel bad, cos I found out at 2 weeks and Jayden was home for

5 weeks. Emma must've been going out of her head, as you have probably heard it

before, your Dr saying ' you're a new Mum, its nothing!'

I am sorry to give you such a long version of my experience, but this is the

shortest I could get it down to.

Half the stuff I've heard you all writing, I dont even know about, but I have

heard at PA etc off the internet.

I ALSO feel terrible that it costs you all so much. Australia truly is a lucky

country, we have a government funded Medicare system. If you go into a Public

Hospital for anything it doesnt cost anything (excluding elective surgery) Car

accidents etc are funded by the transport accident commision, people who dont

work can get the DOLE unemployment benefits, whether they try to get work or

not. We have a single mothers pensionetc and kids born with disorders ie CF

have a health care card just like single mums and people on the dole. So mos

things only cost $3.70, If you order meds through PMH you sometimes get 4

bottles for $3.70. Craigs work pays top cover private health insurance. We had

to pay $275 for his Neb and got $180 back off insurance. The gov also has a

system where they pay for your petrol every time you take your child to PMH. Im

so sorry guys.

What I'd like to see is a screening program when you get married - genetic

testing. Althoug like , many kids over here are born with unmarried

parents. But it's food for thought.

is now 20 months weighs nearly 10kg and neddless to say is the cutest thing

Ive ever seen. He has me laughin all day long.

He has a best friend Chloe who has jsut turned 1, they are the same size and she

is now HEAVIER than him. The hardest part for me has been catching up on

weight! He's had bouts of vomiting, he's had two upper resp inf's, but nothing

serious yet! touch wood.

He has very thick cream (12g fat in 20ml) in every feed and bottle. It took a

long time for him to tolerate cream, he used to just vomit it back up months

ago. He also has Polyjoule (powdered cals) in his bottles. and is in fact still

on infant formula because it has more fat, vits and mins than follow on

formulas.

I get fed up with people commenting on him having a bottle at his age etc, but

hardly ever have to answer back, because I have some very faithful friends who

just snap when i get embarrassed. They end up embarrassing the crap out of any

smarty. They are also very respectful of all my wishes - washing hands etc,

they always ring to say if their kids are sick. Wish Craigs family were that

compliant!

Better sign off there, your eyes will be gettin sore

Thanks for such a great support group.

Lee and (20m wcf) Schaeche

Bunbury Wa

Australia

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