Re: Re: Summary of Board/response to Rosemary's post!

[Guest guest]

GOOOOOOOOOOOOOOOOOOOOOOOOOO, Rosemary!

n--like who else?

Re: Re: Summary of BoardRESPONSE

> I agree with Jan. Also, what makes this group unique is the friendships

that

> have devoped. If we just wanted CF information we could go to a research

> site or medical website. At this e-group we are all here for each other.

We

> give each support and since many of us have been on this e-group for a

couple of

> years the familarity makes it nicer and allows us to " Joke " . I wouldn't

trade

> the warmth of this group for anyother list.

>

> If you are looking for strictly information there are many sites. I like

the

> people here and the mix of information, experiences, articles, research

and

> support.

>

> Just me 2 cents........

>

> Rosemary in NY with 3 children (13, 11 and 7)

> with CF. I have a dog named TOBI and have

> coined the phrase " BREATHE DAMMIT "

>

>

>

[Guest guest]

,

no hard feelings at all! some of us just feel like the banter is a life line

when we have had a hard time of it.

I was actually wondering if anyone would be interested in or knows of a site

that deals exclusively with the different mutations and info on each one. just

a another idea.........

Mom of , 5 with CF and one on the way

Check out our group at http://groups.msn.com/TeamJane

Re: Re: Summary of BoardRESPONSE

>

>

> > I agree with Jan. Also, what makes this group unique is the

friendships

> that

> > have devoped. If we just wanted CF information we could go to a

research

> > site or medical website. At this e-group we are all here for

each other.

> We

> > give each support and since many of us have been on this e-group

for a

> couple of

> > years the familarity makes it nicer and allows us to " Joke " . I

wouldn't

> trade

> > the warmth of this group for anyother list.

> >

> > If you are looking for strictly information there are many

sites. I like

> the

> > people here and the mix of information, experiences, articles,

research

> and

> > support.

> >

> > Just me 2 cents........

> >

> > Rosemary in NY with 3 children (13, 11 and 7)

> > with CF. I have a dog named TOBI and have

> > coined the phrase " BREATHE DAMMIT "

> >

> >

> >

[Guest guest]

; two persons help us on this list: Torsten Krafft, who is busy,

understandably,

with a new one and a daughter with cf--and Albright, who is the

list owner

and moderator. Her e-mail address is: ma8169@..., and she is always

there and helpful despite coping with cf at home as well. We are glad that

you have

joined us and appreciate good suggestions--some we act one; some we forget

about

in the course of coping with cf, and some we sort of remember six months

later, but

can always be relied upon, even if Torsten is busy--honest!

Thank you for joining us!

Love to you and to yours,

n Rojas, wcf, mom of 3 very adult " kids, " youngest of whom has cf, too

Re: Re: Summary of BoardRESPONSE

> >

> >

> > > I agree with Jan. Also, what makes this group unique is the

> friendships

> > that

> > > have devoped. If we just wanted CF information we could go to a

> research

> > > site or medical website. At this e-group we are all here for

> each other.

> > We

> > > give each support and since many of us have been on this e-group

> for a

> > couple of

> > > years the familarity makes it nicer and allows us to " Joke " . I

> wouldn't

> > trade

> > > the warmth of this group for anyother list.

> > >

> > > If you are looking for strictly information there are many

> sites. I like

> > the

> > > people here and the mix of information, experiences, articles,

> research

> > and

> > > support.

> > >

> > > Just me 2 cents........

> > >

> > > Rosemary in NY with 3 children (13, 11 and 7)

> > > with CF. I have a dog named TOBI and have

> > > coined the phrase " BREATHE DAMMIT "

> > >

> > >

> > >

[Guest guest]

, I don't think that you created any bad feelings. :-) I thought you were

asking for our oppinions. Hence, we all chimed in. :-) My post was just to

say that I like the freedom of talk that this list provides after having been on

several lists that allowed topic related posts only.

Dawn mom of 4, 7 and under, the youngest wcf