We found out Mikayla's aspirating...

[Guest guest]

She's been having trouble weaning from her bottle. She just doesn't

take any volumes from her sippy, so before beginning behavior mod

therapy, her CF Dr. ordered a video swallow. OMG - she was

aspirating with her unthickened formula and also with thickened

formula. She's always struggled with her bottle and now we know

why! We've taken her off all oral fluids and now we'll feed her

peptamin exclusively through her G-Tube. Thank God for the tubie!

We'd be in club med if we didn't have it. I'm disappointed that

it's taken an entire year to find this out. Poor thing - no wonder

she hasn't been fond of fluids. Has anyone else delt with this with

a 1 year old?

Donna

Mikayla wcf (1)