Guest guest Posted August 7, 2009 Report Share Posted August 7, 2009 Hi, My son's Pediatrician referred us to Cranial Tech at his 4 month appointment on Tuesday. We have his evaluation in 2 weeks, but I can allready tell from looking at the before pictures on the cranial tech website that he will need the helmet. He looks like their examples. These past few days have been like a roller coaster, and I'm trying to keep from crying as much as possible, but it's hard! Anyways, I'm going to pull it together now. I actually have two questions for anyone who can answer them. How do most insurance companies few this procedure? For some reason our company won't tell us if they will cover the band until after he has it. We will definitely be getting it either way; I would just like to know what I can expect. On a lighter note, how do you make the bands look so cute? I see many of them that look like they've been painted or have stickers on them. Do they come that way? If not, what is safe to put on them? Thanks for any help that you can give! -Cari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2010 Report Share Posted September 23, 2010 My son just got his band yesterday and I thought it was going to be very emotional for me. Leading up to this point I have had a few breakdowns, but nothing major. And yesterday went really well. He did great with it and so that made me feel a lot better. Now, last night was rough and I am prepared for another rough night tonight, but look at it in the long term. Plagiocephaly can be cured...and yes,it is always tough to admit that your child has something wrong with them, but you have to think it could be so much worse. I work in a profession where I deal with children who have disabilities and I know it could be so much worse then plagiocephaly and torticollis. It's ok to be sad, but remember that the plagiocephaly will get better. Hang in there. I also think it's great that you joined the support group, because I think that has helped me cope a ton! > > I felt the same way at first. But then I was so relieved that there was the helmet to correct my daughters headshape. It will get easier. > > Angie (Jenna STAR grad 2003) > new to this > > > > i just found out my son will have to wear a helmet and i am having a rough time with this. yes, i know it's nothing life threatening, but i cant help but cry when i think about it. anyone else feel the same way? > thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2010 Report Share Posted September 23, 2010 I had similar emotions when I first found out my little man needed a helmet. I was distraught to be quite frank. I found out about a company that did wraps in Dallas for free and put my energy into finding a company that would help my son locally and make his band a fashion statement. Really, it helped. It was an outlet for my emotions and worries for my little boy. Successfully, I found Vinyl Touch Graphics in Illinois and in just a few short months from when this journey began, we now have a team on board who has started a not for profit organization to wrap bands here in Illinois, and even out of state I know. They were eager to hear our story and see how they could use their skill to help my son and other plagio kids. Anybody that has dealt with them can tell you what a great group of guys they are. I get overcome with emotion thinking back to the nights I spent when my son was first diagnosed searching online for information about plagio and scrolling through page after page of pictures and reading other peoples stories, crying. We are just one week before he graduates from his second band, and in the meantime his twin also was banded and graduated, as her case was much milder. The support I felt from the team at Vinyl Touch Graphics was overwhleming. For a company who had never even heard of plagio to do what they have done, I can't even put it into words. I took my energy and focused it into something more productive, and the day I heard from VTG they started their not for profit was a much brighter day for me. I am happy to say that plagio and helmets will soon be a part of our past but I will say it is not a far stretch to think back to where you are now. This is just a means to an end! Jen McMillin Re: new to this My son just got his band yesterday and I thought it was going to be very emotional for me. Leading up to this point I have had a few breakdowns, but nothing major. And yesterday went really well. He did great with it and so that made me feel a lot better. Now, last night was rough and I am prepared for another rough night tonight, but look at it in the long term. Plagiocephaly can be cured...and yes,it is always tough to admit that your child has something wrong with them, but you have to think it could be so much worse. I work in a profession where I deal with children who have disabilities and I know it could be so much worse then plagiocephaly and torticollis. It's ok to be sad, but remember that the plagiocephaly will get better. Hang in there. I also think it's great that you joined the support group, because I think that has helped me cope a ton! > > I felt the same way at first. But then I was so relieved that there was the helmet to correct my daughters headshape. It will get easier. > > Angie (Jenna STAR grad 2003) > new to this > > > > i just found out my son will have to wear a helmet and i am having a rough time with this. yes, i know it's nothing life threatening, but i cant help but cry when i think about it. anyone else feel the same way? > thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2010 Report Share Posted October 3, 2010 I felt the same way too. My daughter has been in her band for almost 3 weeks now and she is doing very well. Adjusted very well and I am happy we went through with it. It's not as bad as I thought it would be, actually it's not bad at all. Of course I can not wait until she's out of it, but I know we have made the right decision. Good luck. On Sat, Sep 25, 2010 at 12:34 AM, vwherman <vwherman@...> wrote: I was very upset when I found out my baby's head wasn't rounding out. Now that I made the decision for the Doc band I am OK. I did feel the same way as you but decided that this is such a short time in the band compared to the rest of her life. I would feel worse if I didn't do anything and she grew up with that head. >> i just found out my son will have to wear a helmet and i am having a rough time with this. yes, i know it's nothing life threatening, but i cant help but cry when i think about it. anyone else feel the same way? > thanks!> Quote Link to comment Share on other sites More sharing options...
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