Scheduling the tp/ict and a note to

[Guest guest]

The nurse from the doc in Cinci called me yesterday. We are going

to shoot for scheduling the surgery for the end of sept. That seems

like a long time away, Ihope I can handle the wait. However, I have

to have several tests and some immunizations and will need the time

to get my kids settled with school so that seems to be the

earliest. Its also near our birthday, my husband and I have the

same birthday 9-25. Used to be a birthday extranvagaza when we were

younger, but after 25 years the gala wears thin.

I hope this is the right decision to make. It seems so final, you

know, no turning back. But then again how many surgeries have I

already endured to no relief from the pain. That will be my third

MAJOR surgey in 6 months again. Thats kind of scarey because I dont

know if my body had a chance to recover from the first surgery last

october before having the second in april and now one in sept. It

does seem like so very much. Well, its just a tentative time frame

anyway. I haven't heard from any of the docs.

I am so sorry that you were so terribly disappointed by the

doc in Boston. Did he even do so much as a biopsy while he was down

there. The EUS will just tell them what the outside of the panc

looks like. Without a biopsy how does he know what going on

inside. Also the only way to see the ducts is via a MRCP or ERCP

and evidently he cant provide that.

I think you should continue to persue this. There is abosolutely no

reason why you sit there and suffer. Perhaps going to IU and seeing

Lehman, if you can, would be your best bet. He is reknowned as one

of the best endoscopist in the country. I had one of the best

enoscopist in the country as well and I dont think I would have had

the same outcome had it not been for him, Rob Hawes. He is the one

who said I needed the tp/ict last february, he was right all along.

If the doc in Cinci had just listened to him then, things would be a

lot different for me now. The Cinci doc bases his decision on

pathology only and he did not get that until have I had the partial

resection last spring. I hope I have enough islet cells left.

I haven't responded much to the post, although I do read them. I

have been feeling very sick lately. More nausea and pain. , I

know this is difficult for you and I'm sorry. It seems we all have

had to fight at some point for an accurate diagnosis and treatment.

Your PCP will base her decision on whether to continue prescribing

meds or not on you not what some other guy said. She should know

you well enough by now,

Good luck and please keep me posted on what is going on.

Warmly,

Chrissy