Mike - Price watch...Which Country?????????????

[Guest guest]

Mike,

Just better ask that people write what country they are from as we are

from all over the world and of course have different prices and

different meds.

(Australia)

Re: Price Watcher List

We get our Exacta-med syringes from Baxa corp, but they are almost

$.27 a piece.

What is Nestle AdditionsFood additive? We might be interested in

splitting this with you. Is it like Scandishake or Scandical?

We get our medicine cups from Sams too.

We buy Pediasure at Walgreens. Not cheap, but they carry the fiber

ones.

Thanks for the info on the Bubbles the Fish mask and Control III.

We want to get a mask but our home health care company says they do

not carry it. I will just order one.

It is almost as if someone needs to give a parent of a newly

diagnosed cf child a supplies list, just like they do when you start

school each year. It is so hard to track all of this stuff down on

your own. So much trial and error.

Thanks for the great info. I will pass on your e-mail to my

husband. I know you guys met at the CFF event. He doesn't post on

the list, but reads the digests occasionally.

How is your son doing?

Sara - mommy of Zach 21 months soon

> I had an idea that as a group we should try to maintain a price

list of

> common things we need to purchase.

>

> Since my son is young, I can list the items that I'm interested in

finding

> the best price on, and where I last purchased them. Most of the

items I'm

> listing below are not covered by my insurance.

>

> Would anyone else care to add to or update it? Is there something

else out

> there that makes your life and your child's life easier.

>

>

> Oral Syringes

>

> Exacta-med - I can't find these at a good price

> Children's Hospital St. Louis - $.25 a piece

>

> Kendall Mono Jet - 3 ML oral syringes with tip cap

> Purchased from: Health Related Products

> 500 per case = about $.12

>

> Medicine Cups * Used for apple sauce and enzymes

>

> 2 OZ cups Sam's Club Store - Lids are also available

>

> Nestle Additions

> Food additive:

> ~ $100 for a case of 4 cans direct from Nestle

>

> ~$38 plus shipping from Apria

>

> I'd like to order from Nestle and split the case with

another

> family or two - Near St. Louis

>

> Pedi-a-Sure

>

> We purchased at our local Target until they stopped

carrying it

> 6 Cans - at about $1.65 per can

>

> Nebulizers

>

> Pari-ProNeb Ultra - 5 year warranty

> www.americanallergysupply.com

<http://www.americanallergysupply.com/>

> $94.90

>

> Pari-ProNeb Ultra - 3 year warranty

> www.americanallergysupply.com

<http://www.americanallergysupply.com/>

> $88.90

> http://www.respertise.com/pronebultra.html $98.25

> www.ebay.com <http://www.ebay.com/> - Some have been listed New

in Box for

> around $50

>

> Pari-ProNeb Filters - Set of 5

> www.americanallergysupply.com

> <http://www.americanallergysupply.com/> $15.00

>

>

> Nebulizer Kits

>

> *I only use Pari Pro Neb LC

> Pari ProNeb LC -

> www.americanallergysupply.com

<http://www.americanallergysupply.com/>

> $14.90 (They've never asked for a script)

> http://www.cfservicespharmacy.com/about_cf_services/price_list/

$11.00

> (Requires a Script)

> Grandma Bev's Pharmacy $11.00

>

>

> Nebulizer Mask

>

> Bubbles the fish

> www.americanallergysupply.com

> <http://www.americanallergysupply.com/> $2.00

> http://www.respertise.com/bubfisaerped.html $1.75

> Grandma Bev Pharmacy $1.45

>

> Control III

>

> Grandma Bev's Pharmacy 240ML $15.45

>

>

> PT Cups

>

> I get them from Clinic - No Cost

>

>

>

>

>