Re: Out of pocket yearly cost (after insurance)

[Guest guest]

Hi ,

welcome to the list! Sorry to hear about the probable diagnosis, but

we are all here to help you.

The number of doctors visits and prescriptions can vary, depending

on the course of the disease. But the social worker of your CF

center (and Grandmom Bev from this list) should be able to give you

some pieces of advice.

I am a dad too, my daughter is 6 and doing very well. We live in

Germany and I work as head of fixed income for a life insurance

company.

Peace

Torsten, dad of Fiona 6wcf

[Guest guest]

#1) My email didn't get fully displayed in the prior message but it

is frankkatina at yahoo dot com . My instant messenger ID is also

frankkatina . Feel free to add me as a buddy.

#2) Ok, I will try contacting the social worker at the hospital to

find out the estimate of the costs.

#3) I think I would like to meet/chat other parents of CF children in

my area. So, if you are in NY, NJ area, let me know.

#4) My hobbies include fishing, religion, computer games,

investments, betta splendens, visiting parks.

#5) I am married with 3 children, 7, 2 and the new baby. The baby

boy was born with the meconium illeus, pellets in the intestine, high

level of something in the blood and one gene was already found.

#6) I work as a corp. credit analyst for an insurance co in NY. My

wife is housewife. We have very strong faith and hope that all will

be well, God willing.

Once again, feel free to email me. Remember, this message board

doesn't allow us to post the email link, so if you want to let others

know yours, do it like me frankkatina at yahoo dot com.

> Hi everyone,

>

> I am and my newly born baby boy most likely has CF. So, I am

> joining you guys.

>

> I do have health insurance but I would like to know if you could

> provide me with a rough estimate of how much I could end up

spending

> a year in health related matters. My insurance is with Aetna, which

> will cover " all expenses " but will also charge a co-pay of $35 per

> doctor specialist visit ($15 for non-specialist) and a co-pay of

$10

> for 90 day supply generic mail order.

>

> Basically, I want to get a rough estimate of how many doctor

visits

> I can expect to make, how many co-pays for mail order generics and

> other medical costs...

>

> Thank you for you kind attention,

>

>

>

> P.S. I am from Brooklyn, NY; am in the field of finance and run the

> most active " betta splendens " club in yahoo. For private talk, feel

> free to email me at frankkatina@y...

[Guest guest]

,

At a minimum you should expect quarterly clinic visits. We received free

enzymes for 2 years from one of the drug companies.

The most common CF gene normally requires enzymes. It is also fairly common

to be on Prevacid or Prilosec. Both are in liquid form and have a 30 day

shelf life. So expect at least 1 prescription refill per month. The program

the supplies the enzymes also provides a liquid vitamin.

With each cold, flu, or allergy our clinic puts my son on Antibiotics as a

just in case.

And as Joe mentioned, I try to do every PT and all the Meds when I can.

Find out of there is Parents Group in your area and attend the CFF fund

raisers. This gives you some one local to talk with.

I'd be happy to speak with you. Send me a private email if you want.

Mike V.

Father to 21 m w/cf & Micaela 4 w/blue eyes

_____

From:

Sent: Thursday, November 06, 2003 11:43 AM

To: cfparents

Subject: Out of pocket yearly cost (after insurance)

Hi everyone,

I am and my newly born baby boy most likely has CF. So, I am

joining you guys.

I do have health insurance but I would like to know if you could

provide me with a rough estimate of how much I could end up spending

a year in health related matters. My insurance is with Aetna, which

will cover " all expenses " but will also charge a co-pay of $35 per

doctor specialist visit ($15 for non-specialist) and a co-pay of $10

for 90 day supply generic mail order.

Basically, I want to get a rough estimate of how many doctor visits

I can expect to make, how many co-pays for mail order generics and

other medical costs...

Thank you for you kind attention,

P.S. I am from Brooklyn, NY; am in the field of finance and run the

most active " betta splendens " club in yahoo. For private talk, feel

free to email me at frankkatina@...

[Guest guest]

,

All we'll be well, you have a huge advantage, you know that he has

CF. If he was born with meconium Illeus then there is a 99.99%

chance that he has CF. Our senior resident is 66 years old has three

children and CF, you will be hearing from her. On another list we

have a mom, 43 wcf and doing great, so on and so forth. We are all

here for the same reason and although CF is something that we wish we

never dealt with, it also brought us together, and what a bunch this

is group is!!

Welcome, don't worry about expenses, because our meds are very high

and almost none of them are generic, sorry to inform you of that, but

we are very lucky to have them and to be able to acquire them. Learn

as much as you can and always be a step ahead of the doctors

mom of a 10 wcf diagnosed at almost 9 years old and with

some lung damage battling Pseudomonas right now, Venanzio 7 nocf and

Pepe 3 nocf

> > Hi everyone,

> >

> > I am and my newly born baby boy most likely has CF. So, I

am

> > joining you guys.

> >

> > I do have health insurance but I would like to know if you could

> > provide me with a rough estimate of how much I could end up

> spending

> > a year in health related matters. My insurance is with Aetna,

which

> > will cover " all expenses " but will also charge a co-pay of $35

per

> > doctor specialist visit ($15 for non-specialist) and a co-pay of

> $10

> > for 90 day supply generic mail order.

> >

> > Basically, I want to get a rough estimate of how many doctor

> visits

> > I can expect to make, how many co-pays for mail order generics

and

> > other medical costs...

> >

> > Thank you for you kind attention,

> >

> >

> >

> > P.S. I am from Brooklyn, NY; am in the field of finance and run

the

> > most active " betta splendens " club in yahoo. For private talk,

feel

> > free to email me at frankkatina@y...

[Guest guest]

My insurance is with Aetna, which

> will cover " all expenses " but will also charge a co-pay of $35 per

> doctor specialist visit ($15 for non-specialist) and a co-pay of

$10

> for 90 day supply generic mail order.

We have Aetna as well. Last year we sent $10,000 on medical care.

$6,000 in medical insurance premiums. $4,000 in copays, surgery for

polyps, hositalizations (not due to CF) and meds. He has a " mild "

case of CF - whatever that is.

Actually Aetna has been OK as far a a carrier goes. They pay on time

and are retty helpful on the hone.

jan

[Guest guest]

Welcome ,

I hope that your new son does not have CF, but if he does an early diagnosis

is the best. My daughter was 5 when we found out and we spent all those

years treating everything from asthma to giardia. If we had known sooner we

could have addressed the digestion problems sooner and she would have been

more healthy younger. Take one day at a time and live each day to the

fullest. Children that have Cf have a very unique outlook on life in

general and that is very refreshing. I would never trade places with anyone

else and give up the years I have had so far with my youngest daughter. She

has taught us allot. We are here for you no matter how silly a question

might seem. It helps to talk to others who have walked down the path

before.

Tina W., mother of , almost 18yoa wcf

Out of pocket yearly cost (after insurance)

Hi everyone,

I am and my newly born baby boy most likely has CF. So, I am

joining you guys.

I do have health insurance but I would like to know if you could

provide me with a rough estimate of how much I could end up spending

a year in health related matters. My insurance is with Aetna, which

will cover " all expenses " but will also charge a co-pay of $35 per

doctor specialist visit ($15 for non-specialist) and a co-pay of $10

for 90 day supply generic mail order.

Basically, I want to get a rough estimate of how many doctor visits

I can expect to make, how many co-pays for mail order generics and

other medical costs...

Thank you for you kind attention,

P.S. I am from Brooklyn, NY; am in the field of finance and run the

most active " betta splendens " club in yahoo. For private talk, feel

free to email me at frankkatina@...

[Guest guest]

Welcome . I'm sorry that for the circumstances that have forced you to

join our group. The frequency of hospital stays, doctor's visits, medications,

etc. all depend on how your son's cf manifests itself, where you live, and your

insurance.

Our Pattimae (3 today with cf) is relatively healthy. We see our cf center

every three months, at a $10 copay. Her meds consist of Zantac, for reflux,

Reglan, for slow emptying stomach, Pancrease MT4, enzymes for digestion, vitimin

K, and Albuterol Sulfate and Saline, for breathing treatments. All of this is

somewhere in the neighborhood of $100/month with our prescription card. Every

thing we get is generic except for the Pancrease as you don't want generic

enzymes due to them not working well. We also have her on some alternative

therapies that cost around $120/month. She also drinks around 4 cans of

pediasure a day. The generic brand we use costs $7.25 a six pack. By the

Grace, she's only been in the hospital once upon diagnosis. The hospital

forgave what the insurance didn't pay due to her diagnosis of a chronical

illness.

Of course, this is just us. Some have it better, some have it worse. It isn't

really a thing you can predict in your own child until you see how the rest of

their genetics kick in. Good luck to you and your family.

Dawn mom of 4, 7 and under, the youngest wcf

[Guest guest]

Mike,

Wow! This is great. We have another father online. Thanks. It

really helps to round out the discussion.

My grand daughter, Abby 23 months wcf, takes Prilosec. She gets it

in capsule form and we empty the pellets into apple sauce and feed it

to her. I didn't realise that you could even get it in a liquid.

Abby also takes liquid Zantac. Her reflux seems to be improving with

age. Knock on wood.

The best to you and yours,

Gale

> ,

>

> At a minimum you should expect quarterly clinic visits. We received

free

> enzymes for 2 years from one of the drug companies.

> The most common CF gene normally requires enzymes. It is also

fairly common

> to be on Prevacid or Prilosec. Both are in liquid form and have a

30 day

> shelf life. So expect at least 1 prescription refill per month. The

program

> the supplies the enzymes also provides a liquid vitamin.

>

> With each cold, flu, or allergy our clinic puts my son on

Antibiotics as a

> just in case.

>

> And as Joe mentioned, I try to do every PT and all the Meds when I

can.

>

> Find out of there is Parents Group in your area and attend the CFF

fund

> raisers. This gives you some one local to talk with.

>

> I'd be happy to speak with you. Send me a private email if you

want.

>

> Mike V.

>

> Father to 21 m w/cf & Micaela 4 w/blue eyes

>

> _____

>

> From: [mailto:vze238yx@v...]

> Sent: Thursday, November 06, 2003 11:43 AM

> To: cfparents

> Subject: Out of pocket yearly cost (after insurance)

>

> Hi everyone,

>

> I am and my newly born baby boy most likely has CF. So, I am

> joining you guys.

>

> I do have health insurance but I would like to know if you could

> provide me with a rough estimate of how much I could end up

spending

> a year in health related matters. My insurance is with Aetna, which

> will cover " all expenses " but will also charge a co-pay of $35 per

> doctor specialist visit ($15 for non-specialist) and a co-pay of

$10

> for 90 day supply generic mail order.

>

> Basically, I want to get a rough estimate of how many doctor

visits

> I can expect to make, how many co-pays for mail order generics and

> other medical costs...

>

> Thank you for you kind attention,

>

>

>

> P.S. I am from Brooklyn, NY; am in the field of finance and run the

> most active " betta splendens " club in yahoo. For private talk, feel

> free to email me at frankkatina@y...

>

>

>

>

>

>

>

>

[Guest guest]

Welcome, ; none of us is happy to hear of a new diagnosis, nor even a

likely one, but if you get the best

medical care AND stay on this list, you will be doing a

lot for your child(ren) and for your family. Great list.

Great moderators--and we are down right decent to one

another. I think that this is the safest space in cyberspace

for us! Love to you and to yours,

n Rojas, wcf, mom of 3 adults, youngest wcf, too

Re: Out of pocket yearly cost (after insurance)

> Welcome . I'm sorry that for the circumstances that have forced you

to join our group. The frequency of hospital stays, doctor's visits,

medications, etc. all depend on how your son's cf manifests itself, where

you live, and your insurance.

>

> Our Pattimae (3 today with cf) is relatively healthy. We see our cf

center every three months, at a $10 copay. Her meds consist of Zantac, for

reflux, Reglan, for slow emptying stomach, Pancrease MT4, enzymes for

digestion, vitimin K, and Albuterol Sulfate and Saline, for breathing

treatments. All of this is somewhere in the neighborhood of $100/month with

our prescription card. Every thing we get is generic except for the

Pancrease as you don't want generic enzymes due to them not working well.

We also have her on some alternative therapies that cost around $120/month.

She also drinks around 4 cans of pediasure a day. The generic brand we use

costs $7.25 a six pack. By the Grace, she's only been in the hospital once

upon diagnosis. The hospital forgave what the insurance didn't pay due to

her diagnosis of a chronical illness.

>

> Of course, this is just us. Some have it better, some have it worse. It

isn't really a thing you can predict in your own child until you see how the

rest of their genetics kick in. Good luck to you and your family.

>

> Dawn mom of 4, 7 and under, the youngest wcf

>

>

>