Re: CF e-zine survey. Help us to help others.

[Guest guest]

Hi all,

I'm getting some really good responses and fantastic new ideas from

the first post about the survey on potential topics for the CF e-

zine. The more responses we get, the more tailored the e-zine can be

to appeal to the information needs and wants our very special target

audience eg. CF families. If you are able to help then please take

5 minutes to fill it out and send to me.

Happy New Year

Below is an e-mail survey.

If you can help us please fill it out and e-mail to:

sarahs_mum65roses@y...

CF E-Zine Survey

Type an Y (for Yes) or N (for No) between the two brackets

eg. [ Y ] Does a member of your family have CF?

[ ] have you read the " 7 Simple Steps to Cure CF " e-mail?

[ ] do you want a copy sent to you?

What topics would you like to see in an e-zine (electronic

newsletter) developed for CF families?

Personal Success

[ ] improving your attitude

[ ] goal setting

[ ] personal mission statements

[ ] handling sadness and grief

[ ] dealing with change

[ ] overcoming fear

[ ] developing self esteem

[ ] how to deal with stress

[ ] how to improve your confidence

[ ] how to improve your public speaking

[ ] time management tips

[ ] meditation

[ ] achieving balance in your life

[ ] purposeful living

[ ] how to reduce anxiety

[ ] healthy living

other suggestions?

[ ]

Financial Success

[ ] budgeting

[ ] developing multiple streams of income

[ ] the stock markets

[ ] options trading

[ ] creating wealth

other subject suggestions?

[ ]

Relationship Success

[ ] handling difficult people

[ ] improving communication

[ ] parenting tips

[ ] how to deal with conflict

[ ] emotional honesty

other suggestions?

[ ]

Career Success

[ ] time management

[ ] finding a job you love

[ ] leadership theory

[ ] leading high performing teams

other suggestions?

[ ]

CF subjects

[ ] how to deal with health professionals

[ ] how to deal with hospital stays

[ ] physiotherapy tips

[ ] high calorie recipes

[ ] keeping up to date with CF research

[ ] inspiring stories about pwcf

[ ] inspiring stories about CF families

[ ] updates from international CF conferences

[ ] interesting CF websites

[ ] how to fundraise for CF

other suggestions?

[ ]

[ ] any other comments you wish to

make.

Thanks so much for your time.

[Guest guest]

In a message dated 12/31/2003 3:25:23 AM Central Standard Time,

sarahs_mum65roses@... writes:

Hi CF parents group,

A group of keen parents and pwcf are currently designing an e-zine

(e-mail newsletter) aimed at creating, encouraging and celebrating

success within families with a CF family member.

In order to do that, we need to know the sort of information that

interests this very special group.

Below is an e-mail survey.

It should take you about 5 minutes to complete. If you can help us

please fill it out and e-mail to:

sarahs_mum65roses@...

CF E-Zine Survey

Type an Y (for Yes) or N (for No) between the two brackets

eg. [ Y ] Does a member of your family have CF?

[N ] have you read the " 7 Simple Steps to Cure CF " e-mail?

[ Y] do you want a copy sent to you?

What topics would you like to see in an e-zine (electronic

newsletter) developed for CF families?

Personal Success

[ ] improving your attitude

[ ] goal setting

[ ] personal mission statements

[ X] handling sadness and grief

[X ] dealing with change

[X ] overcoming fear

[ ] developing self esteem

[X ] how to deal with stress

[ ] how to improve your confidence

[ ] how to improve your public speaking

[ ] time management tips

[ ] meditation

[X ] achieving balance in your life

[ ] purposeful living

[ ]X how to reduce anxiety

[X ] healthy living

other suggestions?

[ ]

Financial Success

[X ] budgeting

[ X] developing multiple streams of income

[X ] the stock markets

[ X] options trading

[ X] creating wealth

other subject suggestions?

[ ]

Relationship Success

[ X] handling difficult people

[ X] improving communication

[X ] parenting tips

[ ] how to deal with conflict

[ ] emotional honesty

other suggestions?

[ ]

Career Success

[X ] time management

[X ] finding a job you love

[ ] leadership theory

[ ] leading high performing teams

other suggestions?

[ ]

CF subjects

[X ] how to deal with health professionals

[X ] how to deal with hospital stays

[ X] physiotherapy tips

[ ] high calorie recipes

[X ] keeping up to date with CF research

[X ] inspiring stories about pwcf

[X ] inspiring stories about CF families

[X ] updates from international CF conferences

[X ] interesting CF websites

[X ] how to fundraise for CF

other suggestions?

[ ]

[ ] any other comments you wish to

make.

Thanks so much for your time.

[Guest guest]

I don't know if I am apprioate to answer these questions, BUT, i do know

many of the things that I have been asked for information about,

Yes, I am a grandmom to a now 20 year old gal with CF.

ALL of the categories listed below are soooooo vital to someone with CF

AND/OR a family member , regardless to their place in that area. ........

It is great to know their possible needs.......how to go about getting them

cared for ....which treatments are even available , by whom , where, when,

costs, etc........

Of course , those of us without CF , it is great ,to better understand how

to cope with (deal) & work with & for your family member to. Caring for &

having CF isn't just a few steps. There are thousands of steps & as many

ways to handle--deal with -recognize , etc. So ALL these listed below , can

be included . I am sure more will & can be , should be added , as folks have

dealt with them differently.

This and all such media truly help us all. THANK YOU for your endeavor to

develop & produce this super place for us all. I send my " special " thoughts

to you & all those helping you with this project!!

If there is anything, materials, etc. you might want for your resource ,

Please let me know. I will help in any way I can.

LOVE & HUGS,

GrandmomBEV

Re: CF e-zine survey. Help us to help others.

In a message dated 12/31/2003 3:25:23 AM Central Standard Time,

sarahs_mum65roses@... writes:

Hi CF parents group,

A group of keen parents and pwcf are currently designing an e-zine

(e-mail newsletter) aimed at creating, encouraging and celebrating

success within families with a CF family member.

In order to do that, we need to know the sort of information that

interests this very special group.

Below is an e-mail survey.

It should take you about 5 minutes to complete. If you can help us

please fill it out and e-mail to:

sarahs_mum65roses@...

CF E-Zine Survey

Type an Y (for Yes) or N (for No) between the two brackets

eg. [ Y ] Does a member of your family have CF?

[N ] have you read the " 7 Simple Steps to Cure CF " e-mail?

[ Y] do you want a copy sent to you?

What topics would you like to see in an e-zine (electronic

newsletter) developed for CF families?

Personal Success

[ ] improving your attitude

[ ] goal setting

[ ] personal mission statements

[ X] handling sadness and grief

[X ] dealing with change

[X ] overcoming fear

[ ] developing self esteem

[X ] how to deal with stress

[ ] how to improve your confidence

[ ] how to improve your public speaking

[ ] time management tips

[ ] meditation

[X ] achieving balance in your life

[ ] purposeful living

[ ]X how to reduce anxiety

[X ] healthy living

other suggestions?

[ ]

Financial Success

[X ] budgeting

[ X] developing multiple streams of income

[X ] the stock markets

[ X] options trading

[ X] creating wealth

other subject suggestions?

[ ]

Relationship Success

[ X] handling difficult people

[ X] improving communication

[X ] parenting tips

[ ] how to deal with conflict

[ ] emotional honesty

other suggestions?

[ ]

Career Success

[X ] time management

[X ] finding a job you love

[ ] leadership theory

[ ] leading high performing teams

other suggestions?

[ ]

CF subjects

[X ] how to deal with health professionals

[X ] how to deal with hospital stays

[ X] physiotherapy tips

[ ] high calorie recipes

[X ] keeping up to date with CF research

[X ] inspiring stories about pwcf

[X ] inspiring stories about CF families

[X ] updates from international CF conferences

[X ] interesting CF websites

[X ] how to fundraise for CF

other suggestions?

[ ]

[ ] any other comments you wish to

make.

Thanks so much for your time.