Re: Legal 3-6-9 Cod Liver Oil, and other questions?

November 24, 2006

,

<<My son has been on Nordic Naturals Complete Omega 3-6-9,>>

This one is okay.

<<Berry Keen (same company), and now that I have seen the " illegal "

list for supplements, I am sure with the " strawberry essence "

and " natural lemon oil " that they are probably both illegal?>>

I believe someone else posted recently that the strawberry essence in this

product from Nordic Naturals is fine... and the lemon oil is fine.

<<1 - Crayhon Research: Ultra Pure MCT Oil (only ingredient derived

from coconut oil)>>

If I had a child with diarrhea, I would pull this for now...... wait to get it

under control and re-introduce it BY ITSELF, to make sure it's tolerated. MCT

oil can cause loose stools.

<<2 - Liqumins: Concentrate Trace Minerals Drops>>

This looks like it's free of illegals..... BUT.... I have some concern because

of the super-duper amount of all the mineral in your ASD-PLEX. You are doubling

up on quite a few of the minerals. Why? Not sure this would be a good idea.

<<3 - Nystatin Oral Suspension (orange liquid & flavor, does have

sugar, I'm sure....we tried the plain Nystatin powder w/honey

initially, but he kept vomiting it up. You CANNNOT disquise this

bitter powder, even with honey! Plus, he won't take things via spoon

either)>>

I'm sorry to say this.... but, I don't think you will ever get anywhere on SCD

if you leave this in. If he absolutely cannot or WILL not take the plain, then I

would seriously consider taking the Nystatin out completely for now. I have

heard story after story lately about how Nystatin has ended up making yeast

worse..... and I am beginning to have serious reservations about anyone using it

AT ALL. I know everyone's doctors prescribe it and say the kids absolutely need

to be on it...... but, I have FIRST HAND experience with Nystatin and it did NOT

work for my kid. So, that combined with all the other reports from people on

this list makes me think this is a gigantic red flag.... and that it will

completely impede his progress on SCD.... even if it was the plain.... but WITH

the sugar, you might as well just save yourself the stress and not do the diet.

I hate to be so harsh about it.... but I'm being honest. I feel it's gonna have

to be one or the other.... SCD or the sugar-laced Nystatin. Whichever one you

feel would help him most.... but not both.

<<I verified the other supplements, and they are ok, including the ASD-

Plex multi-vitamin powder.>>

This does indeed look like it's free of illegals..... BUT, as I said... .you

need to look at all the minerals and such that are being duplicated with the

other trace minerals..... AND I would be uncomfortable giving any magnesium

citrate to a kid with diarrhead. That can cause looser stools. I think this

might be a good multi, but my best advice is to pull it until you get stable on

the diet.... get the diarrhea under control.... and then reintroduce it

cautiously.

Patti

November 24, 2006

Thanks so much Patti (and everyone else too!!!!) I really appreciate

all the help with this. ;-) Patti - I DO appreciate your honesty, and

honestly I have been mulling over the whole Nystatin thing myself.

Our previous DAN doc wouldn't prescribe it b/c he said it moves the

yeast into the liver area, which he thought was really bad. I knew

about the sugar in the orange liquid version, but didn't know what

else to do since we had already tried the " plain " version. I am NOT

going to tie my son down and force the plain version down him. I just

won't do it. Talk about necessary therapy! So, after chatting with dh

about it tonight about what you said, we are holding off on it. If

this diet is doing what everyone is saying that it is, I would love

ot be able to get my son to recover without the meds. :-)

Great news about the cod liver oils!!! Wahoo! Ben really does do well

on them, so I dreaded starting over with those. :-) Thanks.

As far as the Lakewood Organics " Pure " Juices being legal, I did read

that from some literature on one of the " SCD " websites, and looked

for it again this afternoon, but can't find it. If I do see it again,

I will let you know where it is. WHen I saw it, about two weeks ago,

I went right out to the Whole Foods in Boulder (while we were living

there) and got the carrot and grape ones to try. Stinks that they

weren't legal! :-(

So no diarhea today! It has actally been a day where I am not sure

this is my son living here at our house! He has been really great! No

real tantrums, especially since he got up from his nap today. He is

actually EATING the meat patties, and eagerly too! I can remember

soooooo many times I tried to feed him hamburgers, turkey burgers,

etc and he would never touch them. Somethign has changed, and he is

actually more interested in eating food it seems! My husnband and I

can't believe how MELLOW he is tonight. His little sister grabbed his

book from him (would have normally been a HUGE tantrum and pushed her

down) and he just sat there, looked at us, and waited for us to

intervene and give it back to him! Unreal!!!! I had dh stop by Whole

Foods and get the Just Grape Juice and a refrig Apple Cider (Mercier

Orchards, www.Mercier-Orchards.com) that seems legal, and remade the

popcicles with 1/2 juice and 1/2 water. And I broiled the beef patty

with a little bit of minced pre-cooked garlic and sea salt tonight

and he LOVED it!!!! A legal dinner!!! Finally! :-))) We are only on

his first real day here (and despite the illegal juices earlier in

the day) is doing soooooooo well! We are actually regaining our hope

again, after losing it to the DAN Protocol. :-)

I will stop the trace minerals and MCT oil for now. You are correct

about all the minerals, I think. I think the new DAN doc had also

recommended them with us being new to high altitudes, thinking the

trace minerals would help with the adjustment there. BUT, now we are

back at 900ft above sea level, so we don't need them really anyway

now. LOL. :-) I will back off the multi as well for a bit. It does

say on the container though for the ASD-PLex that it is

recommened/approved for the SCD Diet, so that is good! :-)))

Oh, and the reason I thought all those juices were legal was b/c the

book just kept talking about " concentrated " juices being bad. So,

since I kept reading labels and found the two RW Knudsen ones that

said " not from concentrate " and said no additives, or anything else,

I just thought they might be legal. That's why I asked though, b/c I

WASN'T sure. :-) Anyway, got it straight now!!!!

Thanks so much everyone, and I will keep you posted on Ben's

progress, but I think we are really on to something here (finally!)

:-)))))))

>

> ,

>

> <<My son has been on Nordic Naturals Complete Omega 3-6-9,>>

>

> This one is okay.

>

> <<Berry Keen (same company), and now that I have seen the " illegal "

> list for supplements, I am sure with the " strawberry essence "

> and " natural lemon oil " that they are probably both illegal?>>

>

> I believe someone else posted recently that the strawberry essence

in this product from Nordic Naturals is fine... and the lemon oil is

fine.

>

> <<1 - Crayhon Research: Ultra Pure MCT Oil (only ingredient derived

> from coconut oil)>>

>

> If I had a child with diarrhea, I would pull this for now......

wait to get it under control and re-introduce it BY ITSELF, to make

sure it's tolerated. MCT oil can cause loose stools.

>

> <<2 - Liqumins: Concentrate Trace Minerals Drops>>

>

> This looks like it's free of illegals..... BUT.... I have some

concern because of the super-duper amount of all the mineral in your

ASD-PLEX. You are doubling up on quite a few of the minerals. Why?

Not sure this would be a good idea.

>

> <<3 - Nystatin Oral Suspension (orange liquid & flavor, does have

> sugar, I'm sure....we tried the plain Nystatin powder w/honey

> initially, but he kept vomiting it up. You CANNNOT disquise this

> bitter powder, even with honey! Plus, he won't take things via

spoon

> either)>>

>

> I'm sorry to say this.... but, I don't think you will ever get

anywhere on SCD if you leave this in. If he absolutely cannot or WILL

not take the plain, then I would seriously consider taking the

Nystatin out completely for now. I have heard story after story

lately about how Nystatin has ended up making yeast worse..... and I

am beginning to have serious reservations about anyone using it AT

ALL. I know everyone's doctors prescribe it and say the kids

absolutely need to be on it...... but, I have FIRST HAND experience

with Nystatin and it did NOT work for my kid. So, that combined with

all the other reports from people on this list makes me think this is

a gigantic red flag.... and that it will completely impede his

progress on SCD.... even if it was the plain.... but WITH the sugar,

you might as well just save yourself the stress and not do the diet.

I hate to be so harsh about it.... but I'm being honest. I feel it's

gonna have to be one or the other.... SCD or the sugar-laced

Nystatin. Whichever one you feel would help him most.... but not both.

>

> <<I verified the other supplements, and they are ok, including the

ASD-

> Plex multi-vitamin powder.>>

>

> This does indeed look like it's free of illegals..... BUT, as I

said... .you need to look at all the minerals and such that are being

duplicated with the other trace minerals..... AND I would be

uncomfortable giving any magnesium citrate to a kid with diarrhea.

That can cause looser stools. I think this might be a good multi, but

my best advice is to pull it until you get stable on the diet....

get the diarrhea under control.... and then reintroduce it

cautiously.

>

> Patti

>

November 24, 2006

,

Re: the Nystatin

<<So, after chatting with dh

about it tonight about what you said, we are holding off on it.>>

YAY!! I am glad to hear that. However.... you may need to brace yourself for a

sort of " rebound effect " . We've certainly heard reports here of that happening.

I think that is what keeps some folks going back to Nystatin, thinking their

child must " need " it.... because as soon as they stop, yeast goes crazy.

Have some alternate anti-fungal strategies in place.... or READY to put in

place, OK? You might look into the Candex enzymes.... and there are other brand

names of legal yeast eating enzymes as well.

Another natural anti-fungal with rave reviews is the fresh carrot juice and

fresh garlic remedy. Recipe is in our " files " section at the home page for this

group (not on pecanbread.com... at least I don't *think* it's ever been

uploaded there).

<<As far as the Lakewood Organics " Pure " Juices being legal, I did read

that from some literature on one of the " SCD " websites, >>

Well.... it *could* be that someone on some other website or list has gotten

written confirmation on the Lakewood juices.... enough that they are satisfied

and comfortable with using them. WE... at least currently.... still only

advise the juices (and other products) that were " officially " legal when Elaine

Gottschall was still living. We have been reluctant to officially deem any new

products to be legal. It's sort of a LONG story.... and a complicated one.

But.... any individual can make those decisions for themselves.... and if they

are willing to trust a company's word, they can go ahead and use a product that

is not " officially " legal.

However, everyone takes that responsibility upon themselves and must know that

companies change their processes and recipes all the time, and are not obligated

to TELL YOU FIRST! Companies are bought out by other companies..... and while

names and labels may not change, practices might. For *some* SCD'ers, this may

literally be an issue that puts their health on the line.... so, it depends on

what level of risk one is prepared to take.

In ANY case, there is NO SUCH THING as a legal, commercially bottled, apple or

pear juice.... no brand is legal. Period. Of the other juices.... there may be

some that can be used, depending on the written verification you have. Nobody

(that includes us... even though we are one of very few websites/lists that were

given the nod by Elaine herself) currently has the authority to deem any new

products to be officially " SCD legal " . Since she is gone, we do have a

difficult dilemma now over products.... but, well, it is just a dilemma for now.

I don't feel comfy using ANY commercial juices.... I just keep it simple by

either making my own (I have a juicer) or making honey lemonade (a squeeze of

fresh lemon juice in water, honey to taste.... or you can use saccharin).

I am very happy to hear that you are seeing GOOD things! Wa HOOOOOO! Let's

hope it just gets better and better from here.

How is your daughter doing? No more seizures?

Patti

November 24, 2006

I have to say I highly agree, With regards to the comment using Nystatin, My son

was given Nystatin and he got sooo sick while he was taking it. I stopped giving

it and we are seeing regression. The yeast are coming back with VINGIOUS!!! That

is why I am here, I learned alot about alternative ways of combating yeast, in

a more natural way. I think the Nystatin made my son's symptoms worse. We won't

be using that again.

I wish you the best of luck!

Blessings,Christy Mom of Tristen

Patti wrote: