Guest guest Posted December 17, 2003 Report Share Posted December 17, 2003 Bev and n have known me for years. Bev is so upbeat I wonder what they have at the CF pharmacy in Orlando that keeps her so happy. n likes to keep me around, as I make her look and feel young. Being the focus of a CF support list is momentary.a fifteen seconds of fame undeserved. As more information becomes available that there are hundreds if not thousands of people with CF who have survived into their 60's and 70's, the concentration will get away from statistics that are meaningless. The 30 odd years of survival as a statistic has no effect on whether or not you are getting the proper medical care, diet and the love everyone needs to survive. A statistic can actually frighten a person with CF into thinking their demise is impending. (I was actually given only three years to live when I was diagnosed. To the joy of the IRS, I'm still around). The CFF and I have gone many rounds on this, but they want to raise money.you now know what I think of their statistics! Hal Quote Link to comment Share on other sites More sharing options...
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