HELP

[Guest guest]

Dear Gwen, I got a cold a week and a half before my surgery and I

freaked, my PCP said lots of vitamin c and lots of fluids. I had him

check me out before I left from Ca to see if my lungs were clear. Of

course when I went into talk to Dr. R at clinic the first thing I did

was cough. I was about over the cold but I had to go on antibiotics

afterward just to be sure I didn't develop Pneumonia. He would have

said no if I had arrived a few days before when it was still pretty

bad. I feel the anxiety you are going through and hope you are better

real soon.

Marjory

8/30/00

> Hi Vicki,

> I am pre-op, scheduled for Sept 27. I too have been having

terrible sinus headaches. I called Barbara and she said I could

continue my Allegra to help, just none of the things

listed,aspirin,etc. My big worry now is that I have just over a week

to go and I am afraid I am getting a cold (possibly just sinus)either

way I can't do this now. Can anybody help, what can I do? I will die

if something happens to stop this surgery now. Is there anyhting I

can take to ward off any cold virus that wants to land on me ?

> Good Luck Vickie

> Gwen

> Dancing with the Dr 9/27

>

> ........................................................

> iWon.com http://www.iwon.com why wouldn't you?

> ........................................................

[Guest guest]

Hi ,

I am from Hazard, Ky, so I suppose it was me. You can email me if you want

or you can call me at .

Kay

Help

> The other day I saw a post from someone in Hazard, Ky...Sorry I don't

> remember who you are but would you please email me....I need to talk

> to you.

>

> Thanks!

> Fleming

>

>

>

[Guest guest]

Carol, I presume for your question about doctors in Georgia that you live

here. There are several of us in Atlanta who are pre-op and considering,

pre-op and scheduled, or have had the MGB. There is also someone in Tifton

who is pre-op. I don't know if she is considering or scheduled.

I have been looking at this procedure since mid-July. I am pretty convinced

that I will go through with having MGB, but I am going to wait until

January. I am 5'9, 260 lbs. (BMI approximately 39). I have hypertension and

hypothyroidism.

Welcome to the list. You'll find lots of support and a few laughs.

Maggi

[Guest guest]

Thanks Trudy! I will check with the web site. I have also been

checking out doctors, trying to find one closer to my home town.

Columbus GA

Thanks,

Carol

From Cols GA

> Hey Carol,

> I'm in need of about a 150 lb. weight loss also, I'll settle for

100 lbs. tho. I'm just getting my package ready to send in. I'm

waiting on my pap smear results. I'm a self-pay, because I can't wait

a couple of years to fight my insurance.

> I have some reall good friends tho. who are helping me pay for this.

> Good, luck to you, start with the web site where it says start

here.. 12 steps.

> Trudy, Indiana

> Pre-op 335, BMI 61

>

> Help

>

>

> Hello! I am new to this and would like to know if someone can

help

> me find a doctor that does the MiniGastricBypass in the Georgia

> area. Also, I have spinal stenosis and was told I need to lose

> weight to help with the pain since it is not bad enough to have

> surgery to repair. The pain is aweful! I need to lose a good

150

> lbs. Please respond!

>

> Thanks,

> Carol

>

>

>

>

[Guest guest]

Maggi,

Yes, I am in Columbus GA. I am 5'5 " and 278 lbs. I have type II

diabetes, Hypothyroidism, degenerative arthritis in my knees and

lower spine (spinal stenosis), bad cholestrol, gerd, have had

complete hysterectomy and gall bladder surgery. My parents died

from heart problems. I am 46, almost 47 and in worse shape than they

were before they died. It absolutely scares me! I have been in

severe pain for over a year from the spinal stenosis and the test

show that I have some buldging but not bad enough for surgery.

Surgeon says lose weight and exercise. Easier said than done! I can

hardly walk. My insurance is a private group through work called

Evergreen. The exclusions say no gasteric staple or divices for

weight reduction. I don't know if a letter from my primary care

physican will change their minds.

You would think if surgery helps us get better and can save on

medicines and other heath problems from occurring then they would

approve it!

longer than I planned. Sorry! Thanks for writing. Any help is much

appreciated!

Carol

> Carol, I presume for your question about doctors in Georgia that

you live

> here. There are several of us in Atlanta who are pre-op and

considering,

> pre-op and scheduled, or have had the MGB. There is also someone

in Tifton

> who is pre-op. I don't know if she is considering or scheduled.

>

> I have been looking at this procedure since mid-July. I am pretty

convinced

> that I will go through with having MGB, but I am going to wait

until

> January. I am 5'9, 260 lbs. (BMI approximately 39). I have

hypertension and

> hypothyroidism.

>

> Welcome to the list. You'll find lots of support and a few laughs.

>

> Maggi

[Guest guest]

Amy:

You can send in your packet before you start talking to Dr. R through email.

He will answer you.......it may take a few days due to the overwhelming

emails he gets.

Good Luck!!

Christy

California Pre-Op

MGB 11/8/00

[Guest guest]

angela, ask Flo, she is wonderfully supportive, posts all the time and offers

to do this for folks. She's very approachable. Jillian Bopeep

[Guest guest]

Shirley,

Can you drop the god stuff please? I lost the weight through sheer hard

work, without a god that I don't believe in, and I find your comments

offensive. Also, you're advising people to graze? Not so good. Exercise

is way more useful for keeping weight off than any low-fat low-calorie

concoction that just keeps the carb monkey on your back and the old

habits unchanged.

Z

Open RNY 09/17/01

310/126/141 (goal was 160)

Then/lowest/now

http://www.ziobro.us/Blogger/WLS.html

HELP

OK LADIES NOW WE ALL HAVE COME TOO FAR TO LOOK BACK NOW. IT IS HARD TO

DIET AND WE ALL KNOW THIS BUT WE CAN DO IT. MAKE SOMETHING THAT YOU

LIKE THAT DOES NOT HAVE TOO MANY CALORIES TO SNACK ON. ONE GOOD RECIPE

IS CABBAGE SOUP. POPCORN IS GOOD AND SUGAR FREE JELLO WITH

APPLESAUCE. FREEZE COOL WHIP FOR A SNACK (FAT FREE). PRETZELS ARE

GOOD TOO. KEEP VEGGIES IN THE FRIDGE. EAT ALL YOU WANT! DRINK WATER OR

CRYSTAL LIGHT UNTIL YOU ARE FULL. WE CAN DO IT WITH GOD'S HELP SHIRLEY

[Guest guest]

Carol,

B-12 is washed out with water. It is not stored in the body and

will not build up to toxic levels. Nothing to worry about. My b-12

levels were high as well and my doc just said that I have expensive

urine, LOL! Better to be high than to be low, IMHO!

Reba in Auburn, AL

> I got a copy of my latest blood work today from my doctor's office

> and everything was great, except, it listed my b-12 level at 1119

and

> indicated it was high. Anyone know what this might mean as far as

> health problems for me? Please someone answer. Thanks. I know

my

> doctor will, but I just thought some of you might have the same

> problem.

[Guest guest]

> I got a copy of my latest blood work today from my doctor's office

and everything was great, except, it listed my b-12 level at 1119 and

indicated it was high. Anyone know what this might mean as far as

health problems for me? Please someone answer. Thanks. I know my

doctor will, but I just thought some of you might have the same

problem.<<<

No need to worry, Carol. Excess B-12 is flushed out through our

urine. Do you take B-12 injections? If so, you may have had the labs

drawn right after the injection. That causes it to seem high. My doc

said to make sure that I got my labs just before my next injection of

B-12 to get a true reading. If you are on the sublingual dots, you

might want to skip every third day or so. But watch your labs closely

because this can fall quickly. And being low is bad. But being high

won't hurt a thing.

Sheri

In Sunny Florida

[Guest guest]

I also think that different people feel good at different B12 levels. 500

may be normal, but I don't feel very good until I hit 800 or 900. My B12

level is usually a little over 1000 (monthly B12 shots). I would rather have

it up there and not worry about it than to try to keep it between 800 and

900. As for expensive urine, B12 shots are just about the least expensive

vitamin you can buy. I got a year's supply for about $7.00.

Barbara Jean

Re: Help

> Carol,

>

> B-12 is washed out with water. It is not stored in the body and

> will not build up to toxic levels. Nothing to worry about. My b-12

> levels were high as well and my doc just said that I have expensive

> urine, LOL! Better to be high than to be low, IMHO!

>

> Reba in Auburn, AL

>

>

> > I got a copy of my latest blood work today from my doctor's office

> > and everything was great, except, it listed my b-12 level at 1119

> and

> > indicated it was high. Anyone know what this might mean as far as

> > health problems for me? Please someone answer. Thanks. I know

> my

> > doctor will, but I just thought some of you might have the same

> > problem.

>

>

>

[Guest guest]

Reba,

This is incorrect. Vitamin B-12 is the only water-soluble vitamin that

can be stored by the body. It is stored in the liver.

http://members.tripod.com/Daryl_D/B12-iron.html and

http://www.veganhealth.org/b12/dig are good sources for more information

about Vitamin B-12 metabolism and storage.

High levels of Vitamin B-12 can indicate hepatic (liver) disease such as

cirrhosis or hepatitis, or myeloproliferative disorders like myelocytic

leukemia, but of course these disorders are pretty rare.

Ziobro

Open RNY 09/17/01

310/126/141 (goal was 160)

Then/lowest/now

http://www.ziobro.us/index.html

Re: Help

Carol,

B-12 is washed out with water. It is not stored in the body and will

not build up to toxic levels. Nothing to worry about. My b-12 levels

were high as well and my doc just said that I have expensive urine, LOL!

Better to be high than to be low, IMHO!

Reba in Auburn, AL

> I got a copy of my latest blood work today from my doctor's office and

> everything was great, except, it listed my b-12 level at 1119

and

> indicated it was high. Anyone know what this might mean as far as

> health problems for me? Please someone answer. Thanks. I know

my

> doctor will, but I just thought some of you might have the same

> problem.

[Guest guest]

Wow, it seems like a lot of people on the board are having this done around

the same time! Best of luck Ella, I¹m sorry you¹ve been so sick! Some of the

guys and gals who have had this recently will certainly post their

experience with it.

--

Sagel Burns

Lap RNY April 9, 2004 (-83 lbs.)

348/265/140 (begin/current/goal)

carrie@... - www.carrieburns.net

> hi, I had my surgery on 7-22 and have been sick since Saturday -

> throwing up a lot and nausea - the doctor said there might be

> something stuck in my pouch and I should have an endoscopy done. I

> have one scheduled for Monday - can anyone tell me what it is and

> how it is done. The doc said I will be knocked out with demerol -

> will that really knock me out??? Please any advise would be

> appreciated. Thanks, Ella

>

>

>

[Guest guest]

Ella i hope all goes well for you hun!

.

evt1012 wrote:

hi, I had my surgery on 7-22 and have been sick since Saturday -

throwing up a lot and nausea - the doctor said there might be

something stuck in my pouch and I should have an endoscopy done. I

have one scheduled for Monday - can anyone tell me what it is and

how it is done. The doc said I will be knocked out with demerol -

will that really knock me out??? Please any advise would be

appreciated. Thanks, Ella

[Guest guest]

brooke sheilds wrote:Ella i hope all goes well for you

hun!

.

evt1012 wrote:

hi, I had my surgery on 7-22 and have been sick since Saturday -

throwing up a lot and nausea - the doctor said there might be

something stuck in my pouch and I should have an endoscopy done. I

have one scheduled for Monday - can anyone tell me what it is and

how it is done. The doc said I will be knocked out with demerol -

will that really knock me out??? Please any advise would be

appreciated. Thanks, Ella

[Guest guest]

Hi Cheryl

I have already replied to this once but it disappeared...so if there

are 2 replies from me, apologies!

I know a few children who have been treated, and done very well with

the Ponseti method, even though they started the treatment late. I

think it is better if they have not been operated on before. Has your

friend's child been operated on? I would suggest that she sees someone

who is really experienced in treating clubfoot though. Ideally Naomi

in Manchester who is on Dr Ponseti's list of approved doctors,

or Alison Hulme/ in Chelsea and Westminster hospital.

Alison and went to Iowa to spend time in Dr Ponseti's clinic

and have a thriving Ponseti clinic!

I've suggested these names as I'm guessing from your profile (Essex)

that you are in the UK!

Hope this helps

Stella

>

> I have just seen a lady that I used to see at the hospital. There

> child is nearly two and his feet are still not corrected. The doctor

> is going to do an operation on the 20th and I am trying to help her

by

> saying about a second opinion as I did. Could anyone advise me if

> ponseti is too late for a 2 year old or is it still worth me

supporting.

>

> Many thanks

>

> Cheryl

>

[Guest guest]

Cheryl,

It is ALWAYS worth trying first before surgery. It might mean the

difference between surgery and not or between more invasive surgery and less

invasive. KWIM? I'd go for a second opinion hands down.

Chris

Help

I have just seen a lady that I used to see at the hospital. There

child is nearly two and his feet are still not corrected. The doctor

is going to do an operation on the 20th and I am trying to help her by

saying about a second opinion as I did. Could anyone advise me if

ponseti is too late for a 2 year old or is it still worth me supporting.

Many thanks

Cheryl

[Guest guest]

Cheryl,

Please advise her that 2 is definitely NOT too late to use the Ponseti

method! The Ponseti method is now being used to treat children who

are even 4 or 5.

Mom to Jenna (4/7/01) & Sammy (9/25/04, RCF, Dobbs' brace, 12-14hrs/day)

>

> I have just seen a lady that I used to see at the hospital. There

> child is nearly two and his feet are still not corrected. The doctor

> is going to do an operation on the 20th and I am trying to help her by

> saying about a second opinion as I did. Could anyone advise me if

> ponseti is too late for a 2 year old or is it still worth me

supporting.

>

> Many thanks

>

> Cheryl

>

[Guest guest]

Cheryl,

It's not too late.. even in a child that age, Ponseti casting (done

right) can completely correct or greatly minimize the amount of surgery

needed.

There's nothing to lose by trying, and SO much to gain!

from the Global Health booklet:

" Treatment between 9 and 28 months is still helpful in correcting all

or much of the deformity "

.... and it has been successful in even older children.

It's wonderful you are helping this mom and child.

What part of the country/world are you in?

>

> I have just seen a lady that I used to see at the hospital. There

> child is nearly two and his feet are still not corrected. The doctor

> is going to do an operation on the 20th and I am trying to help her by

> saying about a second opinion as I did. Could anyone advise me if

> ponseti is too late for a 2 year old or is it still worth me

supporting.

>

> Many thanks

>

> Cheryl

>

[Guest guest]

Hi Yes I am from Essex in the UK. I see and Alison myself but

have not been able to get hold of them today and wanted to give her

some info tonight as there clinic is tomorrow.

The child has had a tetenotomy (spelling not good) but they are

looking to do something to the side of the foot.

Thank you for your reply.

Cheryl

>

> Hi Cheryl

>

> I have already replied to this once but it disappeared...so if there

> are 2 replies from me, apologies!

>

> I know a few children who have been treated, and done very well with

> the Ponseti method, even though they started the treatment late. I

> think it is better if they have not been operated on before. Has your

> friend's child been operated on? I would suggest that she sees someone

> who is really experienced in treating clubfoot though. Ideally Naomi

> in Manchester who is on Dr Ponseti's list of approved doctors,

> or Alison Hulme/ in Chelsea and Westminster hospital.

> Alison and went to Iowa to spend time in Dr Ponseti's clinic

> and have a thriving Ponseti clinic!

>

> I've suggested these names as I'm guessing from your profile (Essex)

> that you are in the UK!

>

> Hope this helps

>

> Stella

>

>

>

>

[Guest guest]

not too late! even if attt that is way better than other options

Help

I have just seen a lady that I used to see at the hospital. There

child is nearly two and his feet are still not corrected. The doctor

is going to do an operation on the 20th and I am trying to help her by

saying about a second opinion as I did. Could anyone advise me if

ponseti is too late for a 2 year old or is it still worth me supporting.

Many thanks

Cheryl

[Guest guest]

Hi Cheryl,

The Ponseti Method is really never too late for younger children I

feel. My daughter, , from China with untreated bilateral

clubfeet was treated at 3.5 years of age by Dr. Ponseti after we

brought her home at the age of almost 3 years. We were originally with

doctors in Salt Lake City, who thank goodness we didn't stay with,

since their approach was major surgery first and then some casting.

Unfortunately we didn't find Dr. Ponseti right away. It wasn't until

many months later when Salt Lake kept delaying the surgery dates and

their story seemed to change. My mother's intuition told me something

was wrong. Then after I found Ponseti, the doctor in Salt Lake called

me to give us our surgery dates and proceeded to tell me that her case

was so severe they felt she would probably end up being an amputation

case. I couldn't believe it. When we very first went to them they

said they felt they could correct her feet with no question. We had

chosen them because this doctor had " successfully " (so we thought)

corrected an eight year old bilateral clubfoot child from Mexico whose

feet looked just like 's. When I originally asked Salt Lake

about the Ponseti method they told me she was too old to do it so they

had better success with surgery first and then a few cast changes after

surgery. Also, the Ponseti doctor here in town (who is very good with

the babies) wouldn't take on an older child like her because he didn't

have that experience. I applaud him for being a true professional and

being honest about his limits. We were fortunate to have not done

anything invasive in Utah, only x-rays, GAIT lab study (study of her

walking and all with just the use of video cameras and pictures) and

clinic evaluations. We found Dr. Ponseti in August and 4 days after

talking to him my children and I flew out to see him. had 17

cast changes (keep in mind her case is the most severe he's had and

she's also the oldest untreated child he's ever treated) and an ATTT

and tenotomy on both feet in November. Her left foot is perfect,

however we do still need to return for a little more work to be done on

her right foot which was the most severe. I am so thankful we did not

stay in Salt Lake. She would have had major surgery, multiple times we

found out later, and I'm sure very, very painful feet. I can't believe

we almost did that. It makes me sick to my stomach. Dr. Ponseti is

our hero and we are forever grateful. I could go on and on, but please

tell your friend it is not to late. Their child will be so much

further ahead being treated with the Ponseti method at the age of two

then what was at 3.5 years old. Most older kids that have the

Ponseti method and then possibly an ATTT in some cases, do not have any

more problems and are fully corrected. 's left foot is

perfectly corrected and her right foot we had a little setback with so

we have a little more correction to go. If your friend has any

questions at all please have her contact me at my home e-mail

cjjidaho@... and I will help her anyway I can. Take care and

because of you, you may have spared this child a life of painful feet,

Cheryl.

Take care!

Joyce

>

> I have just seen a lady that I used to see at the hospital. There

> child is nearly two and his feet are still not corrected. The doctor

> is going to do an operation on the 20th and I am trying to help her by

> saying about a second opinion as I did. Could anyone advise me if

> ponseti is too late for a 2 year old or is it still worth me

supporting.

>

> Many thanks

>

> Cheryl

>

[Guest guest]

,

I will try to list ANYthing I can think of....

The pumpkin is made fresh... cooked from fresh pumpkin, right? Not canned? I

know it is not yet available fresh for us here in the U.S. ... but probably much

more accessible for you there in Mexico.

Some children have trouble digesting carrots. Are you sure he tolerates them?

Are you pureeing them?

Do you see bits of undigested food in his stool?

When you say " coriander " .... do you mean the fresh leaves of the plant? We call

that " cilantro " in the U.S. I would be cautious about using very much of it, as

it can chelate mercury... causing it to move from wherever it is stored in the

body, potentially causing toxic reactions.

Yes... we WANT mercury to leave the body, but some people have more problems if

mercury is being pulled out before the body can successfully move it out (the

intestinal tract needs to be well healed). I may have some information saved

about cilantro... and the cautions about using it. I will look for it.

How much avocado is he eating each day? I am wondering if he is having trouble

with the high fat content of it? If he was having a problem with olive oil, I

wonder if he's not able to digest the fat? Avocado can be somewhat laxative.

The apples and pears are peeled and cooked, right?

I know you say you have tried to introduce new foods, but that he has not been

able to tolerate them. But... it sounds like he is not able to tolerate

SOMETHING he is currently eating.

Have you not been able to introduce any nut butters?

Are you using any SCD-legal dairy? Yogurt? Goat cheeses?

If not, is he taking a supplement of acidophilus?

Please tell us exactly ALL of the supplements he is taking.

We will do the best we can to help.

Patti

HELP

Hi

I have been reading some mails where is mentioned the possibility of a

" regression " during the first 2 or 3 months. My son has 3 ½ months with SCD, but

we have almost one month with problems again. His gut is sluggish, poops smelly,

to much gas and smelly too. 3 days ago he had terrible colic. He has been eaten

since the beginning few foods, to be precise he is eaten since one moth (when

the bad symptoms appeared again) chicken, fish, carrots, pumpkin, chayote

(Mexican pear shaped), avocado (hass) and a local avocado-sweeter than hass

avocado, coriander, mint, the chicken is cooked with onion but it is not eaten,

pears, apples and gelatin of this fruits, some herbs to give a different flavor

to the vegetables and fish. He is not eaten olive oil because I thought it was

causing problems, when I retired it, the stools change to be better than we

began the diet. He is taking yet medicine for the colic. I'm desperate and sad;

I don't know what else I have to do to help him. I

tried to incorporate new food but I have not successful, his immunologic

system seems to react to every thing. >God, some body can help me???

ALICIA MOM OF CARLOS (9) BRAIN INJURY CHILD AND HYPOMELANOSIS OF ITO SYNDROME.

---------------------------------

[Guest guest]

This is the ninth week for my 18 yo. son diagnosed with severe, low-functioning,

non-verbal autism. We have been going through a least a full week of his

whining and crying and thinking about nothing but food. All I seem to do from

day to day is cook food, feed food, clean up after food and try to think of ways

to get his bowels to move. He started the SCD great--regular BMs, calmer and

lots better behavior. But these last few weeks have been awful. His

constipation is unremitting. He does have a BM almost every day, but only

because I am so focused on it happening and giving him MgCitrate, epsom salts

(orally!!--just the bath was not helping!), prunes (a cup at a time and still no

BM), lots of water (10 glasses a day--even 24 oz. at once). He has moved from

having one regular BM to explosive watery BM--only after numerous interventions

each day. The other day I finally gave him an enema. He seemed to take quite a

bit of water in his bowel, but he still ended up

with watery, loose BM and still nothing the next day. I have been careful to

stay on the diet--there have been no infractions. Even the soups of the intro

diet, which we have gone to at times trying to get his bowels to move better,

have not helped any. Each day it is the same---no BM unless I give epsom salts

orally, along with all the other things---water, MgCitrate, prunes. Oh, yes, I

am also doing the raw milk, 24-hr. goat yogurt. That has stopped the watery BMs

right away when he is having more than one of the loose BMs at a time. Oh, yes,

I also took him off cheese thinking it might be a problem with a reaction to

milk and there didn't seem to be any difference. I haven't done charcoal.

ly, without his bowels moving, I have been concerned about it making him

more constipated, but perhaps not.

Oh, yes, I stopped the antifungals--cranberry caps, garlic caps, oregano caps,

grapefruit seed extract for a while because they were recommending that on the

list, that the diet would take care of things, but that did not seem to be of

help for anything--the whining the crying, the constipation. I have started

them back. He was also on Nu-Thera, EFAs, TMG, minerals (maybe some thing else)

and I stopped all that for a while, but it didn't seem to make any difference.

I really need some encouragement. I am so discouraged about it all. I know

this diet is the right thing for him and it started out so well. I realize we

are about the 8 week regression, but this has gone on for at least a week and

the constipation has gone on for at least 2-3 weeks.

Could someone email me off list because I only have dial up and I already

spent an hour trying to get my email up just to write this note. I take the

digest and have not had time (with such a slow computer) to even stay up with

the digest. It has been helpful and encouraging, but I am way behind and at

this rate (spending tons of time over him and his diet and my slow links) won't

be able to get caught up for weeks.

Mimi phoned me a few weeks ago and if she could phone me again, I could call

her right back--or anyone who could be an encouragement and give me some hope.

Carfagno, mom to , age 18 yo, severe, low-functioning, non-verbal

autism and SCD for 9 wks.

Phone:

email: jcarfagno@...

---------------------------------

Cheap Talk? Check out Yahoo! Messenger's low PC-to-Phone call rates.

[Guest guest]

I called and she allowed me to share details of our talk so that

we could all learn from her experience. The good news is that SCD has

made lose his tendency to chew everything! The drooling has

either stopped or is greatly diminished!

was crying tears of joy when she related to me these new

changes. I also wanted to cry for and all the other children

who have suffered so long without SCD.

had worked very hard to try to solve this problem. She has

eliminated all the foods except carrots in order to try to find the

problem food. Even before told me that,I immediately suspected

carrots. I know that Dr Haas wrote that carrots were easy to digest

but I suspect that there is today a different kind of carrot that is

harder to digest. Could this be the same situation as turnips? Dr Haas

allowed turnips but Elaine had to remove them from her last edition

of BTVC. Are they genetically modifying these veggies or just

substituting a different variety that can spoil less readily?

HTH,

Mimi

> This is the ninth week for my 18 yo. son diagnosed with severe,

> low-functioning, non-verbal autism. We have been going through a least a

> full week of his whining and crying and thinking about nothing but food.

> All I seem to do from day to day is cook food, feed food, clean up after

> food and try to think of ways to get his bowels to move. He started the SCD

> great--regular BMs, calmer and lots better behavior. But these last few

> weeks have been awful. His constipation is unremitting. He does have a BM

> almost every day, but only because I am so focused on it happening and

> giving him MgCitrate, epsom salts (orally!!--just the bath was not

> helping!), prunes (a cup at a time and still no BM), lots of water (10

> glasses a day--even 24 oz. at once). He has moved from having one regular

> BM to explosive watery BM--only after numerous interventions each day. The

> other day I finally gave him an enema. He seemed to take quite a bit of

> water in his bowel, but he still ended up

> with watery, loose BM and still nothing the next day. I have been careful

> to stay on the diet--there have been no infractions. Even the soups of the

> intro diet, which we have gone to at times trying to get his bowels to move

> better, have not helped any. Each day it is the same---no BM unless I give

> epsom salts orally, along with all the other things---water, MgCitrate,

> prunes. Oh, yes, I am also doing the raw milk, 24-hr. goat yogurt. That

> has stopped the watery BMs right away when he is having more than one of the

> loose BMs at a time. Oh, yes, I also took him off cheese thinking it might

> be a problem with a reaction to milk and there didn't seem to be any

> difference. I haven't done charcoal. ly, without his bowels moving, I

> have been concerned about it making him more constipated, but perhaps not.

>

> Oh, yes, I stopped the antifungals--cranberry caps, garlic caps, oregano

> caps, grapefruit seed extract for a while because they were recommending

> that on the list, that the diet would take care of things, but that did not

> seem to be of help for anything--the whining the crying, the constipation.

> I have started them back. He was also on Nu-Thera, EFAs, TMG, minerals

> (maybe some thing else) and I stopped all that for a while, but it didn't

> seem to make any difference.

>

> I really need some encouragement. I am so discouraged about it all. I

> know this diet is the right thing for him and it started out so well. I

> realize we are about the 8 week regression, but this has gone on for at

> least a week and the constipation has gone on for at least 2-3 weeks.

>

> Could someone email me off list because I only have dial up and I already

> spent an hour trying to get my email up just to write this note. I take the

> digest and have not had time (with such a slow computer) to even stay up

> with the digest. It has been helpful and encouraging, but I am way behind

> and at this rate (spending tons of time over him and his diet and my slow

> links) won't be able to get caught up for weeks.

>

> Mimi phoned me a few weeks ago and if she could phone me again, I could

> call her right back--or anyone who could be an encouragement and give me

> some hope.

>

> Carfagno, mom to , age 18 yo, severe, low-functioning,

> non-verbal autism and SCD for 9 wks.

> Phone:

> email: jcarfagno@...

>

>

> ---------------------------------

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>